Anyone else have a Redundant / Tortuous Colon?

@sickofbeinsick1 Where did you go to get that kind of medical treatment? Certainly was not Mayo MN...Mayo and I keep in touch via the prescription renewals and when they require that I check-in the pharmacist tells me.. and during the Pandemic I have had 2 telephone sessions with my GI doctor there in Rochester. Now that I have had my 2 shots we plan an onsite visit in May ...(I live a 3 hour drive away from Mayo MN.). When I do other than GI visits at Mayo my GI doc always mentions those visits or problems during our sessions.. Mayo has a different pay arrangements with doctors than most places.. so given that they Mayo doctors act differently ...and as a team.

I have noticed...not so recently, most Dr.s, after they’ve done they’re “procedure”, given your findings, they are out of the picture. There is NO CONTINUITY in care anymore. I have done more research than I care to think about. Too many problems, too many solutions, too many topics! I thought that’s what Drs were for.

I was just diagnosed after a painful colonoscopy. Unfortunately, the doctor didn’t stop to talk aboutit so I am doing my own research. For the last several years, since my last coloscopy, I have had episodes where I cannot relieve myself then it feels like I am going to pass out, followed by a drop in blood pressure with cold sweats. These episodes take up to 30 minutes to finish and I have to lie down afterward. I am wondering if they are related. I certainly appreciate everyone’s experience and input.

I have had irritable bowel-C for over 40 years. In the last three years and a half years the constipation has become severe. Up until then, I rarely used laxatives (could count on one hand, the # of times) One gastroenterologist recommended the fodmap diet, (so restrictive and I am already restricted as a celiac) metamucil and miralax twice a day. That seemed to alleviate the constipation but all that miralax and metamucil aggravated my irritable bowel. That same gastroenterologist said in his report "her bowel will just have to get used to it": it didn't) In the last three years, I have also gone from being on no medications to three: metoprolol, prolia and repatha (evoculomab injection). One or more of these drugs has made the constipation worse.
Recently, I stopped using Miralax. It no longer seems as effective and was giving me daily lower abdominal cramping to the point where some days it was uncomfortable to walk. So much gas and terrible bloating. (Interesting how all of its advertising says no bloating, no cramping) Then, I tried milk of magnesia and it works but the cramping for me was beyond tolerable. So, a few nights ago, I tried two senokot and that worked without cramping but I'm sure if I use it daily it will be the same issue. Lizness gave me abdominal pain and bloating.
Over the years, I have taken probiotics but didnt see a difference.
My last colonscopy was 9 years ago (CT colonography and sigmoidoscopy about 3 years ago--one nonserious polyp)and it showed a "long and twisty colon".
I am waiting for my gastroenterologist appt next month. Actually beginning to wonder if there is a solution. Prucalopride called Resotran was suggested, (believe that helps with motility). However, I have an arrythmia that is now well-controlled and Health Canada has a warning saying proceed with caution re resotran if you have those problems and the drug safety clinic could not assure me it would be safe. I really do believe it is the medications that have made the IBS-C worse. That's the thing with modern medicine. The drugs fix one problem and often create some new condition (from side effects) that then needs to be treated.

I was just diagnosed after a painful colonoscopy. Unfortunately, the doctor didn’t stop to talk aboutit so I am doing my own research. For the last several years, since my last coloscopy, I have had episodes where I cannot relieve myself then it feels like I am going to pass out, followed by a drop in blood pressure with cold sweats. These episodes take up to 30 minutes to finish and I have to lie down afterward. I am wondering if they are related. I certainly appreciate everyone’s experience and input.

Thanks for the nifty image of your colon! I have had esophagrams which seem to show a tortuous esophagus. Many in my family as well as myself, have tortuous blood vessels. My femoral arteries, the usual route for cardiac catherization tools to get to the heart, are described as tortuous. Being old at 79, I have more fecal incontinence as well as urinary frequency. Pelvic Floor Therapy with wise counselling by a specialty therapist was very helpful. I now use three Kirkland fiber capsules at night, at least one Medjool date (what a treat) a day, and hope to increase my fresh vegetables and fruits as we welcome Pacific Northwest Springtime garden foods. The National Institutes of Health has a rare condition website with more information about Tortuosity syndromes. Each condition webpage has a reference to an information specialist who can provide more recent information: https://rarediseases.info.nih.gov/diseases/774/arterial-tortuosity-syndrome