Severe dry tongue and mouth, burning lips, cheeks, and nose

burnned2much,
COVID is pure 💥👿💥. Your experience sounds awful. I am in shock that it has never caught me. Maybe my disabling health problems that have kept me in a hermit mode for 15+ years, actually has a good effect. I have a friend that has been vaccinated and he still has had Covid documented 13x + gets sick from the vaccine. I feel so bad for you and your struggles with Covid.
I just had a parathyroidectomy 3 weeks ago. It's a major controller of calcium in our bodies. Long story but, low calcium can cause tingling especially in face, lips, hands and feet. I have had tingling, neuropathy, pins and needles for 17 years, following 2 recreational accidents; this is making it difficult for me to tell what is causing it now. But, the whole face part is new. You could easily start with calcium, vitamin D, magnesium, PTH blood tests. It's not usually diagnosed with one set of tests, it's a combination of trending high or low .This may not be a problem for you but, it can't hurt to look at it. An endocrinologist is the "specialist doctor " who treats this. I f you are female and over 50, it may be more applicable. It's more common in this demographic... but... it's rarely a first line problem any doctors will think of. The diagnosis usually takes 7+ years to get the doctors to have an AHHA moment.
With your burning dry lips, mouth, etc do your lips peel? The best lip treatment for me has been to brush off the dead skin and then apply a pound of Vaseline, over and over again and keep my mouth closed. Does your tongue burn? I have tried every product I've ever seen and my lips feel like they might peel right off. My lips were never big, but over this time they really are disappearing and very pale, except when they are are fire and then it looks like I have bright red lipstick on.
If you feel well enough, I would really like to know about your surgery, discs and full body spasms. I videoed my worst episode to show my neurologist (I only saw him for Botox and migraines) he LOL at the video, then put the diagnosis of mental conversion disorder in my chart.(I had to look it up). He said it was caused by my childhood trauma???? Except, I don't have any childhood trauma...well, unless you count being grounded from using the telephone for 2 weeks 😱, as a teenager I thought it was devastating 🤪
Spasms of any sort can also be related to calcium levels.
No rush on your part, but I would really appreciate your input. Thanx, ShelleyW

As you describe, burning face, tingling face. Dry mouth etc. I was diagnosed with a pituitary tumor last year and had it removed Dec/ 23. This was supposed to cure this problem. Alas not, all the symptoms you describe are now back if anything worse. I have no answer for you I am sorry. Many different doctors have looked at my situation, many medications but no cure. I would love to know the answers.

I’m so sorry to hear that, but thank you for sharing. It’s been almost 5 years with no diagnosis, and if I see a doctor, they just kick me down the road to another one. It has been a frustrating journey. No, I live in extreme pain every day with no advocate to help.
I wish you the best and all people that are in our situation, relief and some kind of resolution

Have them check for sjogrens

katgusman,
Yep! My dentist is the one that commented that the dryness in my mouth was causing my gums to receded. So, had the top gums added to, expensive, and in less than 4 years, it looked like I had done nothing. It ha wreaked havoc with my teeth. I average 2 root canals a year. Dryness or sicca was just the beginning. Primary Sjögren's Syndrome affects so very much more than just dryness.
Only most drs, even the RH's give me the brush off. If anyone has this, you should push hard to get the right treatment you need.
ShelleyW

Sorry if you've already done this but maybe keep sucking on icechips with a cold wet facecloth over your face and I assume your doctor is a neurologist who has prescribed you pain meds? If your neurologist does not get good ratings or you don't like him, try to see another one. I had a TBI and 8 hour brain surgery and then a heart attack from a thyroid problem. See a thyroid specialist too. No one knew I had a thyroid problem until I went in to cardiac arrest. I am 57.

I had many of those symptoms along with a twitching on the side of my face like a bell palsy, but it wasn’t it would come and go. I also got distorted vision in one eye.

The ENT and ophthalmologist diagnosed lack of blood flow to the brain.
Trying to get the neurologist to actually acknowledge that and do something about it as another story altogether. I did after their diagnosis managed to convince her to do an CT angiogram where they did see the aneurism and two twisted V2 & V3 arteries. They also saw some calcium buildup in my artery going to the brain. But the MRI did not necessarily show lack of blood flow. That’s the problem MRI’s don’t show anything until it’s too late. I also had serious memory problems and white matter on the brain.

She finally referred me to the right specialist a neurologist that specializes in the arteries of three neck.

I am from Canada so it could take years to get in to see him. By the time i do i will likely have permanent damage.

I did find taking a small aspirin a day helped

Hi.. maybe you should do some reading about Erythromelalgia - there is an online association for this.. Some of your symptoms seem to point to it, in my humble opinion.. I suffered from this issue for many years, until my feet turned to neuropathy.. I continue to use a rubbing oil that I get from Amazon on my feet when they get hot and red, usually when I go to bed at night. Called.... Neuropathy F & M.... the f&m is Frankincense & Myrhh... Many diabetics use it for their neuropathy and that is how I was turned on to it.. Not expensive either, although it comes in a small bottle and includes an eye dropper. I was taught to mix a few drops with hand lotion. My husband won't let me ever run out of it.. Some folks do have the problem on their face and ears...

That seems to be a side effect of having covid. I would wake up during the night and my tongue and mouth was so dried out. It was awful. Looking back, I don't know how long it lasted. It seems like several months. It is getting better. I use a toothpaste from my dentist that helps with dry mouth. I use ACT dry mouth lozenges at night. These seems to help, but we'll never know what kind of damage this virus has done to us.

I was just looking on Amazon for the oil you put on your feet before bed but could not find it. Is it possible to include the link?
Also - do you know if it could be used on ears and face? Thank you so much!