Anyone else have a Redundant / Tortuous Colon?
Hello. Anyone else out there that has a redundant/ tortured colon? I was diagnosed with this a few years ago. I’m usually ok, but if I get constipated, I get sick for a week or two. Last year my gastroenterologist referred me to a surgeon for urgent surgery to remove some of my colon. The surgeon I ended up seeing (not on the recommended list by my gastro doc due to others not available for a long time) said he believed I could live with the redundant colon if I followed a low FODMAP diet. I tried the diet religiously, scientifically (I’m a scientist), and I found it’s not the food I eat that causes these bouts of constipation. The only item I’ve found that might cause the bouts is coffee every day. An occasional coffee seems fine. What has helped me stay regular in a big way is Benefiber (or any pure wheat dextrose generic) three times per day. Lots of fluid.
My gastro doc was upset with the surgeon and said I’d regret not having the surgery. He fears I will end up in an emergency situation. I have searched the Mayo site and don’t find anything about redundant/ tortured colon. Are any Mayo docs doing research or treat this condition? Anyone else suffer from this too?
Thank you! -Jayne
Interested in more discussions like this? Go to the Digestive Health Support Group.
Thanks!
I switch between Renu life Cleanse More, Shacklee herbalax, and Natures Sunshine LBS.. The first one uses magnesium, the other two have stimulants cascara segrada,or senna.
Hi Trishh - Thanks for the date/time and reply. Now I understand you are a live human, probably on the East coast.
Thanks for the additional information. Like you, and probably a lot of others in this Mayo Clinic group, I have a big tummy, frequent constipation but so far, no curiosity about surgery. Reading that the scar tissue left behind after surgery causes even more problems is discouraging.
An additional issue I have had for several years is quivering gut that seems to have migrated elsewhere in my trunk area. It interferes with my concentration. Also, the sound of liquid sloshing through my gut has disturbed my sleep.
I am going to try to attach a link to a googled article written by a South Indian lady gi I found about difficult colonoscopies with redundant colons below, probably old news to you. I think the lady may be selling something, but I learned a little from it. If you have found helpful articles, please share.
Oops! My reply was blocked because new members aren't allowed to attach links. So I removed the link. If you have any to send me, I would like to have them as I gather more information that my Dr. is too busy to give - "just take a laxative!"
My solution so far is floppy clothes, immediately answering nature's call and drinking water with chia seed in it.
notmoff 3/10/22 noon
Good luck, I hope it works for you. If nothing else, the stretches feel really good.
Good morning @notmoff
Its 12 noon here on east coast March 10, 2022.
Sorry I was so hard to understand.
OP means outpatient procedure. (I worked in medical field,)
I don't write much here as I am a newbie. But my meaning was in was frustrated and felt alone. I have had issues my adult life with my colon. The first colonoscopy I had was in 1991 and was told my colon was like a "roller coaster". It was a terrible experience so I waited until I had to. That was several years ago and cant remember year, but has redundant colon and precancerous polyps (removed). I waited the required 5 years and had a repeat colonoscopy. This time the doctor said I had a "tortuous colon" which was "worse than a redundant colon and you can never have surgery". He promptly left and i was still groggy and questions came later. I was just relieved I had no polyps and it would be 10 years before another.
I have read comments here on this page and have been helpful. My regular doctor retired so I think I am scared . Why my big tummy, constant constipation and what kind of surgery does one need with a tortuous colon?
Trishh
I don't quite understand (but I think that is your point) by " this is worse as I couldn't hardly get up colon." and "you could never have surgery and eat high fiber diet". What is an OP Procedure? What I do understand is "take whatever" and looking pregnant. notmoff 3/10/22 8:40 am PT.
When are you writing? In March 2022?
I am unfamiliar with how to use Mayo Clinic Connect, especially the date of the posts. So I will date mine and hope to get some answers about timeliness of others.notmoff 3/10/22 8:25 am PT
On Thursday, March 10, 2022, 02:26:33 AM PST, Mayo Clinic Connect wrote:
|
Thanks for the great advice! I do abdominal massage that I found on Youtube, and it helps when I have pain from trapped gas. Now I will look for the yoga exercises. You are right, we've got to keep moving to shake things up.
What herbal laxatives do you use?
So here's my tortuous/redundant colon story and how i deal with it. It's a lot of info, so I'm not going to put it in a huge, long post. I'm going to break it up a bit so as not to overwhelm or confuse, especially those who are new to this. I've been dealing with this for about 10 years or longer. I didn't even know I had it until the GI doc included it on the findings of one of the many colonoscopies I've had over the years. (I have Crohn's disease that's never been in remission. Diagnosed in 2005. Undiagnosed for many years) I asked what it meant, and he said " it's nothing, don't worry about it". On my most recent scope, a week ago, it now says "grossly redundant colon. At this point he admitted that is "probably" what is causing most of my constipation. I figured that out on my own a number of years ago, after five minutes of research.
So, like many of you I take all kinds of supplements, and one prescription, in different combinations to keep things moving. These mostly work, but I am still trying, still experimenting to find the right combination. More on that later.
I think one of the most important things we can do, at least for me, is to get up and MOVE. Every day. Especially movement that causes your guts to move. Currently I'm recovering from three surgeries that I've had since the beginning of September, but I'm starting to get back in the groove.
My main thing is walking....every day. Even twenty or thirty minutes can make a difference. Another is a stationary/recumbent bike that I ride first thing in the morning, after my first dose of whatever I'm taking that day. Even 5-10 minutes can help. I'm trying to shake up my guts. This next one is really important. At least to me. There is a very simple colon massage you can do for yourself that can help relieve trapped gas, and help with peristalsis. You can find several versions of this on Youtube. Last, but not least are some very gentle yoga moves on the floor that can help get things moving. Again, Youtube. I don't do all of the floor work every day, and I cannot gaurantee they will work for you, but even if it helps a little, it's worth it. I'm 69 years old and not in the best of shape, but I know I have to keep moving. " A moving target is harder to hit "