Short gut syndrome

Posted by tjanet @tjanet, Aug 12 1:04pm

I have short gut syndrome. I only have two feet of my small intestines but all of my large intestines and Colon.
I am having major diarrhea and most anti diarrhea medication makes my symptoms worse. My GI doctor isn't much help with my short gut syndrome problems.

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tJanet, This is miserable for you. I have a bit too long and severely damaged in my small intestines , I have been way too long, redundant splenic(splenic just means it is on mu left/descending side of large intestine. I'm get more baffled (my word for angry at drs) when they can't or won't help. The intestinal tract, from where the food goes in to where the food comes out, is the simplest definition of a GI Dr. That I know of. But I'm in no way surprised by your inept response. I am not much help with diarrhea, cuz the multitude of times I have it, I have caused it on purpose to deal with CIC(chronic idiopathic constipation).
Besides doing nothing and stay in pain, getting a new GI; you might try a colorectal specialist. I did not know what this is, someone said maybe I should look into at least a phone/video consultation with this type of doctor. It seems like, they would be like a GI-intestinal only specialist. I found the term under cancer. But, they treat non-cancer patients too. Hopefully you have insurance that covers a referral of this kind.
I suppose, you didn't have your small intestines mostly removed, for fun. So, how you treat the diarrhea and what is causing it might make a difference in how you treat your diarrhea. If you're not on any dietary restrictions, have you tried all the more constipating foods? For me, fiber is a double edged sword. Can you increase your fiber intake, via fiber supplement?
My new 1st, 2nd, 3 rd opinion options are: AI's. I don't even know how I found this. I'm sure you already know this, I didn't. I finally got the app, free, for POE. Inside it has many many options. Examples: Tarot Reading, mental health, physical health, how to peel a mango 😛, I love mangoes but they are buggers to peel.
I have several issues that I am getting zero help from the doctors, so I posed a very simple question, like is measles's or Rubella (German measles) worse? I knew the answer, but I used it to see how AI/POE work. I found that the more detailed explanation I give, even if it is long winded, the better results I get. You might give it a try. I would offer to trade you, some of your diarrhea for some of my CIC, if it was possible. Good luck!! Shelley

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@shelleyw

tJanet, This is miserable for you. I have a bit too long and severely damaged in my small intestines , I have been way too long, redundant splenic(splenic just means it is on mu left/descending side of large intestine. I'm get more baffled (my word for angry at drs) when they can't or won't help. The intestinal tract, from where the food goes in to where the food comes out, is the simplest definition of a GI Dr. That I know of. But I'm in no way surprised by your inept response. I am not much help with diarrhea, cuz the multitude of times I have it, I have caused it on purpose to deal with CIC(chronic idiopathic constipation).
Besides doing nothing and stay in pain, getting a new GI; you might try a colorectal specialist. I did not know what this is, someone said maybe I should look into at least a phone/video consultation with this type of doctor. It seems like, they would be like a GI-intestinal only specialist. I found the term under cancer. But, they treat non-cancer patients too. Hopefully you have insurance that covers a referral of this kind.
I suppose, you didn't have your small intestines mostly removed, for fun. So, how you treat the diarrhea and what is causing it might make a difference in how you treat your diarrhea. If you're not on any dietary restrictions, have you tried all the more constipating foods? For me, fiber is a double edged sword. Can you increase your fiber intake, via fiber supplement?
My new 1st, 2nd, 3 rd opinion options are: AI's. I don't even know how I found this. I'm sure you already know this, I didn't. I finally got the app, free, for POE. Inside it has many many options. Examples: Tarot Reading, mental health, physical health, how to peel a mango 😛, I love mangoes but they are buggers to peel.
I have several issues that I am getting zero help from the doctors, so I posed a very simple question, like is measles's or Rubella (German measles) worse? I knew the answer, but I used it to see how AI/POE work. I found that the more detailed explanation I give, even if it is long winded, the better results I get. You might give it a try. I would offer to trade you, some of your diarrhea for some of my CIC, if it was possible. Good luck!! Shelley

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I have tried fiber foods but they don't help. Because of my health conditions I am to be on a low fiber diet. My GI doctor wants to continue to try my short gut syndrome as IBS,but I don't have IBS. Treating my short gut syndrome as IBS makes things worse not better.

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@tjanet

I have tried fiber foods but they don't help. Because of my health conditions I am to be on a low fiber diet. My GI doctor wants to continue to try my short gut syndrome as IBS,but I don't have IBS. Treating my short gut syndrome as IBS makes things worse not better.

Jump to this post

tJanet, Well, gee whiz, your GI is certainly resting on his framed medical license, that is probably several years old, as he/she seems dismissive about the severity and QoL impact the diarrhea is causing you. I don't like/or have much respect for many many doctors these days. Possibly try a registered dietitian and the colorectal doctor. I'm sure your doctors hate " internet self doctoring" as much as mine.... but give it a try. Good luck, Shelley

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tJanet, me again, I just saw on the right side of my screen a blog for GI plus issues. I have not used any of the blogs, but, hey, they are the ones suffering and might have some good ideas for you.

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