Small fiber neuropathy and CRPS/RSD

Hi @barbbie I wanted to share more information on both small fiber neuropathy and CRPS

NIH Small Fiber Neuropathy: https://ghr.nlm.nih.gov/condition/small-fiber-neuropathy

CRPS: https://www.mayoclinic.org/diseases-conditions/complex-regional-pain-syndrome/symptoms-causes/syc-20371151

Do you mind sharing your symptoms? Why do you think you may have both conditions?

I had 2 biopsies done to determine the SFN. Thank you for the references. It's been almost 20 years since the SFN dx and I quite frankly forgot what sent me to NYC for the biopsies. Now I know what these zingers are that I get and, while they don't last long, they do grab my attention. I cannot tell the temperature of my feet or hands at times unless I touch them to each other or to my leg or arm. I have had dry eyes for as long as I have had SFN. Around that same time I was dx with SVT and orthostatic hypotension. I know I have been told I have autonomic dysfunction which sounds a lot like the separate things I was dx with but no one connected them back then.

I had a surgery on my right foot that didn't go well for me. Nine months of pain and I saw another doctor who removed the metal in my foot declaring the metal was far too large for my foot. One day at PT they called the ambulance as the nasty burning pain in my foot was beyond a 10. It has progressed to my other foot and left knee. Both feet have lovely shades of white,blues, and reds. They are swollen. At times there are parts that are shiny red. The pain on the bottom of my feet never goes totally away. I also have pain on the top of my feet which annoys me that,though they are numb, I still feel pain! My first SCS was implanted in 2012 and my second updated version just last July. I see pain management on a regular basis. I recently had nerve conduction tests and EMG done. The results - severe sensorimotor distal neuropathy. I also received a dx of StiffPerson Syndrome as I had an episode on the table while being stuck with needles. I guess these things are all connected although not one doctor has taken charge over it all. I am changing neurologists and hope there might be some better explanations and coordination of management although I gather I have progressed beyond the point of physical help.

I use a power chair at home, a cane out side of home, still drive, shop only where martcarts are available, take care of my husband who has dementia, and try to do some gardening when it isn't raining in the great Northeast!