I know one guy with a Gleason nine that went into remission for 30 years, Then his PSA started to rise. What would they call that?
Prostate cancer can go dormant, The amount of time it goes dormant is not something you can measure. That’s why people have it come back after such a long time.
They’re right now, working on a drug to kill those Dormant cells and Even more. The study is called protac arv-766. You can check it out on the web and see what’s coming next once our ARSI’s fail us. This is just one of multiple things going on.
I agree. That is just strange answer. EVERY cancer can go into remission and than one day appear again after couple years or after decades or never ! After one goes through therapy and has no evidence of disease for 7 years, it is usually not only labeled as "remission, but as "cured" in most cases (talking about other cancers). So I do not see any reason why PC would be different. Even some types of chronic blood cancers have periods of remission !
That is ridiculous, unless there was more to your question. My husband has been Stage 4 and castrate resistant for years, and has had several remissions, including one for over three years when he was on Zytiga.
The terms “remission” and “cure” are not yet well-defined for prostate cancer. “Cured” often “means dying of something else,” just not prostate cancer. (Which is not a very comforting definition!)
There are many terms related to prostate cancer survival that you’ll read about: Progression-Free Survival, Overall Survival, Metastasis-Free Survival, Clinical Progression-Free Survival, and Radiographic Progression-Free Survival.
The term “no evidence of disease” is more often used since it’s more representative of the very regular PSA tests that anyone who has undergone treatment (or is on active surveillance) will be doing for the rest of their lives (in order to catch it as early as possible if it does recur).
Even with today’s tests and scans, prostate cancers can be so small that they can’t be seen or have any noticeable effects, and may or may not appear later. (Thus the phrase that’s often quoted - “Many men die with prostate cancer, not of prostate cancer.”)
@olman
I really don't understand your doctors response. Cure, remission, being treated.
What state was he in? What other areas were affected if any. Did he have RP or radiation. If he had RP and prostate cancer was confined to prostate and had not spread the cancer was removed. If he got radiation and cancer was only in prostate and was a lower Gleason Score or Decipher pretty much gone. Does not mean prostate cancer can not stir up again. It is the most common type of cancer for a man after skin cancer.
I know many friends who had RP 30 years ago and are cancer free per their PSA and PSMA test. At least per those test. Most radiation treatments are not the ones who destroy the cancer in prostate. They are the ones that damage the cancer cell and prevent it from reproducing and healing so eventually they die. Normal prostate cells can heal and reproduce and that is basic of the low dose and high dose radiation treamtents. Some radiation treatments are designed to direcly kill the prostate cell or tumor. I don't have experience with those just the low dose proton radiation treatments I had.
I think maybe and only a maybe it could be referring to not getting prostate cancer again. There is not that can prevent prostate cancer from starting again from healthy cells or different areas that where original prostate cancer was found.
When I had radiation treatment they treated me entire prostate and margins. Why? What was explained to me that biopsies do not represnt all the areas that could have cancer cells only where the biopsies found it. So they radiated the entire prostate and margins to catch those areas with prostatd cancer cells that might have been missed by biopsies.
I’m not sure if these replies are to my question about remission yesterday. I like reading about other people’s experiences it does however seem to me that there are so many conflicting answers that I’m not sure which one(s) to believe in!?
I lived with a family who had one of the strangest sequence of event with NHL non-Hodgkin’s lymphoma.
A stroke led to a 9 month coma She just awoke one day a mostly different person. Before the coma she was told she had 6 months to a year to live. After the coma she didn’t know that she had cancer. It was decided to stop all cancer treatments. Her cancer seemed to disappear! She lived for 8 years dying from an accident. It puzzled all of her doctors including the docs at Sloan Kettering.
I always thought the not worrying about dying and her cancer played a part in the remission or disappearance of the cancer. Moreover I know that STRESS makes cancer worse and worry is a form of stress. Diet also plays a part. And this strange thing happened to me while waiting to go into the MRI: a pretty nurse walked by and leaned over to whisper to me and she said: “ a little unsolicited information then said:
“ cancer loves beer and ice cream too” Truth was that I was eating a half of a half gallon of ice cream a night and drinking beer everyday! I cold turkied from both of them and my then PSA if 15 went to a 5 in a month.
I was doing great until I ment back to consuming red meat, alcohol, and ice cream. I gained about 40 lbs and was having lots of sex when my next PSA was taken it rose to 40.
The amount of waste in my digestive system absolutely affects my urination I can tell when I need to EVACUATE! It always helps.
I’m considering going to a health retreat for three weeks. Will keep you posted
"[if] someone caught it early might be cured. similar to breast cancer
Yes, "cured" in the loose sense, which really means "long-term remission with low probability of recurrence" (it's much easier for an oncologist just to say "cured" to a patient 🙂).
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I know one guy with a Gleason nine that went into remission for 30 years, Then his PSA started to rise. What would they call that?
Prostate cancer can go dormant, The amount of time it goes dormant is not something you can measure. That’s why people have it come back after such a long time.
They’re right now, working on a drug to kill those Dormant cells and Even more. The study is called protac arv-766. You can check it out on the web and see what’s coming next once our ARSI’s fail us. This is just one of multiple things going on.
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7 ReactionsWas there more context? Were you asking about a specific stage of prostate cancer?
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1 ReactionI agree. That is just strange answer. EVERY cancer can go into remission and than one day appear again after couple years or after decades or never ! After one goes through therapy and has no evidence of disease for 7 years, it is usually not only labeled as "remission, but as "cured" in most cases (talking about other cancers). So I do not see any reason why PC would be different. Even some types of chronic blood cancers have periods of remission !
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4 ReactionsTrue. Even my stage-4 prostate cancer has been in (medicated) remission for a few years.
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2 ReactionsThat is ridiculous, unless there was more to your question. My husband has been Stage 4 and castrate resistant for years, and has had several remissions, including one for over three years when he was on Zytiga.
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2 ReactionsI would also think that someone that caught it early might be cured. similar to breast cancer.
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2 ReactionsThe terms “remission” and “cure” are not yet well-defined for prostate cancer. “Cured” often “means dying of something else,” just not prostate cancer. (Which is not a very comforting definition!)
There are many terms related to prostate cancer survival that you’ll read about: Progression-Free Survival, Overall Survival, Metastasis-Free Survival, Clinical Progression-Free Survival, and Radiographic Progression-Free Survival.
The term “no evidence of disease” is more often used since it’s more representative of the very regular PSA tests that anyone who has undergone treatment (or is on active surveillance) will be doing for the rest of their lives (in order to catch it as early as possible if it does recur).
Even with today’s tests and scans, prostate cancers can be so small that they can’t be seen or have any noticeable effects, and may or may not appear later. (Thus the phrase that’s often quoted - “Many men die with prostate cancer, not of prostate cancer.”)
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Helpful -
Hug
4 Reactions@olman
I really don't understand your doctors response. Cure, remission, being treated.
What state was he in? What other areas were affected if any. Did he have RP or radiation. If he had RP and prostate cancer was confined to prostate and had not spread the cancer was removed. If he got radiation and cancer was only in prostate and was a lower Gleason Score or Decipher pretty much gone. Does not mean prostate cancer can not stir up again. It is the most common type of cancer for a man after skin cancer.
I know many friends who had RP 30 years ago and are cancer free per their PSA and PSMA test. At least per those test. Most radiation treatments are not the ones who destroy the cancer in prostate. They are the ones that damage the cancer cell and prevent it from reproducing and healing so eventually they die. Normal prostate cells can heal and reproduce and that is basic of the low dose and high dose radiation treamtents. Some radiation treatments are designed to direcly kill the prostate cell or tumor. I don't have experience with those just the low dose proton radiation treatments I had.
I think maybe and only a maybe it could be referring to not getting prostate cancer again. There is not that can prevent prostate cancer from starting again from healthy cells or different areas that where original prostate cancer was found.
When I had radiation treatment they treated me entire prostate and margins. Why? What was explained to me that biopsies do not represnt all the areas that could have cancer cells only where the biopsies found it. So they radiated the entire prostate and margins to catch those areas with prostatd cancer cells that might have been missed by biopsies.
-
Like -
Helpful -
Hug
2 ReactionsI’m not sure if these replies are to my question about remission yesterday. I like reading about other people’s experiences it does however seem to me that there are so many conflicting answers that I’m not sure which one(s) to believe in!?
I lived with a family who had one of the strangest sequence of event with NHL non-Hodgkin’s lymphoma.
A stroke led to a 9 month coma She just awoke one day a mostly different person. Before the coma she was told she had 6 months to a year to live. After the coma she didn’t know that she had cancer. It was decided to stop all cancer treatments. Her cancer seemed to disappear! She lived for 8 years dying from an accident. It puzzled all of her doctors including the docs at Sloan Kettering.
I always thought the not worrying about dying and her cancer played a part in the remission or disappearance of the cancer. Moreover I know that STRESS makes cancer worse and worry is a form of stress. Diet also plays a part. And this strange thing happened to me while waiting to go into the MRI: a pretty nurse walked by and leaned over to whisper to me and she said: “ a little unsolicited information then said:
“ cancer loves beer and ice cream too” Truth was that I was eating a half of a half gallon of ice cream a night and drinking beer everyday! I cold turkied from both of them and my then PSA if 15 went to a 5 in a month.
I was doing great until I ment back to consuming red meat, alcohol, and ice cream. I gained about 40 lbs and was having lots of sex when my next PSA was taken it rose to 40.
The amount of waste in my digestive system absolutely affects my urination I can tell when I need to EVACUATE! It always helps.
I’m considering going to a health retreat for three weeks. Will keep you posted
-
Like -
Helpful -
Hug
2 Reactions"[if] someone caught it early might be cured. similar to breast cancer
Yes, "cured" in the loose sense, which really means "long-term remission with low probability of recurrence" (it's much easier for an oncologist just to say "cured" to a patient 🙂).
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3 Reactions