Relapse endometrial cancer

Hello,

I'm newly diagnosed.. Endometrioid Grade 1 (Just via biopsy thus far). Vaginal ultrasound early November mentioned no Myometirum mass seen. Of course all this may change after surgery and pathology comes back with stage.

Meeting with Oncology Surgeon Monday for my first meeting to go over things and to schedule Hysterectomy.. hopefully in a couple weeks.

I'm keeping positive thoughts that after surgery (when I get the actual stageing will be Stage 1a Grade 1.

I'm trying to be pro-active as much as I can. I have noticed that even the lowest type, grade and stage seems to have quite a bit of recurrences. I'm not sure how well I believe the stats online for survival and recurrence rate.. as they seem pretty low for recurrence but I see so many posts in various forums and support groups where it may not be so infrequent.

Anyrate.. It it pretty common to for vaginal Cuff recurrence to be the most frequent recurrence with low grade low stage?

A lot of the times when low grade/type and stage from what I have noticed they do the surgery and say "we got it all" and then send you on your way without any additional treatments. And then your monitored every 3 months for a few years or more seems.

Question I have do you think Vaginal cuff brachytherapy right after surgery would help lesson the chance of recurrence in the vaginal cuff or NO? I read mixed reports after testing being done for stats if it helps or not online from all different research places. Some say yes and some say it doesn't seem to matter one way or another. What's your thoughts as actual patients that have or are still going through this.

Also if recurrence does happen in Vaginal cuff and nowhere else ... can that be easily treated or does it keep coming back and back over and over or does it eventually stop recurring? Trust me I would rather have a recurrence happen there if it was going to happen instead of a distance organ somewhere else in my body. I know recurrence can happen anywhere but stats do say Vaginal cuff is the most common.

Thank you.

Amazing.I was interested in what Helen said that made more sense to me. It’s insane that in order to find out what’s wrong with us we have to go on Mayo connect. Surely I can’t be the only drs patient that has this after all isn’t that what they are supposed to specialize in? I have major trust issues with doctors having missed my cancer twice. Most of my doctors are aware of this I think that’s why I always get the tests I ask for. Thanks. I am going to try the internal obdurator exercises I found some beginners ones. I’ll let you know how the Bowen pt works also.

Hello! I was diagnosed with endometrial cancer 1B stage two. I had a complete hysterectomy July of 2022, followed by bracytherapy. In March of this year I began having those exact symptoms. So far no answer either. It’s been going on for 7 months. I will keep you posted if I find out anything! Hope you are feeling better!

Thank you for the info I shall look that up. I go to a chiropractor no cracking of bones he uses what a call a clicker and pressure. I am also seeing a physical therapist we are going to try the Bowen procedure. Actually my gyno oncologist never mentioned that it could be anything else, I think she is probably tired of me calling and just gives me the tests to put my mind at rest. I asked her about PMC pelvic radiation disease in an email and really didn’t get a response. The pain is so sharp it takes my breath away. I really appreciate your help and info. Thanks so much to you and Mayo connect.

@jeanadair123 Is it possible that the pain is soft tissue (muscles)? Depending on what I’m doing I get groin pain that is sharp too. I went to a pelvic floor physical therapist who helped me figure out this was the internal obdurator muscle that was affected by having a hysterectomy and total left hip replacement within 3 months of each procedure. The pain has never really gone away however I now recognize the source and I have exercises to do for it.

Sure, it could be scar tissue too. What other explanations did the oncologist come up with since your scans were all negative (thank goodness!)?

Unbelievable! Thank you!

I had external radiation and brachytherapy. I have terrible sharp abdominal pain in my groin that radiates to my back, feels like toothache. Oncologist did mri, Ct and pet scan all came back normal. Dr said to go to PT and have been seeing chiropractor it helps for a day and starts again.
No one seems to know what it is and I think that drs think that because I had scans that should be good. Does anyone else have these kind of pains. Maybe it’s scar tissue or it’s from the radiation .
No one ever answers those questions.

No systems just kept changing doctors until someone used a speculum and that is how they found it.

I'm simply curious whether you had any symptoms that reappeared to suggest that the cancer had returned since nothing showed? Thank you very much for responding!!!

Hi jeanadair123, hope all is well with you. How did treatment go and were they able to do surgery again on the cuff or how do they treat it. Hope they took care of it to your satisfaction. God bless and good Luck!