Undifferentiated Pleomorphic Sarcoma

At this point they are planning on surgery to remove the tumor and portions of other organs then possibly radiation. It will depend on what they can get with surgery. There are other areas where there may be cancer and I’m scheduled for further testing so it is all kind of an outline of a plan. Thank you for asking. It is a shock somewhat unreal.

@debschmalbach, after 16 years, the return of the cancer must've come as a shock. What treatment options are available to you?

Thank u!

I hope all goes well with your radiation.

Mine was only 1.9 cm and there is only maybe only 1 mm left. I am starting radiation after Thanksgiving. It's amazing that yours was so large. I guess I'm lucky. Thank you and good luck to you and I will pray for you

Yes,
I was very lucky. Retroperitoneal I believe simply means back of the stomach. I don't have much advice. I had the surgery want went on living my life. I did not realize it could reoccurr perhaps ignorance is bliss. It was a pleomorphic liposarcoma tumor, I am guessing that is the same thing. I have heard them called sarcomas but I think the liposarcomas are more fatty. I am revisiting the entire experience again now and I may have handled it better back then. It took me awhile to recover. Where is your tumor and what size? Mine was 9 pounds by the time they removed it so the surgery was fairly extensive. They did not however have to take out any other organs. How aggressive was your surgery? Give your self time to heal and rest is my best advice. Wish you the best of luck.

Hi and I would be happy to get 16 years cancer free!! I am not familiar with the word retroperitineal tumor. Is that the same as what I am dealing with (undifferentiated plemophoric sarcoma?

Any advice is very much welcome. Surgery went well and hope to start radiation after Thanksgiving.

Thanks for reaching out and I pray for you to get better!

I had a pleomorphic retroperitineal tumor 16 years ago. They treated me first with chemo to try and shrink the tumor before they removed it. I have been cancer free for 16 years. It just returned. I would be glad to share any information I might have that would be helpful for you

I was told that there is Maybe, 1 millimeter near my muscle and that I will need 7 weeks of radiation. the radiologist is a

great guy as well as his nurses! Surgeon said looks good and he will see me in 3 months and do a CT scan before I see him. Both were pretty positive and the surgeon said that need to make sure it doesn’t go to my lungs but radiologist feels that it’s a low chance that it will return. Not sure what the chances of that are but both told me just to move on and live my life like nothing happened! 🤞

@wayners, how did your appointment with the radiologist and your doctor go? What is the next step for you?