Undifferentiated Pleomorphic Sarcoma: Anyone else want to share?

Posted by me67 @me67, Mar 3, 2017

I have been diagnosed with pleomorphic sarcoma. Is there anyone on this site that has had this cancer or has it now? I would like to talk to you. Thank you

Interested in more discussions like this? Go to the Sarcoma Support Group.

wayners | @wayners | Dec 25, 2024

In reply to @rlucianojr "Hi dpla. My name is Rafael… my dad had UPS. Hope you are doing well." + (show)

So how is he doing now? How long ago did he have it?

rlucianojr | @rlucianojr | Dec 24, 2024

In reply to @dbla "I was diagnosed with UPS (Undifferentiated Pleomorphic Sarcoma) in May 2023. I had surgery to remove..." + (show)

Hi dpla.

My name is Rafael… my dad had UPS. Hope you are doing well.

stg123 | @stg123 | Dec 21, 2024

In reply to @mickay "Thankyou very much gemmalt for responding. I will again put this to my husband's Oncologist. Please..." + (show)

Hi Mickay and Gemmalt -
My Mom has a similar diagnosis and wondering if you have an update on what has worked in the past few months? Thanks in advance -

ayjay | @ayjay | Dec 21, 2024

In reply to @brenda4usc "Thank you for the positivity @ayjay ❤️‍🩹 I’ve only been completed 4 of my radiation treatments..." + (show)

I'm so sorry to hear about your painful treatments. I understand what you're going through and would appreciate it if you would keep me posted on your journey. It always helps to share.
God bless.

brenda4usc | @brenda4usc | Dec 21, 2024

In reply to @ayjay "I was diagnosed with it in Oct. 2023. I've had surgery to remove a 5cm thigh..." + (show)

Thank you for the positivity @ayjay ❤️‍🩹
I’ve only been completed 4 of my radiation treatments and I have 21 more to go👍
I am tolerating it well but I don’t like the nightmares from the Morphine so we are going to try switching to the Buprenorphine patch. I think I will need to request Home physical therapy to keep my leg from “freezing up” even though I am doing my exercises. I am pretty much bed ridden because of previous injuries to my sciatica and lower back, so transportation requires me to lay down flat. Happy to have found this group.

ayjay | @ayjay | Dec 20, 2024

I was diagnosed with it in Oct. 2023. I've had surgery to remove a 5cm thigh tumor. No chemo or radiation.
How are you doing now?
I hope you have been well with no recurrence.

ayjay | @ayjay | Dec 19, 2024

I was diagnosed with that October 2023. Have since had only surgery to remove 5cm thigh tumor. Many MRI's and CT scans since. No chemo. Now have small nodules in lungs.

debschmalbach | @debschmalbach | Nov 21, 2024

In reply to @wayners "Mine was only 1.9 cm and there is only maybe only 1 mm left. I am..." + (show)

Have you started your radiation? How is it going? Deb

debschmalbach | @debschmalbach | Nov 16, 2024

In reply to @colleenyoung "@debschmalbach, after 16 years, the return of the cancer must've come as a shock. What treatment..." + (show)

At this point they are planning on surgery to remove the tumor and portions of other organs then possibly radiation. It will depend on what they can get with surgery. There are other areas where there may be cancer and I’m scheduled for further testing so it is all kind of an outline of a plan. Thank you for asking. It is a shock somewhat unreal.