1. < Digestive Health

Short gut syndrome

Posted by tjanet @tjanet, Dec 18, 2024

I have 2ft of my small intestines left and I have all of my large intestines.
I have symptoms of dehydration and electrolyte imbalance. Some of my kidney blood results are abnormal because of it according to my kidney doctor. My GI doctor doesn't think it's from dehydration and electrolyte imbalance so he wants to continue to treat my Short gut syndrome symptoms as IBS, my symptoms are not related to IBS. What is a good way to tell my GI doctor that it's not helping me by treating me for IBS?

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tjanet | @tjanet | Mar 19 10:28am

I have only 2ft. of my small intestines but I have all of my large intestines. I am able to eat food low fiber diet, high calorie, high protein diet. Limited plain water.
My symptoms are not related to food.
I am having abdominal pain, some nausea, a lot of diarrhea. My GI doctor isn't treating me for Short gut syndrome. So I am looking for ways to treat my symptoms.

REPLY
4 replies
rashida | @rashida | Mar 21 8:15am
In reply to @tjanet "I have only 2ft. of my small intestines but I have all of my large intestines...." + (show)
@tjanet

I have only 2ft. of my small intestines but I have all of my large intestines. I am able to eat food low fiber diet, high calorie, high protein diet. Limited plain water.
My symptoms are not related to food.
I am having abdominal pain, some nausea, a lot of diarrhea. My GI doctor isn't treating me for Short gut syndrome. So I am looking for ways to treat my symptoms.

Jump to this post

@tjanet if your gastroenterologist has diagnosed your short gut syndrome why isn’t he treating it?

REPLY
1 reply
tjanet | @tjanet | Mar 22 11:00am
In reply to @rashida "@tjanet if your gastroenterologist has diagnosed your short gut syndrome why isn’t he treating it?" + (show)
@rashida

@tjanet if your gastroenterologist has diagnosed your short gut syndrome why isn’t he treating it?

Jump to this post

My GI doctor doesn't understand short gut syndrome very much. My GI doctor has been trying to treat me for IBS instead of short gut syndrome. My symptoms are not IBS symptoms they are short gut syndrome symptoms. The symptoms can look like symptoms of IBS but they are not IBS symptoms.

REPLY
Moderator
Lisa Lucier, Moderator | @lisalucier | Apr 29 2:45pm
In reply to @tjanet "I have only 2ft. of my small intestines but I have all of my large intestines...." + (show)
@tjanet

I have only 2ft. of my small intestines but I have all of my large intestines. I am able to eat food low fiber diet, high calorie, high protein diet. Limited plain water.
My symptoms are not related to food.
I am having abdominal pain, some nausea, a lot of diarrhea. My GI doctor isn't treating me for Short gut syndrome. So I am looking for ways to treat my symptoms.

Jump to this post

Hi, @tjanet - just wanted to clarify and make sure I understand what illness you are talking about when you say short gut syndrome. Is this the same as what you are mentioning?

- Short bowel syndrome
https://www.mayoclinic.org/diseases-conditions/short-bowel-syndrome/symptoms-causes/syc-20355091

REPLY
dboesten | @dboesten | May 1 11:53am
In reply to @tjanet "I have only 2ft. of my small intestines but I have all of my large intestines...." + (show)
@tjanet

I have only 2ft. of my small intestines but I have all of my large intestines. I am able to eat food low fiber diet, high calorie, high protein diet. Limited plain water.
My symptoms are not related to food.
I am having abdominal pain, some nausea, a lot of diarrhea. My GI doctor isn't treating me for Short gut syndrome. So I am looking for ways to treat my symptoms.

Jump to this post

Short gut & short bowel are the same thing: Surgically shortened intestines to remove damaged or diseased portions. Results can include poor nutritional absorption, shorter "transit time," meaning contents move through too fast & often as diarrhea, sometimes watery, and other results.

REPLY
sunshine29 | @sunshine29 | May 5 11:54am
In reply to @tjanet "I have only 2ft. of my small intestines but I have all of my large intestines...." + (show)
@tjanet

I have only 2ft. of my small intestines but I have all of my large intestines. I am able to eat food low fiber diet, high calorie, high protein diet. Limited plain water.
My symptoms are not related to food.
I am having abdominal pain, some nausea, a lot of diarrhea. My GI doctor isn't treating me for Short gut syndrome. So I am looking for ways to treat my symptoms.

Jump to this post

I had a total colectomy & have stoma. Have to empty about once an hour. Just started Creon a few months ago & it is helping to slow it down.

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