Anyone experience SMA4-Spinal Muscular Atrophy affecting the arms?

Posted by hardie @hardie, Apr 12, 2022

Anyone experience SMA4 affecting the arms

Interested in more discussions like this? Go to the Spine Health Support Group.

Jennifer, Volunteer Mentor | @jenniferhunter | Apr 13, 2022

@hardie I wanted to welcome you to Connect. I am a spine surgery patient and I like to welcome members to the spine group. I found a post by another member @mjpm2406 who mentions adult onset of SMA4 in these discussions a few months ago. Hopefully you can connect with them if they are still receiving notifications from Connect. If you share your story here, you may attract other member responses.
https://connect.mayoclinic.org/comment/317874/
https://connect.mayoclinic.org/comment/324715/
@johnbishop had previously posted this link to the SMA foundation website. https://smafoundation.org/about-sma/2685-2/

Do you have any experience to share about your diagnosis and how you have adapted to it?