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16 yr old boy with eosinophilic esophagitis (EOE) and food allergies
We have a 16 yr old boy who has eosinophilic esophagitis (EOE) and food allergies as well. He has not been able to hold his food down for the past 5 to 6 months. We found out about the EOE and the food allergies at the same time. Recently he has also been experiencing sever stomach and body pains.For the past month he has been in and out of the hospital because of his vomiting and also has developed anxiety
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@familiaramirez, Hello and Welcome to Mayo Clinic connect, an online community where people can share medical experiences and support one another. I'm sorry to hear you are all going through this and I bet this has been really tough on your son and you, as parents and caregivers.
You may find some of the information in this thread helpful to read http://mayocl.in/2rK74Tv or this thread in teens and kids http://mayocl.in/2tBOiit.
I'm also going to tag some long time members- @jillcresap, @concernedmtnmom, @nlr8470, @littledreamer and @kendrakay, who have shared personal experience on connect.
Are you a patient at Mayo Clinic? Rochester, Minnesota Mayo Clinic has an outstanding Children's Center. The following link has the specifics http://mayocl.in/2soVDT4. They have a specialty Esophageal Clinic where provides care for the primary esophageal diseases.
@familaramirez, how long has it been since he has been diagnosed?
Thank You for the information. He has been diagnosed with EOE since early May of this year. No he is not a patient at the Mayo Clinic. We first heard of the clinic thru a friend of my mom and wife from work. We then starting hearing from the clinic from a lot of other people. Even one of my son's friend recommended the clinic to him. My wife tried to reach out to them once over the phone but she got transferred to someone else who never picked up the line. We haven't tried again because on top of everything my son has been going thru himself we recently found out that a good friend and team mate of his passed away. His friend was also a member the track team. He is taking that loss very hard as well. The endoscopy they did just recently showed that his inflammation has gone down but he is still not able to hold his food down and has sever stomach pain. We feel very Helpless and Lost as parents.
Hello @familiaramirez,
Here is some information from Mayo Clinic about eosinophilic esophagitis which you may wish to view:
http://mayocl.in/2tIhqW0
I'm sorry to hear that you didn't have any success with contacting Mayo Clinic, but I would urge you try again. Here's link with some relevant information and phone numbers: http://mayocl.in/1ImcVz7
@familiaramirez, have the doctors rules out other related disorders such as GERD, ulcerative colitis, Crohn's disease?