Relapse endometrial cancer
So, I was diagnosed w/stage 1A grade 1 endometrial cancer in May of 2018. After a laparoscopic hysterectomy, all was fine until relapse diagnosed 3 weeks ago. The tumor didn't even show on MRI, and the PET showed nothing. I am about to start radiation. Is there anyone out there in similar situation now or w/past experience? If so, I'd love to hear from you.Thank you.
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Hi Sweetie - 13 yrs ago I had squamous cell carcinoma of the anal canal and had radiation for 1 hour every day over all the lower half of my body for 3 months and a chemo port for 244/7 chemo, also for the same time. Now the squamous cell carcinoma showed up in my uterus, then they said it went to the endrometrium lining, now it's cervical cancer. Going to have a radical hysterectomy and just get rid of all of it! It is an emotional roller coaster but you are in good hands and it sounds like it's in the beginning stages and they will just sap it out of there. Blessings to you sweetie, Gina
Thanks for reaching out @goldengirl2 ! What was the initial treatment 2 years ago? Surgery? Radiation? Sorry you are going through this, especially in this time of covid. I know when I was waiting for the PET test and results, I had a few days of feeling totally overcome with fear. Then 2 days before I was to get the results a calm came over me and I thought I can't let go of today waiting for what may or may not be bad news tomorrow. Luckily, it was good news. I wish the same for you. When will you know about your right side?
I was also 2 years out and ready to put it all behind me when voila it showed up in my left cerebellum!! tumor removed then 5 weeks later reoperated on to remove infection! MRI detected it after i was dizzy and nauseous and losing balance. i fear i have one back on the right side now🥱terrified and what an emotional roller coaster after doing SO well
Hi Colleen. Yes, I was flabbergasted. I was just over 2 years out and believed I would never have to deal with the prospect of a gynecological cancer again.I started spotting and called my surgeon immediately who did a biopsy. Biopsy positive for stage 1A grade 1: MRI showed nothing, but radiation oncologist wanted to be sure there was nothing else so ordered the PET which came back clean. Radiation starts tomorrow. 25 external beam and then a week break then 5 brachytherapy. Daily visits to the hospital during Covid concern me, of course, but I am taking every precaution plus. Been a bit of an emotional roller coaster but I am feeling relieved since PET results. I think hearing from others who have experienced this would be a very positive thing. Thanks so much for your quick reply.
Hi @samaco, welcome! I can imagine receiving the news of a relapse was difficult to hear. I'm tagging fellow members @m1b1r9 @odette @stparker54 @earscan @goldengirl2 and @stayinghopeful, who know what that is like first-hand.
You said the new tumor wasn't even detectable on the MRI or the PET scan. How did they discover the recurrence? When do you start radiation and for how long? Was cancer detected in the lymph nodes or only locally?