Undifferentiated Pleomorphic Sarcoma: Anyone else want to share?

Posted by me67 @me67, Mar 3, 2017

I have been diagnosed with pleomorphic sarcoma. Is there anyone on this site that has had this cancer or has it now? I would like to talk to you. Thank you

Interested in more discussions like this? Go to the Sarcoma Support Group.

chocho | @chocho | Feb 12 10:10pm

Recently received my biopsy showing Pleomorphic Myxoid spindle cell neoplasms. Reports suggest removal but that’s all I know at this point. Just doing my own research. I have a mass right above my clavicle bone that has been slowly growing over time. Mushy feeling had an ultra sound then CT Scan and then biopsy. My doctor hasn’t received the test results my chart sent me a email. I had my biopsy on 2/5/25 I go in on the 17th for an unrelated procedure but this will definitely be addressed at that time. So new to the dx really don’t know what is next.

Colleen Young, Connect Director | @colleenyoung | Feb 12 5:31pm

In reply to @dbooth "Undifferentiated Pleomorphic Sarcoma Anyone else dealing with this." + (show)

@dbooth, is this a new diagnosis for you? What treatment is being recommended? How are you doing?

janiemae | @janiemae | Feb 9 6:47pm

In reply to @wayners "I feel fine. I have been done for 2 weeks now. During the treatments I was..." + (show)

That’s good to know. My husband is scheduled to start his radiation on Feb 17, 5 days a week for 5 weeks.

wayners | @wayners | Feb 8 11:32am

In reply to @dbooth "Undifferentiated Pleomorphic Sarcoma Anyone else dealing with this." + (show)

Oh wow! I hope it turns out ok! I'm going for my 1st CT scan next month so I hope to be good to go.

lydiafransk | @lydiafransk | Feb 8 10:20am

In reply to @wayners "Yes, I had surgery and just went thru 35 radiation treatments! Hope to be all good!..." + (show)

I just had my 6 month CT scan of the chest and MRI of upper right leg where the sarcoma was removed. CT showed a spot on the left lung and a spot on the thyroid. Am scheduled for a a PET scan next week. Am continuing with PT through March because femoral nerve was in sarcoma and have no quads. Get a hinged brace the middle of March and am excited about that!!

wayners | @wayners | Feb 6 8:34am

In reply to @dbooth "Undifferentiated Pleomorphic Sarcoma Anyone else dealing with this." + (show)

Where does he have it. Did he have a treatment plan yet.

wayners | @wayners | Feb 6 8:33am

In reply to @dbooth "Undifferentiated Pleomorphic Sarcoma Anyone else dealing with this." + (show)

I feel fine. I have been done for 2 weeks now. During the treatments I was fine and a few days of burning since but very tolerable. I feel my skin healing everyday. I use Cerave everynight and all good. A little fatigued but I have remained active throughout.