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Stage 4 PC Longevity: Anyone have prostate cancer more than 10 years?
There is a lot of great info on this forum. I am 54 and was just diagnosed in January with metastatic Stage 4 PC. (Hip, L4, Sacrum, and a small liver lesion). My PSA has gone from 359 in January to .24 last week and I feel great! I am curious to know how many guys on this forum have been treated for more than 10 years and what your quality of life is like. It is stories like this that will give me (and others) more hope. Peace to you all!!!
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Not quite ten years, 9 years and 4 months.
While many do die of PCa, some statistics say 27k or or so each year. thanx to clinical research, treatment options to manage PCa have exponentially increased since I was diagnosed in Jan 2014. So, for most, it may be one of managing a chronic disease, balancing quantity and quality of life.
Kevin
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4 ReactionsWhere are you being treated? I'm going to Phelps Hospital in Tarrytown NY. I got a second opinion at Memorial Sloan Kettering in White Plains NY and that doctor agreed with the treatment my doctor is giving me. He was also cool and said I could book appointments with him anytime if I had questions even though he's not the one who's actively treating me.
Will look into some of your drugs
I had 5 radiation treatments to my hip, L4 and sacrum. The doctor said that the bones are now healing as expected with no new cancer growth.
That's exactly what I'm doing. Best of luck to you!
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2 ReactionsI will be 62 this fall. and I was diagnosed at 52. I had a prosectomy followed with radiation. Then I had 6 rounds of chemo followed by Zytiga and prednisone for almost 4 years. After that stopped working they put me on Xtandi which didn't work too good, it sort of stabilized my PSA though it started rising after 3 months. Then came 13 rounds of Jevtana chemotherapy. Every 3 weeks from May of 22 until February of 23. PSA was stable but it slowly started to rise. I'm now on Pluvicto. I have just completed my 2nd round of 6 at 6 weeks apart. Too soon to tell if is working. During these years my PSA has been between .20 and never above 3.5 during all of these treatments. I'm on xgeva shots for my bone mets on my rib cage, middle spine and on the back of my neck. The 2 on my back were fractures which have healed nicely. Almost no pain. I get Lupron injections every six months. All I can say is that everyone is different. I have a good sense of humor and just go on like nothing has happened. Fatigue is the biggest hurdle and I can deal with that. They told me at the beginning that they were going to throw everything but the kitchen sink at me in the beginning and they weren't kidding. Hope this helps and good luck!
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7 ReactionsIm 78 How old are you now please
How long did Xtandi work and what was after it and again after that
My pc is in spine L1 L2 T 10 11
Where is yours/ Did it shrink? Did it stop?
Control only? Did it go to organs brain?
What should I expect
I joined the gym on May 1 and my goal is to work out 4-6 days a week. I will be retiring at the end of June and I will have plenty of time to make the gym part of my regular schedule. I have always been considered a very naturally strong guy, though I never went to the gym before. I am pushing myself with the heavier weights to try and maintain as much muscle mass as I can for as long as possible. I also do 30 minutes on the treadmill at this time. it is amazing how much PC changes your perspective on life and motivates you! my libido dropped off very quickly once I started on the hormone therapy. I used to be incredibly active. My wife is also very understanding about this and I try to schedule sex instead of wait for one of us to be in the mood. As you all know, I don’t think I would ever be in the mood due to the hormone therapy.
I really am trying to keep a very positive attitude about the whole situation. The first two months were mentally and emotionally rough and I do have occasions when I get extremely sad. I am trying to tell myself that I still have 30 years to live. I am retiring from my job next month at the age of 55 as I had planned to do all along. I am really going to take the opportunity to enjoy the more important things in life.
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5 ReactionsI've been Stage 4, prostate
cancer and metastatic bone cancer for 10 years this fall. I'm on pluvicto now. They've had me on everything. One thing I've avoided was anyone telling me how much time do you have left. I don't want to know and will never ask. All I know is I will die with it and not from it. Humor and life goes on. I eat what I want and go where I please. Attitude has a lot to do with it. The future is mine!
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