Stage 4 PC Longevity: Anyone have prostate cancer more than 10 years?

I started out with a prosectomy, followed by radiation,
followed by provenge treatment. From there I had taxotere chemotherapy, lupron shots twice a year. Next was Abirateone acetate and prednisone which kept me in remission for almost 4 years. After that stopped working, they gave me Xtandi. That only lasted 3 months. Then they gave me 13 rounds of Jevtana. Pluvicto came available and that failed after 3 rounds because it made my PSA rise rapidly in my opinion. They put me back on Jevtana now, with 5 rounds of carboplatin with it. I'm on Jevtana alone again, every 3 weeks. This is where I stand now. My PSA rose from 1.56 to 20.83 after using Pluvicto, which failed. My PSA is now 19.33 after 5 rounds of Jevtana. As long as it works, they have me approved for that for a year.

Wow you are the North Star of hope!

Thank you for sharing the details of your journey! 20 years is a great milestone to look forward to!! I'm doing the same. Wishing you peace this holiday season.

Where you de novo when diagnosed or did you start stage one and progress the stage 4? What was your PSA when you were first diagnosed? What treatments did you receive?

Your story gives me lots of hope! What meds did you start with and how have they been adjusted over the years? I've been on daily abiraterone, daily Prednisone, and quarterly lupron for 11 months

Just passed 10 years. October 2013. STAGE 4 GLEASON 9. Now 62 and nothing has changed except the medicines and treatments.

First of all dont dwell on too much on the trials and published stats. They are written mostly for professionals, subject to questions and answers at the time of publishing. That can be some time ago. As such, they are pretty scary. A friend who is a GP told me that 70% of cancer patients die from fear!!!!
Dont mind me. I am just another layman trying to make some sense of the whole thing.

I’m 48; and was diagnosed on June 2022 stage IV wit bone Mets

Apologies, I meant to say SEERS instead of SARS. SARS is COVID. SEERS data is men who where treated with just ADT and the data is old.

I am 61 years old. I was diagnosed with metastatic de novo PC July 27 2022. My birthday of all days. Cancer showed up in my bones - spine, ribs, and hips. I had intense pain at first - I could not lay on my back. After an emergency Gall Bladder surgery - I still could not lie on my back. Went back to the ER - had CT and Bone scans which confirmed adenocarcinoma PC. Started Casodex (30 days) and 10 cycles Radiation to spine and 5 to ribs. Pain disappeared and has never come back. PSA started at 32 and quickly dropped to 1.005. A month later I started Darolutamide and Chemo therapy. I had 10 cycles of Docetaxel because my blood was other-worldy and 10+ cycles of chemotherapy has greater overall survival (OS) stats. Because I could handle chemo very well my doctor asked if I wanted to continue - so I did. At the end of my 10th chemo cycle my PSA dropped to 0.238 and continued to slowly drop to undetectable. I am a slow PSA dropper. All Genetic and Genomic testing also came back negative. I have Zometa infusions every month and eat a 60% plant based diet, exercise (bands & walking) and I work every day. My recent Bone scan showed great improvement and several spots are now resolved. My treatment was patterned after the ARSENS trial. It has been 5+ years since the ARSENS trial ended. At this time Overall Survival (OS) and time to Castration Resistance still has not been reached from the ARSENS trial.

Lastly, I do not look at or except the SARS data. The SARS data is based on ADT alone. This is a Chronic Disease - the medical community does not know how long anyone will live with this disease. I expect to live 20+ more years. Lastly, I find rest and peace with my relationship with Jesus.