Severe pain and burning when passing urine

Posted by cochuir @cochuir, 1 day ago

I had HDR brachytherapy, hormone and external beam radiation which finished in June 2024. Since then I have developed sever pain and burning when passing urine, I have had a CT urogram and different prescriptions but the result is still the same. Has anybody had these symptoms for that period of time and was there any medications or procedure that stopped them.

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northoftheborder | @northoftheborder | 1 day ago

My burning came to my attention about a year after the radiation to my prostate. I voided some blood, had problems with incontinence, and repeated UTIs.

Imaginging (cystoscopy) showed mild radiation cystitis — light burns to the lining in the bottom of my bladder. They're probably permanent. It took a few months to get things under control, but it's only a minor nuisance now.

If lifestyle changes like keeping hydrated and minimising food/drink that irritate you don't end up helping enough, there are other treatments, like filling your bladder with pure oxygen periodically to promote healing. Talk to your urology oncologist about diagnosis and options.

Best of luck.

cochuir | @cochuir | 1 day ago

In reply to @northoftheborder "My burning came to my attention about a year after the radiation to my prostate. I..." + (show)

Thanks for your help, did you take any medications.

northoftheborder | @northoftheborder | 5 hours ago

In reply to @cochuir "Thanks for your help, did you take any medications." + (show)

I took antibiotics initially for the UTIs, and was on Myrbetriq for a few months to help with the overactive bladder (I had to go up to 50mg before it worked).

But mainly I drank lots of water to keep my urinary tract flushed out, and came to accept that if I drink carbonated beverages, alcohol, or other irritants, the pain might increase temporarily.