1. < Prostate Cancer

Stage 4 PC Longevity: Anyone have prostate cancer more than 10 years?

Posted by ringmastr1 @ringmastr1, May 26, 2023

There is a lot of great info on this forum. I am 54 and was just diagnosed in January with metastatic Stage 4 PC. (Hip, L4, Sacrum, and a small liver lesion). My PSA has gone from 359 in January to .24 last week and I feel great! I am curious to know how many guys on this forum have been treated for more than 10 years and what your quality of life is like. It is stories like this that will give me (and others) more hope. Peace to you all!!!

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

srob805 | @srob805 | May 28, 2023
In reply to @edmond1971 "54 is young for joining the club, so I'm thinking positive thoughts for your long-term good..." + (show)
@edmond1971

54 is young for joining the club, so I'm thinking positive thoughts for your long-term good health. An important part of your self-education journey (which needs to occur continuously) is to make sure that any information about life expectancy is always reviewed in context to the age (median, average), the definition of metastatic spread, and the overall health of the participants. Rarely do I find all that information available.

I'm 52 and had my prostate removed at 42, and things were fine until last summer when my PSA skyrocketed and now I'm on Eligard/Zytiga for the past six months and my PSA is at undetectable levels. My metastatic spread is limited to 10+ lymph nodes in my iliac region, and while that isn't something that brings joy, it is very different then having it spread into the bones or organs. I also have a small lesion on my liver but the PSMAPET showed no uptake, so we discounted it. My oncologist doesn't give any guidance beyond 10 years but he puts me in the category of 10+ years.

Do you research and you will be informed, confident, and able to live a positive long life.

Jump to this post

I was diagnosed with stage 4 bone metastatic prostate cancer over 21 years ago. I started Lupron soon thereafter. I had hot flashes for about 5 years and then they began to dissipate. I completely lost my sex drive almost 1 year after diagnosis. My wife has been the one to suffer this loss. Hormone deprivation therapy makes you stop thinking about sex, and any attempt to engage is met with disinterest. Thankfully, my wife has stayed with me. There is far more to a relationship than sex.
My PSA is about.04 and holding. I have lost a great deal of muscle mass because I have over done a handful of exhausting projects over the years. But I continue to exercise; although, at low resistance levels. I believe that exercise is keeping me alive. Life is good and I’m not close to checking out!

REPLY
1 reply
edmond1971 | @edmond1971 | May 28, 2023

54 is young for joining the club, so I'm thinking positive thoughts for your long-term good health. An important part of your self-education journey (which needs to occur continuously) is to make sure that any information about life expectancy is always reviewed in context to the age (median, average), the definition of metastatic spread, and the overall health of the participants. Rarely do I find all that information available.

I'm 52 and had my prostate removed at 42, and things were fine until last summer when my PSA skyrocketed and now I'm on Eligard/Zytiga for the past six months and my PSA is at undetectable levels. My metastatic spread is limited to 10+ lymph nodes in my iliac region, and while that isn't something that brings joy, it is very different then having it spread into the bones or organs. I also have a small lesion on my liver but the PSMAPET showed no uptake, so we discounted it. My oncologist doesn't give any guidance beyond 10 years but he puts me in the category of 10+ years.

Do you research and you will be informed, confident, and able to live a positive long life.

REPLY
2 replies
agustinferrari | @agustinferrari | May 28, 2023

My case similar 47 years old, diagnosed June 2022 with varios metastasis, done decetaxel + nubeqa + eligard and I will start xgeva for the bones soon

So far feeling great, very much active at @100% except for sexual desire that is to the floor…. Other than that in super good shape

I’m also curious who’s been more years into this journey

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ringmastr1 | @ringmastr1 | May 27, 2023
In reply to @melcanada "2018 rad 40 days then Zolodex 2020 stage 4 put back on Zolodex after L2 radiated..." + (show)
@melcanada

2018 rad 40 days then Zolodex
2020 stage 4 put back on Zolodex after L2 radiated 1,5 inc cancer out
Jan 2023 L1 and T 10 T 11 so put on Xtandi or Enzalutamide and PSA dropped from 9.8 to 1,7 in a month added Xgeva for bones 1200mg Calcium daily
Prayer helps I feel great back issues don't allow for long walks without sitting L1 would noot be radiateed as to close to L2 with 1.5 inc cancer
78 and they say this should give me 5 years even if Xtandi stops working there are other remedies to control never cure Just like diabetic control it

Jump to this post

Thanks for your feedback! Hope you enjoy the holiday weekend.

REPLY
melcanada | @melcanada | May 27, 2023

2018 rad 40 days then Zolodex
2020 stage 4 put back on Zolodex after L2 radiated 1,5 inc cancer out
Jan 2023 L1 and T 10 T 11 so put on Xtandi or Enzalutamide and PSA dropped from 9.8 to 1,7 in a month added Xgeva for bones 1200mg Calcium daily
Prayer helps I feel great back issues don't allow for long walks without sitting L1 would noot be radiateed as to close to L2 with 1.5 inc cancer
78 and they say this should give me 5 years even if Xtandi stops working there are other remedies to control never cure Just like diabetic control it

REPLY
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