Undifferentiated Pleomorphic Sarcoma: Anyone else want to share?

@bigbear406
I so needed to hear your story! Thank you! I was diagnosed in January, had radiation, surgery and I’m on immunotherapy. Just started PT. Did you follow a certain diet or supplements that you swear by?

@bigbear406
I so needed to hear your story! Thank you! I was diagnosed in January, had radiation, surgery and I’m on immunotherapy. Just started PT. Did you follow a certain diet or supplements that you swear by?

I am so incredibly lucky with my UPS experience. I don't know if my story will help anyone, but I hope so.

In 2009 I noticed a lump that was growing on my waist that was being irritated by my belt. I happened to have an appointment with my PA so I mentioned it. He, like me, thought it was most likely something benign, but he sent me to get a sonagram. I remember him saying "I am sure it is nothing to worry about like cancer."

The sonagram came back with an MRI recommendation, which came back with a concern of possible sarcoma. When I next met with my PA he and I both recalled his comment, and I think he felt a little chagrined. Next stop was to a surgeon.

The surgeon clearly wanted no part of my sarcoma. He said a surgeon like him might see 1 case in a career, and he didn't want it at all. Fortunately, I had friends with experience at Mayo and they encouraged me to go. For the next 6 months I lived at Rochester getting the best possible treatment in the world I believe.

I got the whole shebang, radiation, chemo, and surgery. Followed by regular CTs for the next several years until both me and the Docs felt the CTs were doing more harm than good as nothing was seen. I have been cancer free for 16 years now, and grateful for all of them.

Be kind, and love each other, that is all we can do while on Earth.

@marrish04

My name is Mary.

@bigbear406

I would welcome a follow along on this crazy journey. Kind of like walking with a good friend who gets it.

@marrish04 I wish you all the best in your own journey. One thing I learned is each case and every cancer is different. The big "C" is not a single thing in disease or experience. I will follow your experience with as much as you wish to share.

Best.

@bigbear406

I am so happy to hear about the 16 years cancer free!

We are just one month into this magical mystery tour and have more questions than answers.

Your story was informative and inspirational. Thank you...

It's the connection between you, and other fellow travelers, that has softened the blow and made the path easier to navigate.

Keep on keeping on my friend.

I am so incredibly lucky with my UPS experience. I don't know if my story will help anyone, but I hope so.

In 2009 I noticed a lump that was growing on my waist that was being irritated by my belt. I happened to have an appointment with my PA so I mentioned it. He, like me, thought it was most likely something benign, but he sent me to get a sonagram. I remember him saying "I am sure it is nothing to worry about like cancer."

The sonagram came back with an MRI recommendation, which came back with a concern of possible sarcoma. When I next met with my PA he and I both recalled his comment, and I think he felt a little chagrined. Next stop was to a surgeon.

The surgeon clearly wanted no part of my sarcoma. He said a surgeon like him might see 1 case in a career, and he didn't want it at all. Fortunately, I had friends with experience at Mayo and they encouraged me to go. For the next 6 months I lived at Rochester getting the best possible treatment in the world I believe.

I got the whole shebang, radiation, chemo, and surgery. Followed by regular CTs for the next several years until both me and the Docs felt the CTs were doing more harm than good as nothing was seen. I have been cancer free for 16 years now, and grateful for all of them.

Be kind, and love each other, that is all we can do while on Earth.