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Stem cell treatment for small fiber neuropathy
I have "ideopathic"small fiber neuropathy confirmed by punch biopsy. I believe it was caused by an unintended chronic exposure to high levels of carbon dioxide from an unvented gas construction heater.
I am considering, out of desperation because nothing else helps, stem cell treatment in Mexico. has anyone else tried this experiment?
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@jwr, I also have idiopathic small fiber peripheral neuropathy but don't have any pain just numbness and tingling in the feet and legs. I do think there is a future hope that stem cell treatment can help others with neuropathy but I don't think I'll be around when it's readily available and has been proven to repair nerves for everyone with neuropathy. This is an article from 2018 but I'm pretty sure it still is the case when it comes to stem cell treatment.
-- Stem Cell Treatments: A real hope or false promise?
https://www.foundationforpn.org/stem-cell-treatments-a-real-hope-or-false-promise/
There are a few older discussions along with some recent comments from members discussing stem cell therapy. It might be helpful to scan through them - https://connect.mayoclinic.org/search/?search=stem+cell+treatment+%2Bneuropathy
My concern would be safety practices at the clinics. Here's some regulatory information for Mexico...
"REGULATORY AND LEGAL FRAMEWORKS IN MEXICO
The medical tourism industry is an important business in Mexico, which has been a popular destination for foreign patients who are seeking stem cell treatments, said María de Jesús Medina Arellano, an attorney from Universidad Autonoma de Nayarit who has studied health law and human rights in Mexico. The main consumers of services have been Americans and Canadians who travel to Mexico to obtain treatments that are either unavailable in or are less expensive than in their home countries.
Many private companies in Mexico offer stem cell treatments. However, with just three exceptions, none of the treatments offered in Mexico have been evaluated in Federal Commission for the Protection Against Sanitary Risk (in Spanish, Comisión Federal para la Protección contra Riesgos Sanitarios, or COFEPRIS) registered clinical trials. Yet, many of these treatments are offered as proven and effective therapies. COFEPRIS is an independent government authority of the Ministry of Health that has the exclusive statutory authority to oversee the inspection, approval, and authorization of activities concerning the use, storage, and transplantation of umbilical cord blood or derived human stem cells. However, COFEPRIS does not have standards or guidelines to implement and enforce when evaluating, authorizing, and monitoring research and therapeutic activities involving human tissues and cells, Arellano said..."
-- Stem Cell Therapies: Opportunities for Ensuring the Quality and Safety of Clinical Offerings: Summary of a Joint Workshop. - Comparative Regulatory and Legal Frameworks:
https://www.ncbi.nlm.nih.gov/books/NBK223198/