Anyone have cancer with unknown primary?

Posted by rita8898 @rita8898, May 20, 2019

Anyone suffering from cancer with unknown primary?

Interested in more discussions like this? Go to the Cancer Support Group.

Profile picture for tobydrake7 @tobydrake7

Seems relevant to my situation. Do you know if the Mayo Clinic offers this treatment? I am being treated by a local oncology team here, in New Orleans. I am also being tested/treated at MD Anderson. I don’t see this treatment on offer by these institutions. ChatGPT lists a few places; Germany, Japan, etc.
see https://chat.openai.com/share/299f1bc3-12cf-427f-a27e-b00dc714ef86

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Are you on clinical trial at MD Anderson?

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Profile picture for Colleen Young, Connect Director @colleenyoung

@tobydrake7, the team of Dr. Amit Merchea performed the first PIPAC in the USA on Dec 4th, 2019 at Mayo Clinic Jacksonville, FL.

Pressurized intraperitoneal aerosol chemotherapy (PIPAC) is a promising and innovative method for treating peritoneal metastasis.

Here's a clinical trial that Dr. Merchea is conducting.
- A Safety to Evaluate the Safety and Effectiveness of Pressurized Intraperitoneal Aerosolized Chemotherapy in Ovarian, Uterine, Colorectal, and Gastric Cancer Patients https://www.mayo.edu/research/clinical-trials/cls-20517716

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I filled out the online form to be considered for the clinical trial. Thanks again for this information.

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Profile picture for Colleen Young, Connect Director @colleenyoung

@tobydrake7, the team of Dr. Amit Merchea performed the first PIPAC in the USA on Dec 4th, 2019 at Mayo Clinic Jacksonville, FL.

Pressurized intraperitoneal aerosol chemotherapy (PIPAC) is a promising and innovative method for treating peritoneal metastasis.

Here's a clinical trial that Dr. Merchea is conducting.
- A Safety to Evaluate the Safety and Effectiveness of Pressurized Intraperitoneal Aerosolized Chemotherapy in Ovarian, Uterine, Colorectal, and Gastric Cancer Patients https://www.mayo.edu/research/clinical-trials/cls-20517716

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Thank you!

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Profile picture for tobydrake7 @tobydrake7

Seems relevant to my situation. Do you know if the Mayo Clinic offers this treatment? I am being treated by a local oncology team here, in New Orleans. I am also being tested/treated at MD Anderson. I don’t see this treatment on offer by these institutions. ChatGPT lists a few places; Germany, Japan, etc.
see https://chat.openai.com/share/299f1bc3-12cf-427f-a27e-b00dc714ef86

Jump to this post

@tobydrake7, the team of Dr. Amit Merchea performed the first PIPAC in the USA on Dec 4th, 2019 at Mayo Clinic Jacksonville, FL.

Pressurized intraperitoneal aerosol chemotherapy (PIPAC) is a promising and innovative method for treating peritoneal metastasis.

Here's a clinical trial that Dr. Merchea is conducting.
- A Safety to Evaluate the Safety and Effectiveness of Pressurized Intraperitoneal Aerosolized Chemotherapy in Ovarian, Uterine, Colorectal, and Gastric Cancer Patients https://www.mayo.edu/research/clinical-trials/cls-20517716

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Profile picture for sambebb @sambebb

I’m in the UK. I know they do the latest PIPAC in Germany and Spain. I think here too. There may be trials in US and I have no idea what the Mayo do. Sorry I can’t be of any more help.

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No worries. They are doing trials at City of Hope in CA.

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Profile picture for tobydrake7 @tobydrake7

Seems relevant to my situation. Do you know if the Mayo Clinic offers this treatment? I am being treated by a local oncology team here, in New Orleans. I am also being tested/treated at MD Anderson. I don’t see this treatment on offer by these institutions. ChatGPT lists a few places; Germany, Japan, etc.
see https://chat.openai.com/share/299f1bc3-12cf-427f-a27e-b00dc714ef86

Jump to this post

I’m in the UK. I know they do the latest PIPAC in Germany and Spain. I think here too. There may be trials in US and I have no idea what the Mayo do. Sorry I can’t be of any more help.

REPLY
Profile picture for sambebb @sambebb

There’s also PIPAC but not sure if that would be relevant- it’s the latest treatment after HIPAC. May be worth asking about? Be thinking of you Toby.

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Seems relevant to my situation. Do you know if the Mayo Clinic offers this treatment? I am being treated by a local oncology team here, in New Orleans. I am also being tested/treated at MD Anderson. I don’t see this treatment on offer by these institutions. ChatGPT lists a few places; Germany, Japan, etc.
see https://chat.openai.com/share/299f1bc3-12cf-427f-a27e-b00dc714ef86

REPLY
Profile picture for sambebb @sambebb

There’s also PIPAC but not sure if that would be relevant- it’s the latest treatment after HIPAC. May be worth asking about? Be thinking of you Toby.

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Thanks for the info. Much appreciated.

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There’s also PIPAC but not sure if that would be relevant- it’s the latest treatment after HIPAC. May be worth asking about? Be thinking of you Toby.

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I was diagnosed with CUP in October 2023. The cancer is in my abdomen and has impacted my bowels, which has caused a bowel obstruction. I currently get nutrition by IV and have a gastro tube that empties my stomach of bile and other liquids that build up because there isn’t a way through.

I’m about to get my eighth chemotherapy treatment. The goal is that when I get tested/scanned in July, there will be a significant reduction in cancer. I may consider HIPEC surgery if that’s an option then, but the best outcome is that chemotherapy cleans it out. So far, my abdomen is the only place where cancer is located.

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