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Anyone else have a Redundant / Tortuous Colon?
Hello. Anyone else out there that has a redundant/ tortured colon? I was diagnosed with this a few years ago. I’m usually ok, but if I get constipated, I get sick for a week or two. Last year my gastroenterologist referred me to a surgeon for urgent surgery to remove some of my colon. The surgeon I ended up seeing (not on the recommended list by my gastro doc due to others not available for a long time) said he believed I could live with the redundant colon if I followed a low FODMAP diet. I tried the diet religiously, scientifically (I’m a scientist), and I found it’s not the food I eat that causes these bouts of constipation. The only item I’ve found that might cause the bouts is coffee every day. An occasional coffee seems fine. What has helped me stay regular in a big way is Benefiber (or any pure wheat dextrose generic) three times per day. Lots of fluid.
My gastro doc was upset with the surgeon and said I’d regret not having the surgery. He fears I will end up in an emergency situation. I have searched the Mayo site and don’t find anything about redundant/ tortured colon. Are any Mayo docs doing research or treat this condition? Anyone else suffer from this too?
Thank you! -Jayne
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I had a horrible gi dr tell me I didn’t clean out sufficiently after 4 days of barely eating, 2 days no eating and 2 days clean out. She was very rude and inconsiderate.
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1 ReactionNo but this is
https://www.walmart.com/ip/Zenwise-Digestive-Enzymes-with-Probiotics-and-Prebiotics-Supplement-Supports-Digestive-Health-100-Count/646003061
Is this the one you take?
Treating a child is so much different than an adult I am at a loss. I live with a torturous colon. As a 60-year-old woman, it is more difficult to live with as I age but I really work at it. Not a big believer in psychiatric drugs but that is me. I deal with it by taking Miralax daily. I get a minimum of 20 hours of exercise a week. I pay strict attention to my diet. Fiber enhancements like Metamucil make it worse for me as it tends to just build up and not pass. As I get so much exercise, and take MiraLax, drinking electrolyte beverages daily is a biggie. I also take ZenWise pre-probiotic/enzyme with each meal. That has made a huge difference in controlling bloating which is painful and got rid of the stomach issues surrounding my lack of gallbladder. Is her bilirubin normal? Mine was very low for obvious reasons. I start each day with oatmeal and for lunch, I have an apple with peanut butter. More fruit for a snack and then a normal dinner. I cook as I live remotely in the mountains and avoid processed foods. My weight tends to be on the low side to normal. Good luck with your precious daughter. When they hurt, we hurt.
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4 ReactionsHi Everyone
My daughter is 9, since she was 1 she has always had stomach pain and we always thought I was related to food. We finally got a doctor to listen to us and found out she has a tortuous colon she takes osmolax daily she has also been on so many diets aswell as antidepressants but we can still not get the pain to go away. Anyone have any ideas this little girl is such a trooper and just wants to feel better.
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1 ReactionI have a very similar situation going on here. Mirada never worked well so I did a little research and discovered Enulose. It works! I have been in pretty bad shape to the point that I cannot have a BM on my own. Tortuous colon. I take 1/2 glass of Enulose every 3 days. I tried to take it daily as prescribed but it made me too gassy. I can deal with the quick effects of it twice a week. Best to schedule your day around it. I really don't want to live this way either. I feel a ER visit is in my future.
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1 ReactionI did a low-fiber diet for same reason. Still adhere to most of it. No greens, raw fruit except in smoothies, no raw veggies, no seeds, corn, no fibrous red meat. Basically, nothing hard to digest. I do feel better with less “bulk”. I’ll check into IF. Always looking to try anything that could help.
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1 ReactionNot really sure what's happening, obviously not a doc, but it seems like the less food my LOOOOOONG colon has to process, the happier it is. I have an 8 hour eating window, then fast for 16. I vary the schedule occasionally. I'm about a month into it, and it's kinda life-changing. Dr. Mindy Peltz on youtube has tons of info.
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1 ReactionI am getting a lot of help from drinking 1/2 glass of aloe vera gel on an empty stomach at bedtime. It reduces the inflammation in my colon and therefore, less gas, less pain and less constipation. The brand that I tolerate is Real Aloe Brand Gel. The skin in your colon is not that different from your outer skin. I remember it saved my husband after a colon resection. So decided to try it myself. Since we hear more and more about leaky gut, I think it makes sense to try something relatively benign. I was fairly crippled with colon pain for about a year. I hope it continues to work.
Would like to hear more about the IF in re to your bowel issue.