Permanent SIBO due to removal of ileocecal valve

My local library has the book so I will give it a try. Thanks for sharing:)

I did not have removal of the ileocecal valve. But I have SIBO, being treated with Paleozyme digestive enzymes after several bites of food and Dr. Shade's No.9 bitters, 10 minutes before eating , L-Glutamine first thing in the morning, Enteragram twice daily with or without food, and probiotics. With the guidance of a nutritionist, I only eat fruit low in fructose which include all the berries, do not use sugar but do use organic Stevia for my coffee and with plain yogurt, drink raw Kefir because it's fermented and eat other fermented foods such as pickles from the refrigerated section of the market, gluten free breads, pasta and crackers and chips. Bacteria that are in the small intestine have come from the lower intestine to feed and they feed on sugars. Drastically reducing sugars in the diet gets these bacteria back into the lower digestive tract where they belong from my understanding.
Hope this is helpful to you. All the best.

Hi Gigi
Great information, helpful to how hear others are dealing with SIBO issues. What dose of l-glutamine do you take in the morning?

Hello,
I order from a company called ReadiSorb GO. One packet contains 500 mg. taken first thing in the morning. It’s what my doctor recommended. I’ve been taking about 2 1/2 years.

Thanks so much for the information. Unfortunately, it contains sugar which I can have only in very limited quantities. I will look for another brand that has is sugar free.

I had an emergency bowel resection last August. I had a twisted intestine and a portion of my small intestine and large intestine had to be removed. I just learned yesterday fro my appointment with a PA that I no longer have my cecal valve. Now I understand why I haven't had a normal formed stool since before my surgery. I deal with diarrhea everyday. Has anyone else had this situation and what foods work for you , along with any other helpful hints.

I’ve had the same due to adhesions
Besides SIBO another problem is that I am limited to the amount of iron. Ferritin. B12 Vitamin d and calcium I absorb. I need to take iron infusions annually, b12 shots weekly and 50,000 vit d weekly
That area of intestines is part that absorbs vitamins and minerals

Marcysew,
I have no illeocecal valve too and have chronic SIBO as a result. I started with Citracel on the advice of my Surgeon which was a bead idea as it disrupts the mucosal layer in the intestine. When I found that out I tried the following supplements:
QUESTRAN (Cholestyramine for Oral Suspension USP), had to order compounded cholestryamine from a pharmacy out of California as the name brand product had artificial sugars that cause gas. This is nasty stuff, smells like dried fish, coats teeth in an uncomfortable sandy film. I ended up packing gel caps and only needed 1/16 tsp to control my bile acid loose stool. Only used a short time as it ended up causing scary, painful constipation.

SACCHAROMYCES BOULARDII probiotic, commonly used for traveler’s diarrhea

CALCIUM CARBONATE 1000mg per day, this form of calcium is constipating for me.

SEEKING HEALTH PROBIOTA 12 - just added this and it’s working great. I am ate 8 yrs post surgery, the probiotics did not seem to do much for me while I was still healing from surgery.

Beyond this I ate only soup for a year to allow my gut to heal. Avoid bone broth as the carbs in the cartilage feed SIBO. I used beef gelatin and collagen to help healing, as well as Vitamin A.

Hope this helps:)

I use Cholestyramine for oral suspension USP,4g for my diarrhea. I have used it for over 40 years. It works. Sometimes I have constipation when my bowel movement starts again. But this just started within the last year.

In July 2022, I randomly had a partial bowel obstruction at age 22. I went to the ER and I was told that the reason for this partial bowel obstruction was due to adhesions from when I had surgery as a 4 year old for diverticulitis and intususpeption. I had a colonoscopy to test for Crohns since my dad has it. They said I had no signs of Crohn, but my GI also said my intestines were so narrow that he would barely put the camera through the bends in my intestines. Fast forward to September of 2022 when I got a laparoscopic procedure to get rid of my adhesions/scar tissue. Not even a week later I was back in the hospital for another bowel obstruction and was admitted for emergency surgery. I woke up and found out that 15 inches of my small intestine was removed, including the ileocecal valve and cecum. Doctors said that the removed intestine was sent to pathology and no signs of Crohns was detected. Doctors also told me I would have IBS like symptoms for 6 weeks but that it would go away.

10 months later and I have never felt worse. Each day that goes by, I feel worse. Prior to my surgery, I have never had any GI issue. Now, all my bowel movements are liquid water or straight diarrhea. I go about 3-5 times a day. I get horrible gas ALL day EVERY day. Gas x provides no relief. It seems that no matter what I eat, I am constantly extremely distended and in pain. In the evenings, I am so inflamed that I can barely push out a fart. I’ve lost some weight but my clothes are all too tight for me because my stomach is constantly distended. I’m exhausted all the time. I’ve had to give up weight lifting to preserve my energy. Often, I find mucus in my poop. My procedure was on the lower right part of my abdomen, but it still hurts 10 months later.

My GI told me my reason for this pain was due to stress. I went to an endocrinologist and they did a breath test and said I had hydrogen based SIBO. My blood levels tested positive for inflammatory bowel disease but she didn’t seem too concerned. Instead, she put me on low dose naltrexone to help with inflammation and had me go off gluten and dairy. I started lauracidin for SIBO (a more natural remedy). I still feel extremely inflamed at the end of the day, so I don’t know if my anti inflammatory is working or if it’s strong enough. Being GF the last two months had felt no different then when I was eating gluten. I switched to a new GI that is supposed to be better but I don’t see him for another month. This is the worst I have felt since my surgery. My dad wants me to get an endoscopy and do another colonoscopy because he thinks crohns could still be a possibility. I don’t know if this is crohns or just a horrible case of SIBO but nothing seems to be working. I feel so hopeless and my quality of life has decreased in so many ways since I had this bowel resection. Has anyone had something similar and has found remedies that have helped? Or does anyone have any advice or opinions? Thanks