Anyone else have a Redundant/Tortuous Colon?

Posted by onaquest @onaquest, Nov 7, 2018

Hello. Anyone else out there that has a redundant/ tortured colon? I was diagnosed with this a few years ago. I’m usually ok, but if I get constipated, I get sick for a week or two. Last year my gastroenterologist referred me to a surgeon for urgent surgery to remove some of my colon. The surgeon I ended up seeing (not on the recommended list by my gastro doc due to others not available for a long time) said he believed I could live with the redundant colon if I followed a low FODMAP diet. I tried the diet religiously, scientifically (I’m a scientist), and I found it’s not the food I eat that causes these bouts of constipation. The only item I’ve found that might cause the bouts is coffee every day. An occasional coffee seems fine. What has helped me stay regular in a big way is Benefiber (or any pure wheat dextrose generic) three times per day. Lots of fluid.

My gastro doc was upset with the surgeon and said I’d regret not having the surgery. He fears I will end up in an emergency situation. I have searched the Mayo site and don’t find anything about redundant/ tortured colon. Are any Mayo docs doing research or treat this condition? Anyone else suffer from this too?
Thank you! -Jayne

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Profile picture for sallyw133 @sallyw133

How do you split dulcolax?

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With a pill cutter

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Profile picture for kjn72 @kjn72

I read a blog on the Mayo site from a woman who had similar constipation issues that I have. She wrote that she had a lot of success using Prunelax. She got it at Wallmart. I decided to order it online, Amazon, to try it. I found that if I take one pill with one half Ducolax that it works. This is very exciting because I haven't been enema dependent in 6 or so weeks!
As far as Motegrity goes, it costs 400 dollars monthly since I am a retiree on a fixed income, I can't afford it, same with Trulance. The companies will not discount the medication when someone is on Medicare.
I thank the person who posted about Prunelax, it has been a blessing.

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How do you split dulcolax?

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Profile picture for kjn72 @kjn72

JN: I am a 72y/o woman with severe constipation & a redundant colon. 7 years ago I had 14" of colon removed and 3 additional surgeries for a rectocele, entrocele and another bowel prolapse. I have been severely constipated before and after surgeries. I have tried evert kind of otc med, laxatives, fibers and many prescribed meds, drink 1/2 gallon of water, swim 4-5 times weekly, do zumba nothing works. I have thrown up after 6 days of not going. I have pains in right upper and left lower abdominal areas. I am enema dependent to empty my bowels, it is a painful process and can last for 3 hours every time I do it. 2 surgeons recommended colectomy, 1 did not. 1 GI recommended surgery, 2 did not. I am a young 72 and want to continue living actively with less difficulty. Anyone have surgery that worked, and what kind to eliminate this problem? I have been told that colectomy can also produce bloating, gas, things I am already dealing with. Thank you for your help
JN

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I read a blog on the Mayo site from a woman who had similar constipation issues that I have. She wrote that she had a lot of success using Prunelax. She got it at Wallmart. I decided to order it online, Amazon, to try it. I found that if I take one pill with one half Ducolax that it works. This is very exciting because I haven't been enema dependent in 6 or so weeks!
As far as Motegrity goes, it costs 400 dollars monthly since I am a retiree on a fixed income, I can't afford it, same with Trulance. The companies will not discount the medication when someone is on Medicare.
I thank the person who posted about Prunelax, it has been a blessing.

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Profile picture for sallyw133 @sallyw133

I have extremely slow motility and experience a lot of constipation. My gi has told me ok to use if no movement after 5 days. What I’m trying now, with her ok, is 1 senna tablet after 2-3 days instead. So far, that seems to gets things moving for me without the big “clean out” I get with the tea. If you compare the senna content b/t the two, you will be amazed how much is in the tea. Especially, depending upon how long you steep it. The one advantage with the tea for me is that it generally works in a couple of hours. The pill are overnight so I’m waiting around the next day. All a matter of the result you’re looking for. Probably more detail than you’re looking for but I’ve been at this a longgg time and always searching for solutions.

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I suggest 1 large T of high quality extra virgin olive oil at night before bed. This reliably cleans me out and is also good for your health overall. Also drink a very big glass of water each morning. This helps to power through any stuck or resistant bowel.

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I have extremely slow motility and experience a lot of constipation. My gi has told me ok to use if no movement after 5 days. What I’m trying now, with her ok, is 1 senna tablet after 2-3 days instead. So far, that seems to gets things moving for me without the big “clean out” I get with the tea. If you compare the senna content b/t the two, you will be amazed how much is in the tea. Especially, depending upon how long you steep it. The one advantage with the tea for me is that it generally works in a couple of hours. The pill are overnight so I’m waiting around the next day. All a matter of the result you’re looking for. Probably more detail than you’re looking for but I’ve been at this a longgg time and always searching for solutions.

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Profile picture for jaleh @jaleh

Does anybody here does Smooth Move tea? It works really well for me but the Dr. is saying I should quit taking it.

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This is a potent tea which effectively “moves” the stuck bowels. I find it also tends to be irritating to the intestines, so I don’t suggest using it routinely, but only on a PRN basis. Just my experience.

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Does anybody here does Smooth Move tea? It works really well for me but the Dr. is saying I should quit taking it.

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Profile picture for mel1987 @mel1987

I was diagnosed in 2010 with tortuous colon which was discovered during a routine colonoscopy. I have had very few problems until the beginning of 2019 when I began developing severe muscle spasms in my lower left abdomen and lower left back. I cannot think any other reason why these spasms would occur other than a result from the tortuous colon. I have also had severe constipation which I cannot find relief for. Has anyone else had anything similar happen?

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Yes! I have had issues for the past couple of years and told it was Diverticulosis. I had a colonoscopy in June and the doctor told me it was IBSD and I have an extra long colon. It’s miserable. I’m still trying to figure it out. Would love some help too.

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@colt1234
Welcome to Mayo Clinic Connect!
I’m so sorry to hear about your son’s suffering.
When children deal with chronic constipation it affects their food intake at a time when they need enough nutrition to grow. Your son looks thin in the picture.
If your home is in Canada I think you could bring the test results back home with you and try to get an appointment at a major University Medical Center where they also have all pediatric specialists.
Before deciding on surgery you need more opinions. He also needs close monitoring by pediatric surgeons if/when he has surgery.

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