Anyone else have a Redundant/Tortuous Colon?

I have an update! I had my 3rd colonoscopy attempt yesterday (not counting the failed barium enema) and I FINALLY had a Dr. who could see the whole thing! This time they did a double balloon colonoscopy at a hospital. And the only reason I have blood in the stool is because it is very tortuous and winds a lot. But it's all ok and I don't have to get another for ten years like a normal person! I have had to do the prep four times this year and I'm so done with it. But I am also so very grateful that there's nothing wrong with me.
Just to help anyone else out with the prep I do add a couple extra hours to the liquid diet and I also use 2 fleet enemas after I finish drinking the swamp water. It worked the last two times and it's very difficult for me to get cleaned out. I usually take magnesium chloride and miralax daily for constipation. My prayers and best wishes to all of you having issues with this!

I am astonished by the similarities and also see so many people posting on this thread that could be me as far as how they are coping, what they've experienced with doctors and honestly the need to be tenacious to get this diagnosis. I'm 48, also, just diagnosed with tortuous colon a couple weeks ago after 11 months of debilitating and devolving issues with my stomach, digestion, eating, sleep, joints, fatigue. I've also been dealing with this since my late teens and have been hospitalized a few times, blown off and told it was probably food poisoning, stress or a mystery (as in, I'm imagining it). I've spent the last 30 years doing everything I could to eat healthy, exercise, reduce stress. I think my biggest frustration now is that I've always wanted to find a way to heal rather than treat symptoms, but I don't know that's an option anymore. It's good to meet you, not because I'd wish this on anyone, but because it's good to find people who understand and can relate. I hope you get some resolution.

I have had issues since I was in my early twenties (48 now). I went in many many times for help. I was told I had the flu, was too thin, maybe the edge of my liver was getting pinched? I was made to do an upper GI scope (never lower), HIDA scan, and obviously ultrasound. I was never diagnosed. I even had a two week period where I couldn't eat, was vomiting and could get no provider to listen to me. It wasn't until I went in for my first colonoscopy last month that my surgeon told me I had tortuous bowel. That explains EVERY intestinal issue I had. I wish more doctors considered this being a possible diagnosis and checked for it. Mine is bad enough, she could not complete my colonoscopy, so now I must go in for a CT colonoscopy. Still trying to figure out how to get my guts to work properly, but at least I have a direction to move now!

Thank you! Much appreciated! My husband jokes that after 30 years of migraines and all other health issues, we could have bought a vacation home! 🙏🏼❤️

Hopeful they will be benign and only D&C.
I feel your pain, literally! I had eye surgery today and am lying in a hotel bed 6 hrs from home with an ice pack on my face! I’ve had a colonoscopy, my ovaries and tubes removed and now this now just this year. That doesn’t count all the drs apts, tests, ER visits, PT apts, oh I’ll just stop there. It truly sucks getting old!
Anyway, I hope you feel better tomorrow!

It sure does, Sally AND expensive!
I'm new to this thread as recently found out tortuous colon has probably been the cause of decades of pain and obstipation and many misdiagnoses.
I hope you feel better soon. It's tough to be in pain when away from the comfort of your home.
All the best💞

Hopeful they will be benign and only D&C.
I feel your pain, literally! I had eye surgery today and am lying in a hotel bed 6 hrs from home with an ice pack on my face! I’ve had a colonoscopy, my ovaries and tubes removed and now this now just this year. That doesn’t count all the drs apts, tests, ER visits, PT apts, oh I’ll just stop there. It truly sucks getting old!
Anyway, I hope you feel better tomorrow!

Am feeling a little embarrassed to discuss this. About 20 years ago I had an operation to remove piles. My dr told me that my large intestine is longer than it should be. I had covid twice and still suffer from the after effects. I have a funny feeling in my chest, swallowing all the time to get the knob down my throat. I have a light pain in my abdomen and am constipated all the time. It takes up to 10 days for my tummy to release itself. I'm insanely scared to go to the bathroom. I drink plenty of water, eat lots of fibre food, exercise and otherwise very healthy. I'm also scared for another operation to remove piles because its starting again. My dr is treating me for enxiety (37gr Venlor). Apparently it also help the muscles of the esophageal for the peristatal movement. I tried chewing bubble gum, flybogel capsules, drinking senna tea, lynseed, fruits, etc. I love my veggies. Nothing seems to work. I also have heartburn lately. Am tired to explain to my dr over and over. I feel that he doesn't belief me. I don't want an operation. Please advice me.

@sallyw133 I had two biopsies and it HURT but now the aftereffects of pain and cramps. Should have results Friday or Monday. She said at least D&C if not cancer. The older I get , the more is falling apart!
Thank you for caring ❤️