Small Fiber Neuropathy

Autocorrect, dah. Do any of you have SFN in one leg/ foot only?

Good afternoon @trishh. I do not have SFN in just on leg/foot. Both of them are affected but sometimes at different intensities. I do want to add my best wishes for your acceptance of Cymbalta (duloxetine). It is my salvation. I just increased the dosage to 120 mg this year. I started two years ago at 60 mg and have increased it by 30 mg each year. My anxiety is considerably subdued which means that I have less pain and discomfort to worry about. When I add my daily mindfulness meditation........I am as good as I can get. Oh .....and don't forget the medical cannabis. That takes care of a great deal of the daily pain. with just the morning dosage. I always add about 20 minutes of yoga stretches so I don't cramp up.

Please let me know how the Cymbalta works for you. Have you been able to introduce mindfulness?
Chris

May you be free, safe, and protected from inner and outer harm.

Mine is in both feet. I was also told "end of the rope" but still kept looking. I found a foot doctor in AZ that did not give up on me. He prescribed EB-N6 a month ago. I now have more feeling in my feet and cut my Pregabalin by 1/3. In a couple of weeks I will try reducing it some more. This has been a godsend for me. Perhaps it could benefit you.

I am on Cymbalta for SFN, and I have noticed it has helped tremendously with the chest pain that my autonomic dysfunction was causing. As someone else noted, it also puts me more at ease so I don't get worked up which does not help matters. For me, it doesn't help as much with the feelings of coldness/numbness in my hands and feet, but my neuro says that is common.

@artscaping good afternoon, thank you for your reply on SFN and

I live in Tempe, AZ. Could you share the name of the foot doctor?

Lucky you! I had to travel from NV. He is Kerry Zang, 10214 N Tatum Blvd.#B300, Phoenix, AZ 602-954-0777 ~ CIC Foot and Ankle. Best of luck!

Thanks for your prompt response. I will check him out.

What is EB-N6?

I want to throw some questions out there to anyone. I have Small Nerve Fiber with no known cause yet. It is non-length dependent. I will repeat what happened to me. I woke up two days after I retired from my job and I had pinpricks allover head to toe and in my eyes. After many tests I then had a skin biopsy and that was the diagnosis. I asked the neurologist how many of his patients started out like I did. He said none its rare. So I started getting this pressure in the lower back of my head or neck that comes and goes but I had it in the front of my neck once. That was the worst. I felt like I was being choked. With the pressure in my neck my blood pressure goes up. I saw a neurosurgeon and he looked at my MRI with and without contrast. He says that the severe stenosis that I have is on the sides of my neck and that is not causing the pressure. I also woke up with pain that went from my left hip all the way down my leg. I turned over to my right side and it didn't go away for awhile. I had one other weird thing happen. I noticed a sharp feeling near the beginning of my left under arm closer to my right breast. Well I went to get ready for bed and I put my pjs on and I dropped something on the floor. When I went down to pick it up I had very sharp pains going down the right side of my breast. I am thinking nerve pain. I just don't know. I will be checking with the Doctor on these two things and the pain down my leg. I don't know for sure that is sciatica. I am more concerned with the pressure in my neck and the pain on the right side of my breast. I would love to hear from anyone who has experienced any of those things. One thing I did ask about was to an ARNP in gastroenterology. I do have chronic silent reflux and chronic gastritis and I read that some people can experience pressure in the neck. She said that she does have patients with that but when I told her my blood pressure goes up with it she started talking about nerves in the neck. I know they are all over our bodies. The pressure is the thing that bothers me the most right now. I appreciate any comments.