Stage 4 PC Longevity: Anyone have prostate cancer more than 10 years?

Hi @rkurtzjr, do you have prostate cancer that has spread to the lymph nodes?

I have posted this before but I am sharing it again here. I belong to a group of prostate cancer warriors who meet every Wednesday on zoom. There are usually 20 to 30 guys on the call who are dealing with various stages of prostate cancer. Please join us tonight at 7 PM EST, if you can. The group is very supportive and we share a lot of information. The moderator does a great job of explaining what the group is at the beginning of the session and then you can say as little or as much as you want when it is your turn to talk. You need to open Zoom on your PC, phone, or tablet, and then copy this link into your browser: https://us02web.zoom.us/j/82817487939
clicking on the link from this website does not seem to work which is why you need to copy the URL. I have found tremendous support and hope by participating in in this discussion. Please join us!

The first shots only side effect was everything was GOOD, The second shot was a mess. But everyone is different so lets pray you have only good side effects

22 years stage 4 fully metastasized since 2008. Good appetite ,cheerful disposition, positive outlook on life.No activities. Caregiver assisted for most basic needs. Not complaining !

Gene, 75 yrs old. Prostate removed in 2002. Came back with a vengeance in 2008. Chemo, radiation, Lubron, nothing worked. Went to hospice care ,tried Xtandi and it worked until 2014 went back to Lubron and it worked again until 2022 . Tried Firmagon , it didn't work. Ran out of options . Pluvicto is my last hope. First treatment wasn"t bad , but this second treatment has been a real tough go. Completely immersed in pain. Loss of mobility, just a mess. Has anyone completed all 36 weeks?

My wifes private isurance has payed everything which is 80% and the rest was picked up by either the corporation that sponsered the medicine or the financial assistance that the facility I'm treated at. I hit all the deductibles in January and the rest of the year everything is covered. I have been lucky and have not payed much out of pocket. They have a good team that works every angle to get me approved. Jevtana's website has a financial assitance program I believe.
https://www.jevtana.com/

Since it's been 10 years, Taxotere was the 1st option and I believe Jevtana didn't get approved until a little later. Jevtana targets the prostate cancer cells and doesn't bother the good cells as much compared to taxotere. When it came to Pluvicto, I was in the minority. Most guys get good results unfortunately it made my PSA rise after 3 infusions. I went from around 2.56 to 20.83 after 3 infusions.

I started out at stage 4 with a PSA of 10.56 October of 2013. I have received everything but the kitchen sink. Look for my other posts on here. It tells the journey I have been through the past 10 years. I never did a profile yet, and I guess I should.

I have been in treatment since 2002 fully metastasized 2008. I have completed my second Pluvicto and I am a wreck. Extremely fatigued/shortness of breath lots of pain terrible systemic swelling.