Anyone else have a Redundant / Tortuous Colon?

Posted by onaquest @onaquest, Nov 7, 2018

Hello. Anyone else out there that has a redundant/ tortured colon? I was diagnosed with this a few years ago. I’m usually ok, but if I get constipated, I get sick for a week or two. Last year my gastroenterologist referred me to a surgeon for urgent surgery to remove some of my colon. The surgeon I ended up seeing (not on the recommended list by my gastro doc due to others not available for a long time) said he believed I could live with the redundant colon if I followed a low FODMAP diet. I tried the diet religiously, scientifically (I’m a scientist), and I found it’s not the food I eat that causes these bouts of constipation. The only item I’ve found that might cause the bouts is coffee every day. An occasional coffee seems fine. What has helped me stay regular in a big way is Benefiber (or any pure wheat dextrose generic) three times per day. Lots of fluid.

My gastro doc was upset with the surgeon and said I’d regret not having the surgery. He fears I will end up in an emergency situation. I have searched the Mayo site and don’t find anything about redundant/ tortured colon. Are any Mayo docs doing research or treat this condition? Anyone else suffer from this too?
Thank you! -Jayne

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@tonytenor

Hello! My name is Tony. I was Dx with a redundant colon back in 2013. Things have gotten progressively worse over the past nine years. Currently I have severe bloating, abd pain, constipation and weight gain. I have a high fiber vegan diet and exercise daily - usually power walking 4-6 miles per day. Has anyone else, with a redundant colon, experienced an issue with weight gain? The bloating and abd pain is bad enough, but to now have a weight issue is really quite distressing. Any thoughts?

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Hello @tonytenor and welcome to Mayo Clinic Connect. You will notice that I have moved your post into an existing discussion on redundant colon to help you connect with others who have some of the same experiences, potentially.

Members such as @jcarndt @darcystaples @lasirvent and @tropicbev may have some additional ideas to share given their history.

One thing that I immediately thought of with regard to your concern with weight gain is if you are doing cardio alone and/or the same type of cardio, it may be benefitting you mainly from a heart health standpoint and not as much from a weight loss/maintenance standpoint. Have you tried incorporating some weight exercises to trick your body back into weight loss mode?

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Hello! My name is Tony. I was Dx with a redundant colon back in 2013. Things have gotten progressively worse over the past nine years. Currently I have severe bloating, abd pain, constipation and weight gain. I have a high fiber vegan diet and exercise daily - usually power walking 4-6 miles per day. Has anyone else, with a redundant colon, experienced an issue with weight gain? The bloating and abd pain is bad enough, but to now have a weight issue is really quite distressing. Any thoughts?

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@tropicbev

Redundant colon and constipation are my life. I was just prescribed Linzess because Miralax was not working for me. The dr says take it in the morning on an empty stomach. I'm reluctant to do this, as I don't want to be tied to the bathroom all day. Does anyone have experience with Linzess and how it works? What can I expect?

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I’ve been taking it for a month. And yes it keeps you home most of the morning. Also if I take it 4 days in a row, I get some nausea so I switch it up with herbal lax from shackle. If I get backed up due to diet,or lack of water I get set back and have pain and exhaustion.good luck

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Redundant colon and constipation are my life. I was just prescribed Linzess because Miralax was not working for me. The dr says take it in the morning on an empty stomach. I'm reluctant to do this, as I don't want to be tied to the bathroom all day. Does anyone have experience with Linzess and how it works? What can I expect?

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I realize this is an old post, but I was wondering if anyone has anything else to add, or anything new that works for you.

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@rodeo2step

Are you not worried you will be dependent on the prunelax? It has the stimulant Senna along with the " Sennocides" ?

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My gastro doctor confirmed that is was ok to keep taking the Prunelax. I do have a tortuous intestine and if I don't keep things moving, I become constipated from my slow transit time. I found out that I can develope a "melonosis", I believe it was called, and it darkens the intestine but the gastro doctor and my primary care doctor said this is a benign situation. "Keep taking the Prunelax" I was so happy to hear this! Finally something that works. All my life I have dealt with this and suffered more than I care to admit. I pray this keeps working for me. I am 70 years old and in great shape otherwise,....for the most part. Miralax didn't work, nor all the other hoops I have jumped through but I can honestly say I was compliant and tried them all. I still take powdered psyllium, 8gm, sprinkled onto oatmeal or cereal, drink as much water as I can, eat fiber, etc. and exercise six days a week. I also supplement with Metamucil crackers occasionally and definitely when I'm traveling. I hope this helps. It was someone on this site that led me to Prunelax and I will be forever grateful!

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@lasirvent

I didn’t have any problems with gas or bloating when using lactulose.

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Thank you very much. I just asked my internist to call it in. I am willing to try anything and everything.

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@maria333

Doesn't lactulose cause extreme gas pains?

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I didn’t have any problems with gas or bloating when using lactulose.

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@lasirvent

I’ve had chronic constipation for many years. I had a colonoscopy last November and my dr. Told me I have a tortuous colon. I had surgery in Jan. 2020 and my surgeon said “ my only advice is to do whatever it takes not to be constipated bc if I do I’d end up back in the hospital. I have tried MiraLAX, Senacot, gummy fibers, magnesium, Amitiza, and Linzess.

The ONLY thing that works is called-Lactulose. It’s a syrup and I’ve been taking it for 4 months and it’s a miracle! Best wishes!

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Doesn't lactulose cause extreme gas pains?

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@monkee2022

Hello I just had a colonoscopy done 2/25/2022. I was diagnosed with a redundant colon. I don't know what will actually what medication will work best for me. I was told to be on a fiber diet or take milk magnesium. Miralax, stool softeners ..this is all new to me. Any suggestions that have worked for others

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I have had constipation all my life. Got diagnosed with tortuous/ redundant colon recently. The best thing that has worked for me besides 64+ oz. water daily , is Citracel several times a week, high bran cereal, lots of fruit, no red meat or pork, lots of veggies, exercise. Dr. prescribed Miralax , which helps short term, but causes me a lot of cramping! Plus it can make things too soft. It's different for everyone. It takes some trial and error. I will say I did not want to rely on stimulant laxatives that can be unpredictable and cramping, and can stop working after long tern use. The Citracel, along with diet, high in fiber, Chia seeds work too in a smoothie several times a week. best to you!

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