Anyone have experience with Epitol (carbamazepine) and side effects?

Posted by lindastar @lindastar, Dec 2, 2022

Does anyone have experience with epitol? Particularly side effects.
I do not have epilepsy. I have glossopharyngeal neuralgia which causes sharp nerve pain in the tongue. I have been given Epitol. ONe of the possible side effects is rash. I have started having a small rash. Does anyone here have experience with that? Thanks in advance

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@lindastar
I have taken a brand name Carbamzepine (Carbitrol) for many years for seizures without any side effects.
Albeit there are a number of types of rashes that can be caused by Epitol/Carbamazepine one can be especially serious. It's known as Stevens-Johnson syndrome and is rare and people of Asian descent are more prone to it. A physician should IMMEDIATELY diagnose any rash. Have you started this medication in the last few months?
Although your rash may be nothing more than a mild inconvenience it could also be a possibly life-threatening condition. Please call your doctor to be safe.
Best of luck,
Jake

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I was prescribed carbamazepine for TN last summer. As soon as I moved from an uneventful weaning in period to a full dose, I began to experience a nasty reaction. I had never had any sort of serious allergic reaction before, and I felt I was being poisoned. There was general malaise, but the flesh of my face and arms (it felt more than skin deep) grew extremely hot and purplish and weirdly lumpyI could not bear even the most indirect sunshine. Fever.
I had been thoroughly shaken by the TN and occipital nerve electric zaps and crippling pain that was random and went on for days, and I so wanted an effective medication, and so I tried to soldier on. But my pharmacist took one look at me and refused to renew the px until I’d seen my doctor again.
After discontinuing the carbamazepine, it took a good two weeks to recover from the reaction to it. Now I am afraid to sample another potent, possibly harmful med, and I feel such dread for the return of the nerve pain. My plan for when it returns is to submerse as much of the side of my head as is possible in an ice bath. I found that applying cold packs could numb my flesh and flatten out the extremities of the gonging pain bolts — maybe there was a placebo effect going on there, who knows.. I was seriously considering shaving my head to get better contact for the ice with my scalp.
Interesting, as the nerve pain changed and slowly subsided, different areas of my head were affected. Frankly, I feel the dull aspect of the pain lurking at least half of the time ever since then.. I try to manage my fear.

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