Anyone else have a Redundant / Tortuous Colon?

Posted by onaquest @onaquest, Nov 7, 2018

Hello. Anyone else out there that has a redundant/ tortured colon? I was diagnosed with this a few years ago. I’m usually ok, but if I get constipated, I get sick for a week or two. Last year my gastroenterologist referred me to a surgeon for urgent surgery to remove some of my colon. The surgeon I ended up seeing (not on the recommended list by my gastro doc due to others not available for a long time) said he believed I could live with the redundant colon if I followed a low FODMAP diet. I tried the diet religiously, scientifically (I’m a scientist), and I found it’s not the food I eat that causes these bouts of constipation. The only item I’ve found that might cause the bouts is coffee every day. An occasional coffee seems fine. What has helped me stay regular in a big way is Benefiber (or any pure wheat dextrose generic) three times per day. Lots of fluid.

My gastro doc was upset with the surgeon and said I’d regret not having the surgery. He fears I will end up in an emergency situation. I have searched the Mayo site and don’t find anything about redundant/ tortured colon. Are any Mayo docs doing research or treat this condition? Anyone else suffer from this too?
Thank you! -Jayne

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I saw colorectal surgeon today and have redundant transverse and sigmoid colon. He wants me to do a Gastrografin enema to look at the sigmoid and is considering laparoscopic sigmoidectomy. Anyone been down this road yet and know what to expect with this test and possible surgery? Any input appreciated.

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Profile picture for sallyw133 @sallyw133

Yes. It was a smart pill study. She just told me about stopping the meds for a week. Then they would give me five of something. I would swallow one every
day for five days and could go to my local hospital to have the X-rays taken. Could also not take anything during those five days.

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She called it a bowel marker test.

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Profile picture for kayla1988 @kayla1988

Was the transit study you did called a smart pill test?
I had the other transit test where you swallow the 24 rings in a capsule and they xray you every day for 5 days. But they never told me to stop the laxatives beforehand or during 😭 and on day 5 of the xray I only had 5 markers left so they said it was normal transit. I struggle with my bowels everyday. I take Miralax nightly and Motegrity every morning.

Jump to this post

Yes. It was a smart pill study. She just told me about stopping the meds for a week. Then they would give me five of something. I would swallow one every
day for five days and could go to my local hospital to have the X-rays taken. Could also not take anything during those five days.

REPLY
Profile picture for sallyw133 @sallyw133

I saw a colo-rectal surgeon on Friday. The surgeon I was scheduled to see on Dec 7, cancelled me for the third time and wanted to move me to Dec 28. Or I was given the option to see a colleague. It turned out to be a blessing in disguise. She had an opening two days later and I absolutely loved her!
The apt did not go at all as I
expected. She reviewed all my records, all my testing and asked a ton of questions. She also did an ahem, exam. She felt I had multiple things going on. My transit study showed slow motility from stomach through
Colon, with colon at 86 hours. Extremely slow. She feels bowel is big problem and stool is getting hung up in multiple locations. Nothing to do with tortuous colon. Everything to
do with motility. Second. Pelvic floor dysfunction. My brain is not communicating appropriate signals to PF to move stool out. Also, levator muscle pain also related to pelvic floor.
Options. Bowel Marker Test. 5 days of X-rays to determine where bowel isn’t functioning correctly. Problem. No drugs 7
days before and 5 days during me and I would be in misery. I pass. Defecating MRI would show exactly how my PF is working or not. Not too unpleasant. Pelvic Floor Therapy. Though I’ve done locally in past, not type she wants. Ileostomy. No removal of colon. Great candidate. I’m thin, no prior major abdominal surgeries, active. She could give me a great stoma in an unobtrusive location. But doesn’t think I’m to that point yet. Decide what I want to do.
I decide to have the MRI (😬), looking into having right PF therapy locally. And putting together all my questions for possible surgery at some point. It could always be reversed. She said the gi I’m seeing is the best so I’ll continue working with him on meds. Sorry so long but it was a lot of information. Hope maybe some could help some of you.

Jump to this post

Was the transit study you did called a smart pill test?
I had the other transit test where you swallow the 24 rings in a capsule and they xray you every day for 5 days. But they never told me to stop the laxatives beforehand or during 😭 and on day 5 of the xray I only had 5 markers left so they said it was normal transit. I struggle with my bowels everyday. I take Miralax nightly and Motegrity every morning.

REPLY
Profile picture for tropicbev @tropicbev

Scroll down to the bottom until you see a blank screen for "Comments".
Just type in there.

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Thanks! Feel so dumb. I did figure it out!

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Profile picture for sallyw133 @sallyw133

I’ve been on this site awhile and always responded to posts. However, I cannot for the life of me figure out how to start a new post. Anyone give me advice?

Jump to this post

Scroll down to the bottom until you see a blank screen for "Comments".
Just type in there.

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Profile picture for clkurth @clkurth

My gastro doctor has recommended I have a bowel resection due to chronic bouts of diverticulitis and diverticulosis. The last bout I had left me badly inflamed and in pain and tenderness long after the infection had cleared. I am hopeful this intervention will rectify this problem, which is a by product of my redundant colon. Anyone out there had bowel resection surgery?

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I am adding here some coping strategies which I hope will be useful for others:

Drink a full bottle of water in the am upon awakening. This flushes me out in about 10 minutes.

Take 1-2 T of virgin olive oil at night before bed. This is a natural laxative which works well.

Peppermint gel caps are a natural antispasmodic. I take two in the am and pm. No side effects.

Ice packs help quell diverticulitis pain better than heat. Calms the internal inflammation.

Eat smaller portions. Watch high fiber foods until you are healed.

Pray fervently for your insides to be cleansed and restored to good health.

Hope this helps someone.

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I saw a colo-rectal surgeon on Friday. The surgeon I was scheduled to see on Dec 7, cancelled me for the third time and wanted to move me to Dec 28. Or I was given the option to see a colleague. It turned out to be a blessing in disguise. She had an opening two days later and I absolutely loved her!
The apt did not go at all as I
expected. She reviewed all my records, all my testing and asked a ton of questions. She also did an ahem, exam. She felt I had multiple things going on. My transit study showed slow motility from stomach through
Colon, with colon at 86 hours. Extremely slow. She feels bowel is big problem and stool is getting hung up in multiple locations. Nothing to do with tortuous colon. Everything to
do with motility. Second. Pelvic floor dysfunction. My brain is not communicating appropriate signals to PF to move stool out. Also, levator muscle pain also related to pelvic floor.
Options. Bowel Marker Test. 5 days of X-rays to determine where bowel isn’t functioning correctly. Problem. No drugs 7
days before and 5 days during me and I would be in misery. I pass. Defecating MRI would show exactly how my PF is working or not. Not too unpleasant. Pelvic Floor Therapy. Though I’ve done locally in past, not type she wants. Ileostomy. No removal of colon. Great candidate. I’m thin, no prior major abdominal surgeries, active. She could give me a great stoma in an unobtrusive location. But doesn’t think I’m to that point yet. Decide what I want to do.
I decide to have the MRI (😬), looking into having right PF therapy locally. And putting together all my questions for possible surgery at some point. It could always be reversed. She said the gi I’m seeing is the best so I’ll continue working with him on meds. Sorry so long but it was a lot of information. Hope maybe some could help some of you.

REPLY
Profile picture for heyjoe415 @heyjoe415

Sally,

When you say you were taking "1/2 tab 3 times a day" what were you taking? Thanks. Joe

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Sorry. Bethanichol

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Profile picture for kjn72 @kjn72

JN: I am a 72y/o woman with severe constipation & a redundant colon. 7 years ago I had 14" of colon removed and 3 additional surgeries for a rectocele, entrocele and another bowel prolapse. I have been severely constipated before and after surgeries. I have tried evert kind of otc med, laxatives, fibers and many prescribed meds, drink 1/2 gallon of water, swim 4-5 times weekly, do zumba nothing works. I have thrown up after 6 days of not going. I have pains in right upper and left lower abdominal areas. I am enema dependent to empty my bowels, it is a painful process and can last for 3 hours every time I do it. 2 surgeons recommended colectomy, 1 did not. 1 GI recommended surgery, 2 did not. I am a young 72 and want to continue living actively with less difficulty. Anyone have surgery that worked, and what kind to eliminate this problem? I have been told that colectomy can also produce bloating, gas, things I am already dealing with. Thank you for your help
JN

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I am reading the issues here and I've stopped to think that I never thought to any extent how much of an issue motility or constipation, et.al is for anyone on the scale it appears to be - obviously, a product of my ignorance. Is it a problem for someone (me) to only have BM's once every 7 to 10 days? On a narrow scale, I can say there is no one in my family who operates at this level and they are as in awe today as they have always been that this is my habit. But this has been my habit since I was a toddler, as far back as I can remember, and at 51, let's say at least the last 48 years. But I have never mentioned it at any doctor's visit, much less had testing done (based on symptoms therefrom) because of this pattern. And though this may seem strange for me to know, I have several buddies who have the same patterns as have I and we have known this each one about the other for years, so it's like a support group, for lack of a better explanation. But we've grown up together and this type of condition is more a part of the peace than a disturbance of it thereof.
There is no general pain, only isolated instances from time to time, and the general discomfort as you might imagine (forgive my forwardness) that briefly accompanies randomly. Should there be a discussion with the doctor about this? I'm thinking from the posts above it might not be a bad idea but I'm curious about other's suggestions, maybe next steps....This has always been an issue I would have never discussed outside my normal group of buddies, so I'm in unchartered territory here and I welcome any suggestions. They are appreciated.

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