Anyone else have a Redundant / Tortuous Colon?

Posted by onaquest @onaquest, Nov 7, 2018

Hello. Anyone else out there that has a redundant/ tortured colon? I was diagnosed with this a few years ago. I’m usually ok, but if I get constipated, I get sick for a week or two. Last year my gastroenterologist referred me to a surgeon for urgent surgery to remove some of my colon. The surgeon I ended up seeing (not on the recommended list by my gastro doc due to others not available for a long time) said he believed I could live with the redundant colon if I followed a low FODMAP diet. I tried the diet religiously, scientifically (I’m a scientist), and I found it’s not the food I eat that causes these bouts of constipation. The only item I’ve found that might cause the bouts is coffee every day. An occasional coffee seems fine. What has helped me stay regular in a big way is Benefiber (or any pure wheat dextrose generic) three times per day. Lots of fluid.

My gastro doc was upset with the surgeon and said I’d regret not having the surgery. He fears I will end up in an emergency situation. I have searched the Mayo site and don’t find anything about redundant/ tortured colon. Are any Mayo docs doing research or treat this condition? Anyone else suffer from this too?
Thank you! -Jayne

Interested in more discussions like this? Go to the Digestive Health Support Group.

I have redundant colon and IBS. I am having a big problem with my running program. After just a couple blocks I have to run back to the house to go to the bathroom. Sometimes I don’t make it! Very embarrassing! I am taking Benefiber and probiotics and nothing seems to help. Any ideas?

REPLY
Profile picture for sallyw133 @sallyw133

At my initial visit, he advised starting it at one three times a day then second day go to two three times a day, Woow, Way too much. Called back. Here the fellow I met with first messed up what I was currently taking. So, now taking 1/2 tab 3 times a day. Also be sure to take on empty stomach. Told me I had to give it two weeks. If no BM after 4-5 days, use Dulcolax. Also use IBGuard every day.
Well, I’ve had mixed results. That alone isn’t enough. When I try to bump up dosage very much, side effects. Night sweats, insomnia, “brain zaps”. I’m ok at a whole one at mid-day, but no more. He says he thinks 3-4 BM’s a week are good. Not for me. If I don’t go most every day, I don’t feel good. But overall, this is the best I’ve felt in ages. I felt terrible on Motegrity, which was my previous dr’s go-to drug. Always nauseous. So I don’t want to give up on it yet. I’ve been adding in a little Miralax. A little mineral oil. Trying to avoid the big Dulcolax purge if possible, which will keep me in the house at least a day. I’ve had a call in to the gi since Monday for advice about adding something with it. Disappointed I still haven’t heard back yet. Thought this one was going to be better with that. Oh, I haven’t really noticed that I pee any more than normal, but I’m nearly 65 so I do pee a lot anyway, so it’s hard to
tell!

Jump to this post

Sally,

When you say you were taking "1/2 tab 3 times a day" what were you taking? Thanks. Joe

REPLY
Profile picture for sallyw133 @sallyw133

That what my gi is advising me to do for now. Probably not a good long-term solution, though.

Jump to this post

Thanks Sally. Yeah I agree. If the Motegrity doesn't work, I'll ask about how long Dulcolax can be taken, frequency, etc. I'll post anything I learn.

Joe

REPLY

I’ve been on this site awhile and always responded to posts. However, I cannot for the life of me figure out how to start a new post. Anyone give me advice?

REPLY

My gastro doctor has recommended I have a bowel resection due to chronic bouts of diverticulitis and diverticulosis. The last bout I had left me badly inflamed and in pain and tenderness long after the infection had cleared. I am hopeful this intervention will rectify this problem, which is a by product of my redundant colon. Anyone out there had bowel resection surgery?

REPLY
Profile picture for heyjoe415 @heyjoe415

Hi sally,

Your response was helpful. I'm a 68 y/o male and had both knees replaced this year. that went great but now I'm constipated, don't know why. My GI doc had me on Linzess which did nothing. Motegrity is next. I hope it works.

He told me to take Dulcolax after 4/5 day as well. How long can Dulcolax be taken? If it's ok to do it every 4/5 days that's ok I guess as nothing else works.

Thanks to anyone who can answer this question. Much appreciated!

Joe

Jump to this post

That what my gi is advising me to do for now. Probably not a good long-term solution, though.

REPLY
Profile picture for sallyw133 @sallyw133

At my initial visit, he advised starting it at one three times a day then second day go to two three times a day, Woow, Way too much. Called back. Here the fellow I met with first messed up what I was currently taking. So, now taking 1/2 tab 3 times a day. Also be sure to take on empty stomach. Told me I had to give it two weeks. If no BM after 4-5 days, use Dulcolax. Also use IBGuard every day.
Well, I’ve had mixed results. That alone isn’t enough. When I try to bump up dosage very much, side effects. Night sweats, insomnia, “brain zaps”. I’m ok at a whole one at mid-day, but no more. He says he thinks 3-4 BM’s a week are good. Not for me. If I don’t go most every day, I don’t feel good. But overall, this is the best I’ve felt in ages. I felt terrible on Motegrity, which was my previous dr’s go-to drug. Always nauseous. So I don’t want to give up on it yet. I’ve been adding in a little Miralax. A little mineral oil. Trying to avoid the big Dulcolax purge if possible, which will keep me in the house at least a day. I’ve had a call in to the gi since Monday for advice about adding something with it. Disappointed I still haven’t heard back yet. Thought this one was going to be better with that. Oh, I haven’t really noticed that I pee any more than normal, but I’m nearly 65 so I do pee a lot anyway, so it’s hard to
tell!

Jump to this post

Hi sally,

Your response was helpful. I'm a 68 y/o male and had both knees replaced this year. that went great but now I'm constipated, don't know why. My GI doc had me on Linzess which did nothing. Motegrity is next. I hope it works.

He told me to take Dulcolax after 4/5 day as well. How long can Dulcolax be taken? If it's ok to do it every 4/5 days that's ok I guess as nothing else works.

Thanks to anyone who can answer this question. Much appreciated!

Joe

REPLY
Profile picture for danwg @danwg

I had the exact same diagnosis after my last colonoscopy two years ago. Never even spoke to the doctor after the procedure.I do have issues with occasional cramping. I have found that Metamucil and a cup of coffee in the morning works for me, but I never had a issue with constipation yet. In fact the opposite occasionally, not diarrhea but three to four bowel movements a day.

Jump to this post

Over the past year or so I've had issues with being gassy, bloated and often constipation. I had attributed the gas and bloating to menopause. There are times when I go once a day and others we I will go up to 4 days before finally having a bowel movement. I had already started drinking a tea called smooth move that has a gentle laxative effect that seems to keep me a bit more regular.

REPLY
Profile picture for kizso @kizso

I just had my colonoscopy yesterday and was told the procedure was difficult due to significantly tortuous colon. That's it, they didn't say anything else about it, offer suggestions on how to deal with it, nothing. I did also have 2 polyps removed and they noted multiple diverticula throughout my colon. They did recommend my next scope happen in 3 years or sooner depending on the pathology report.
This was not the case with my last colonoscopy 5 years ago so the tortuous colon has developed over that time. In the last year or two I have had issues with constipation, bloating, gas, discomfort and weight gain. I am very concerned about the possibility of obstruction and committed to finding the best ways deal with this condition and reduce symptoms.
My thanks to all those sharing tips for what works best for you. I already drink lots of tea but plan to switch to plain water, add more fruits and vegetables, and possibly Benefiber to see if that helps.

Jump to this post

I had the exact same diagnosis after my last colonoscopy two years ago. Never even spoke to the doctor after the procedure.I do have issues with occasional cramping. I have found that Metamucil and a cup of coffee in the morning works for me, but I never had a issue with constipation yet. In fact the opposite occasionally, not diarrhea but three to four bowel movements a day.

REPLY
Profile picture for Keith Moon @jcarndt

I'm familiar with Cleveland Clinic MyChart. Not for my Gastro doc, he's in Pittsburgh. But I do see a Hematologist and a Urology surgeon in Cleveland and I have no problems communicating with either one. And I've never had a problem calling the office and talking with a nurse.
They have a pretty good system.......or I've just been lucky !

Jump to this post

I think it’s just the individual dr. My former gi was at cc and he wouldn’t use My Chart. Said he was too busy to answer all those messages. Everything went through nurses. Same problem there. My messages were never accurately conveyed to him so directions back weren’t appropriate. Had to wait weeks for actual apt.

REPLY
Please sign in or register to post a reply.