Anyone else have a Redundant / Tortuous Colon?

Posted by onaquest @onaquest, Nov 7, 2018

Hello. Anyone else out there that has a redundant/ tortured colon? I was diagnosed with this a few years ago. I’m usually ok, but if I get constipated, I get sick for a week or two. Last year my gastroenterologist referred me to a surgeon for urgent surgery to remove some of my colon. The surgeon I ended up seeing (not on the recommended list by my gastro doc due to others not available for a long time) said he believed I could live with the redundant colon if I followed a low FODMAP diet. I tried the diet religiously, scientifically (I’m a scientist), and I found it’s not the food I eat that causes these bouts of constipation. The only item I’ve found that might cause the bouts is coffee every day. An occasional coffee seems fine. What has helped me stay regular in a big way is Benefiber (or any pure wheat dextrose generic) three times per day. Lots of fluid.

My gastro doc was upset with the surgeon and said I’d regret not having the surgery. He fears I will end up in an emergency situation. I have searched the Mayo site and don’t find anything about redundant/ tortured colon. Are any Mayo docs doing research or treat this condition? Anyone else suffer from this too?
Thank you! -Jayne

Interested in more discussions like this? Go to the Digestive Health Support Group.

Thank you everyone for your support! I think I'll try Prunelax first. Then I'll talk to my doctor about Motegrity.
I finally had a CT scan today. It was supposed to be ASAP two weeks ago but my doctor's office staff is so inefficient, even after my repeated phone calls, I wasn't scheduled until yesterday, Also, my doctor's office did not instruct me to drink barium at home before I went for the scan. So when I arrived for my appointment, they gave me barium to drink, wait a half hour, drink another cup, wait a half hour, then I finally had the test. Also had no idea it would involve an IV with iodine. But the technician was so nice and I'm glad the experience is behind me. Now I've taken my Senokot and am drinking Smooth Move and resting.

REPLY
@euqcaj

Yes,.....all my life. The only thing that has successfully, and so far continuously, worked is Prunelax. And this is only within the last couple of months. I am 70. I also mix in psyllium into my oatmeal daily, 8 gm. It is awful to eat but I add diced apples, bananas, and cinnamon. But honestly, I believe it's the prunelax that is really working for me. And what I have noticed on this site is what works for one person, may not work at all for another. But we keep trying things. I wouldn't have even known about Prunlax except through this site. I am currently using 4 mini tabs daily. I understand there is a maximum strength and I am going to try that next, only because I will have to take less tablets. I hope you find something that works for you also! In all my years of dealing with this I found Miralax does not work. I drink lots of water and I use Metamucil wafers when I'm traveling. They're great! I truly understand your situation and the frustration, and even sometimes panic, that it causes. I am wishing you the best. You have to be your own advocate. Jacque

Jump to this post

Panic. Exactly. Thank you!

REPLY
@tropicbev

I just joined Mayo connect. Knowing I am not alone has helped my emotional state immensely. Thank you all for sharing those things in your life that are not pretty but are our reality.
I have a redundant colon. I never heard of “torturous” but that really describes it well. I have suffered with constipation all my life. In my late 20’s, I had emergency volvulus surgery. It was a complete strangulation of my colon. The emergency room doctor on call performed surgery and “flipped it back”. I’m not kidding, that’s what he said. No resection or repair of any kind. But that was 1980, so maybe that was the best they could do. Honestly, I was afraid to move my abdomen in fear I would “flip” it again. So, I continued my life with chronic gas and constipation.
Due to symptoms, I had my first colonoscopy at age 35 and was diagnosed with redundant colon. To complicate things, I’ve had three abdominal surgeries: volvulus, hysterectomy, and bladder lift (the bladder lift was probably due to straining bowel movements all my life) that left me with adhesions. I believe the adhesions have contributed to my present condition – very severe constipation.
I moved to Florida last year, got a new gastroenterologist (scary), and she thinks I have a partial blockage and am currently undergoing testing (CT scan, humiliating fecal testing, etc). Surgery would be a last resort for me. That would only create more adhesions and may not help my condition. I’m on Mirilax, Benefiber, Senokot, Align, and I drink Smooth Move tea.
I’m almost afraid to eat and have lost 13 pounds in the past two months. I keep taking the laxatives and hoping for the best. My life has changed so much. I’m either uncomfortable with constipation or bound to the house with laxative-induced diarrhea.
But I feel better knowing I am not alone in this.

Jump to this post

@tropicbev
Have you tried OTC Prune-Lax? It’s worked for many of us on this site. Two strengths from Amazon.

REPLY
@tropicbev

I just joined Mayo connect. Knowing I am not alone has helped my emotional state immensely. Thank you all for sharing those things in your life that are not pretty but are our reality.
I have a redundant colon. I never heard of “torturous” but that really describes it well. I have suffered with constipation all my life. In my late 20’s, I had emergency volvulus surgery. It was a complete strangulation of my colon. The emergency room doctor on call performed surgery and “flipped it back”. I’m not kidding, that’s what he said. No resection or repair of any kind. But that was 1980, so maybe that was the best they could do. Honestly, I was afraid to move my abdomen in fear I would “flip” it again. So, I continued my life with chronic gas and constipation.
Due to symptoms, I had my first colonoscopy at age 35 and was diagnosed with redundant colon. To complicate things, I’ve had three abdominal surgeries: volvulus, hysterectomy, and bladder lift (the bladder lift was probably due to straining bowel movements all my life) that left me with adhesions. I believe the adhesions have contributed to my present condition – very severe constipation.
I moved to Florida last year, got a new gastroenterologist (scary), and she thinks I have a partial blockage and am currently undergoing testing (CT scan, humiliating fecal testing, etc). Surgery would be a last resort for me. That would only create more adhesions and may not help my condition. I’m on Mirilax, Benefiber, Senokot, Align, and I drink Smooth Move tea.
I’m almost afraid to eat and have lost 13 pounds in the past two months. I keep taking the laxatives and hoping for the best. My life has changed so much. I’m either uncomfortable with constipation or bound to the house with laxative-induced diarrhea.
But I feel better knowing I am not alone in this.

Jump to this post

You are not alone and this site has helped me immensely. Not the doctors so much as the actual people that are going through similar experiences. Please read my post to thellman below. I hope there might be something that works for you!

REPLY

Yes,.....all my life. The only thing that has successfully, and so far continuously, worked is Prunelax. And this is only within the last couple of months. I am 70. I also mix in psyllium into my oatmeal daily, 8 gm. It is awful to eat but I add diced apples, bananas, and cinnamon. But honestly, I believe it's the prunelax that is really working for me. And what I have noticed on this site is what works for one person, may not work at all for another. But we keep trying things. I wouldn't have even known about Prunlax except through this site. I am currently using 4 mini tabs daily. I understand there is a maximum strength and I am going to try that next, only because I will have to take less tablets. I hope you find something that works for you also! In all my years of dealing with this I found Miralax does not work. I drink lots of water and I use Metamucil wafers when I'm traveling. They're great! I truly understand your situation and the frustration, and even sometimes panic, that it causes. I am wishing you the best. You have to be your own advocate. Jacque

REPLY
@tropicbev

I just joined Mayo connect. Knowing I am not alone has helped my emotional state immensely. Thank you all for sharing those things in your life that are not pretty but are our reality.
I have a redundant colon. I never heard of “torturous” but that really describes it well. I have suffered with constipation all my life. In my late 20’s, I had emergency volvulus surgery. It was a complete strangulation of my colon. The emergency room doctor on call performed surgery and “flipped it back”. I’m not kidding, that’s what he said. No resection or repair of any kind. But that was 1980, so maybe that was the best they could do. Honestly, I was afraid to move my abdomen in fear I would “flip” it again. So, I continued my life with chronic gas and constipation.
Due to symptoms, I had my first colonoscopy at age 35 and was diagnosed with redundant colon. To complicate things, I’ve had three abdominal surgeries: volvulus, hysterectomy, and bladder lift (the bladder lift was probably due to straining bowel movements all my life) that left me with adhesions. I believe the adhesions have contributed to my present condition – very severe constipation.
I moved to Florida last year, got a new gastroenterologist (scary), and she thinks I have a partial blockage and am currently undergoing testing (CT scan, humiliating fecal testing, etc). Surgery would be a last resort for me. That would only create more adhesions and may not help my condition. I’m on Mirilax, Benefiber, Senokot, Align, and I drink Smooth Move tea.
I’m almost afraid to eat and have lost 13 pounds in the past two months. I keep taking the laxatives and hoping for the best. My life has changed so much. I’m either uncomfortable with constipation or bound to the house with laxative-induced diarrhea.
But I feel better knowing I am not alone in this.

Jump to this post

Talk to your doctor about Motegrity, it's a very new drug and has worked wonderfully for me. I changed GI doctors and got this new drug. Apparently, my previous Dr didn't know about it.

REPLY

I just joined Mayo connect. Knowing I am not alone has helped my emotional state immensely. Thank you all for sharing those things in your life that are not pretty but are our reality.
I have a redundant colon. I never heard of “torturous” but that really describes it well. I have suffered with constipation all my life. In my late 20’s, I had emergency volvulus surgery. It was a complete strangulation of my colon. The emergency room doctor on call performed surgery and “flipped it back”. I’m not kidding, that’s what he said. No resection or repair of any kind. But that was 1980, so maybe that was the best they could do. Honestly, I was afraid to move my abdomen in fear I would “flip” it again. So, I continued my life with chronic gas and constipation.
Due to symptoms, I had my first colonoscopy at age 35 and was diagnosed with redundant colon. To complicate things, I’ve had three abdominal surgeries: volvulus, hysterectomy, and bladder lift (the bladder lift was probably due to straining bowel movements all my life) that left me with adhesions. I believe the adhesions have contributed to my present condition – very severe constipation.
I moved to Florida last year, got a new gastroenterologist (scary), and she thinks I have a partial blockage and am currently undergoing testing (CT scan, humiliating fecal testing, etc). Surgery would be a last resort for me. That would only create more adhesions and may not help my condition. I’m on Mirilax, Benefiber, Senokot, Align, and I drink Smooth Move tea.
I’m almost afraid to eat and have lost 13 pounds in the past two months. I keep taking the laxatives and hoping for the best. My life has changed so much. I’m either uncomfortable with constipation or bound to the house with laxative-induced diarrhea.
But I feel better knowing I am not alone in this.

REPLY
@milly12

My doc has just told me I may have redundant colon/ ibs. Have suffered from chronic constipation all my life. I’m a 51 year old female. A year ago got pain in lower right part of abdominal. It’s been there since. Did colonoscopy but he could only do half of it due to constipation. Said he didn’t think any sinister. In the past few weeks I have nausea/ bloating/ excessive gas/ bloating. Feel really down. Have to take laxatives to go. I’m vegetarian and generally eat well. Had covid in September do haven’t been exercising like I was. I’m desperate to help myself as doctors keep downplaying it. Any ideas to get my bowel moving ... it’s sluggish and doc says it’s slow transit time . Thanks

Jump to this post

Hi there
@milly12 and a happy welcome to Mayo Clinic Connect. I am sorry to hear about all your trouble with chronic constipation and pain. You will see that I added your post to a redundant tortured colon discussion so that you can connect with people like @euqcaj, @clutch, and @thellman

Did your doctor recommend any medication or supplements?

REPLY
@milly12

My doc has just told me I may have redundant colon/ ibs. Have suffered from chronic constipation all my life. I’m a 51 year old female. A year ago got pain in lower right part of abdominal. It’s been there since. Did colonoscopy but he could only do half of it due to constipation. Said he didn’t think any sinister. In the past few weeks I have nausea/ bloating/ excessive gas/ bloating. Feel really down. Have to take laxatives to go. I’m vegetarian and generally eat well. Had covid in September do haven’t been exercising like I was. I’m desperate to help myself as doctors keep downplaying it. Any ideas to get my bowel moving ... it’s sluggish and doc says it’s slow transit time . Thanks

Jump to this post

I also have a redundant colon and the only thing that helps me is Lactulose. It’s a prescription syrup and it’s amazing! I have tried everything thing else including Linzess and Amitiza. I also have several u tube channels that have digestion massages you can do yourself. I hope this helps, it’s a challenge!

REPLY
@milly12

My doc has just told me I may have redundant colon/ ibs. Have suffered from chronic constipation all my life. I’m a 51 year old female. A year ago got pain in lower right part of abdominal. It’s been there since. Did colonoscopy but he could only do half of it due to constipation. Said he didn’t think any sinister. In the past few weeks I have nausea/ bloating/ excessive gas/ bloating. Feel really down. Have to take laxatives to go. I’m vegetarian and generally eat well. Had covid in September do haven’t been exercising like I was. I’m desperate to help myself as doctors keep downplaying it. Any ideas to get my bowel moving ... it’s sluggish and doc says it’s slow transit time . Thanks

Jump to this post

So, 4 weeks ago I we r to a new GI doctor because I wasn't happy and wanted a new opinion. He put me on Motegrity. My previous Dr. Tried everything but and I had never heard if it even on this site. It has me having bowel,movements I haven't seen in 5 years. Talk to your Dr. About it. It' has only been out for 3 years.

REPLY
Please sign in or register to post a reply.