Salvage radiation therapy after radical prostatectomy
Hello:
I had radical prostatectomy in 2020 but now PSA is high at 0.26 so radiation specialist recommended salvage radiation to prostate bed.
Can you share your experience with Salvage Radiation? Side effects to
1. Bladder
2. Bowel
3. Sexual function.
Thank you
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Looks like you did well with combination of Surgery and EBRT, 22 sessions. Do you know what was the dose? How many Gy? Thanks
Here in Canada I think you need a PSA of over 0.4 to get a good reading on the PSMA PET scan . Our PSA tests in Canada is the ultra sensitive one. Last one for me was 0.056 , prior to that I had 0.072 . I cant see what I did different . I have had surgery and 22 sessions of EBRT ( no hormones or chemicals) about 2 years after surgery. Had surgery 3 years ago. I feel well , and go hiking 4-6 times a week here on Vancouver Island . God Bless to all !
Thank you, it’s been rough but seems to be improving
Looks like you have been going through major side effects. My best wishes...
Sansman. Diddo. I was looking at a bag for life. Found surgeon who specializes in radiation caused problems. Got an AUS installed after urethroplasty and suprapubic catheter for a year. No bag for me. Good luck with your journey.
Adding to this is a MRI in 2020 that lit up a few spots on my hip area around the prostate bed.
Tried taking chemo pills but my breast became so sensitive that I couldn’t wear a shirt.
Ended up getting an orchiectomy which took away my testosterone, thus eliminated the threat of the cancer spreading, but it opened up a whole new can of worms.
I am a 65 year old male who had a radical robotic prostatectomy in the fall of 2017, did the radiation in early 2018.
Everything was good for about 18 months, then I started to pass blood, then started passing “pieces” of bladder.
Had to go to the ER and Dr’s office numerous times. They showed me how to “self-cath” so I did this for the next 3 years, it got to where I was cathing more than 30 times a week.
Having to self-cath at work became a problem with all the UTI’s. (Warehouse environment)
I took early retirement in late 2021 because of the stress increase due to a change of management.
I had a Supra Pubic Catheter installed in June of 2022, this did get my bladder to quit “peeling” but the spasms were horrendous. Took it out in March of this year after the doc said my bladder was “the best he has seen it look.”
No stones or cotton candy, (his words not mine) .
I have had to self-cath a few times since.
The scar tissue and neck constriction is my problem.
The bottom line is my doc says the only thing he can do to give me at least some improvement in my quality of life is to do a cystectomy with an ileal conduit.
Doc says the radiation did too much damage to do anything else.
I’m looking for ideas. Not real fond of wearing the bag full time.
Best wishes...Looks like you are getting good treatment and will get it under control.
The failure of SRT combined with the PSADT and PSAV led me to do triplet therapy staring in Jan 17.
Thanks Kevin for detailed response and information. Sorry that there was failure with Pelvic Bed SRT. Did you get ADT after that? Hope you are doing better now. Again appreciate your detailed response...