Anyone else have a Redundant / Tortuous Colon?

Posted by onaquest @onaquest, Nov 7, 2018

Hello. Anyone else out there that has a redundant/ tortured colon? I was diagnosed with this a few years ago. I’m usually ok, but if I get constipated, I get sick for a week or two. Last year my gastroenterologist referred me to a surgeon for urgent surgery to remove some of my colon. The surgeon I ended up seeing (not on the recommended list by my gastro doc due to others not available for a long time) said he believed I could live with the redundant colon if I followed a low FODMAP diet. I tried the diet religiously, scientifically (I’m a scientist), and I found it’s not the food I eat that causes these bouts of constipation. The only item I’ve found that might cause the bouts is coffee every day. An occasional coffee seems fine. What has helped me stay regular in a big way is Benefiber (or any pure wheat dextrose generic) three times per day. Lots of fluid.

My gastro doc was upset with the surgeon and said I’d regret not having the surgery. He fears I will end up in an emergency situation. I have searched the Mayo site and don’t find anything about redundant/ tortured colon. Are any Mayo docs doing research or treat this condition? Anyone else suffer from this too?
Thank you! -Jayne

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Profile picture for branckerd @branckerd

I had 1 month ago It is not an easy surgery and is a major surgery If you have other option I would do option I will tell u my dr said it will take 2 months to be 80 percent myself It’s been 1 month for me I won’t lie to anyone it’s not an easy surgery

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Thank you for your insight

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Profile picture for Keith Moon @jcarndt

I have Crohn's disease and a redundant/tortuous colon. I have had two bowel resections, one in 2007 and again in 2015, but constipation was never a problem for me until after the second surgery. I've had the Crohn's disease for many years, but did not even know about the redundant colon until a few years ago. I was reading the report after one of many colonoscopies, and saw those words for the first time. I asked the doctor about it, and he said it was nothing to be concerned about. But I am concerned about it. After about three minutes of research, I realized that there was a direct connection between my redundant colon, and my daily battle with constipation and bloating. I go back and forth between trying to get my bowels moving, and spending the whole next day in the bathroom. Sometimes I feel as though there is a lot of trapped gas in the kinks and loops. The doctors haven't offered much advice on any of this. When I asked if the redundant colon was the cause of the chronic constipation, the answer was "maybe".........
Anyway, I accidentally landed here while once again searching for ways to manage this situation, or at least make it a bit more tolerable. The posts I have read here today have been very helpful. I think I will give the Sennokot a try, because my daily Miralax just isn't doing the job, and I don't even want to think about Milk of Magnesia anymore. It sounds like I need to get more fiber as well. But I'm a little concerned about getting too much because of the Crohns. All I have to do is eat a bowl of oatmeal or a banana, and I'm all jammed up. If any of you have Crohn's and redundant colon, I'm open to any ideas. Or even if you don't have Crohn's. I'm also wondering if there are any exercises that would help.

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I'm just now realizing this is what my problem has been for years. It feels very serious with not a lot of solutions. I too found out about mine via the colonoscopy results.
Sorry, I don't have answers. Yes, Senna can help for sure.
I have to use senna, Miralax, and sometimes fleet. For really bad episodes I add milk of magnesia, which is disgusting.

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Profile picture for kjn72 @kjn72

JN: I am a 72y/o woman with severe constipation & a redundant colon. 7 years ago I had 14" of colon removed and 3 additional surgeries for a rectocele, entrocele and another bowel prolapse. I have been severely constipated before and after surgeries. I have tried evert kind of otc med, laxatives, fibers and many prescribed meds, drink 1/2 gallon of water, swim 4-5 times weekly, do zumba nothing works. I have thrown up after 6 days of not going. I have pains in right upper and left lower abdominal areas. I am enema dependent to empty my bowels, it is a painful process and can last for 3 hours every time I do it. 2 surgeons recommended colectomy, 1 did not. 1 GI recommended surgery, 2 did not. I am a young 72 and want to continue living actively with less difficulty. Anyone have surgery that worked, and what kind to eliminate this problem? I have been told that colectomy can also produce bloating, gas, things I am already dealing with. Thank you for your help
JN

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I’m so sorry you are having trouble finding the right answers. I have diverticulosis and now after a most embarrassing enema X-ray I was told I also have a redundant colon. I have worked hard to find what works for me. Fill a pitcher with 64oz of water to make sure I get my water in. Miralax every morning! My savior. Too much fiber does not work for me. I’m 70, walk, general easy yoga routine, tummy digestive rubs taught to me by PT therapist, do PT when things are flared as I also get back pain when my colon is unhappy. I’m learning on my own what I can and cannot eat and quit tryin to convince the drs that fiber is not helpful. I do lots of berries that I digest really well. My sigmoid colon has narrowed. Now they want to remove the diseased section. I pretty much gave constant left side pain. I hope you can get some relief. Digestive challenges can be so individual with no one size fits all fix.

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Profile picture for kjn72 @kjn72

JN: I am a 72y/o woman with severe constipation & a redundant colon. 7 years ago I had 14" of colon removed and 3 additional surgeries for a rectocele, entrocele and another bowel prolapse. I have been severely constipated before and after surgeries. I have tried evert kind of otc med, laxatives, fibers and many prescribed meds, drink 1/2 gallon of water, swim 4-5 times weekly, do zumba nothing works. I have thrown up after 6 days of not going. I have pains in right upper and left lower abdominal areas. I am enema dependent to empty my bowels, it is a painful process and can last for 3 hours every time I do it. 2 surgeons recommended colectomy, 1 did not. 1 GI recommended surgery, 2 did not. I am a young 72 and want to continue living actively with less difficulty. Anyone have surgery that worked, and what kind to eliminate this problem? I have been told that colectomy can also produce bloating, gas, things I am already dealing with. Thank you for your help
JN

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I noticed this discussion and wanted to comment. A friend of mine, at about age 20, suddenly had a big problem with constipation. Between 20 & 35, she suffered with it terribly to the point that she hated to eat. She went to so many doctors for help. Finally one of the big NYC medical centers, had her defecate, after taking barium, while filming the process. As embarrassing as it was, she had been suffering so long, she was ready to try anything. They found a small section of her bowel didn’t do anything to move the stool along. After surgery to remove that section, she never had a problem again. That was around 25 years ago. Hope this story helps someone.

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Profile picture for Joanne Narna @mothermary1

Miralax makes me extremely sick. I also have no gallbladder and ask to get labs to check enzyme levels, test amylace and lipase and do a fecal fat test on my stool but nope, they just think surgery. I have 4 pancreatic cysts that are watched yearly with an mri and report always states backed up bile ducts. Thanks for your response..Joanne

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Wow, I used to have a lot of problems with Miralax until I started taking Cholacol, which I think anyone missing a gallbladder should be taking, and the Zenwise. It was amazing. I went from feeling awful .foe years to feeling great all within 24 hours. Everyone is different and I am sure not everyone will have my success, but I wish you well.

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Profile picture for kjn72 @kjn72

JN: I am a 72y/o woman with severe constipation & a redundant colon. 7 years ago I had 14" of colon removed and 3 additional surgeries for a rectocele, entrocele and another bowel prolapse. I have been severely constipated before and after surgeries. I have tried evert kind of otc med, laxatives, fibers and many prescribed meds, drink 1/2 gallon of water, swim 4-5 times weekly, do zumba nothing works. I have thrown up after 6 days of not going. I have pains in right upper and left lower abdominal areas. I am enema dependent to empty my bowels, it is a painful process and can last for 3 hours every time I do it. 2 surgeons recommended colectomy, 1 did not. 1 GI recommended surgery, 2 did not. I am a young 72 and want to continue living actively with less difficulty. Anyone have surgery that worked, and what kind to eliminate this problem? I have been told that colectomy can also produce bloating, gas, things I am already dealing with. Thank you for your help
JN

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Hi,
I had a lot of joint pain before I changed my diet. It seemed like the pain moved around my body at times. I know a gluten free diet seems extreme to a lot of people but for me it’s not a fad. Trust me, I would love to eat the gluten. It’s sooo much easier! I think a low sugar is just as important for inflammation in the body. I am 62 years old, 5’4” and found out I have Osteoporosis this year. I only have occasional back and hand pain in the morning when I wake up then no pain after that. I am so afraid to take the medicine ( Evenity) because it says it can cause severe joint pain and a whole load of other scary symptoms. I try to exercise six days a week now and eat more protein. It’s becoming a full time just just staying healthy. I do believe the gut is the key to our health so I really strive for a healthy gut. I hope you figure out your joint pain issue as I know it can be a worry. I just had to do what seemed to help me. I feel better than I did 7 years ago. Low levels of Vitamin D3 is also linked to joint pain so make sure your D3 is in a good range ( around 50) That was huge for me. I have all of my daughters taking a multivitamin with D3. They tend not to get all of their vitamins from what they eat. They said they feel much better. It seems the younger generation is getting symptoms sooner than we did. Good luck with everything!

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Profile picture for md123 @md123

I am curious, as yy journey somewhat mirrors yours. I started taking ZenWIse several weeks ago and found that to be a game changer. I also take Cholacol occasionally since I do not have a gall bladder. I have always been in excellent health, exercising 16 hours a week, but since I started ZenWise, my energy levels are off the charts. My stomach pain went away, I do eat whatever I want, in moderation and mostly healthy but I have not given up one thing and all the stomach issues went away. The one thing I do differently than you, is I take Miralax every morning and have concluded I will for the rest of my life. 3 years ago I was in the hospital as I had gone 6 weeks with no movement. 2 weeks was the norm for me until I started taking Miralax.

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Miralax makes me extremely sick. I also have no gallbladder and ask to get labs to check enzyme levels, test amylace and lipase and do a fecal fat test on my stool but nope, they just think surgery. I have 4 pancreatic cysts that are watched yearly with an mri and report always states backed up bile ducts. Thanks for your response..Joanne

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Profile picture for trathfon62 @trathfon62

I feel your pain. I have dealt with constipation by whole life. It was nothing to go a week without having a BM. Growing up I thought that was normal. Six years ago it became a big problem. I was exposed to mold for a prolonged period of time and it really messed me up further. Doctors kept telling me to take Metamucil but that made it worse. I finally found a naturopathic doctor who helped me figure things out. Going totally gluten free helped enormously. Also, cutting out sugar, mainly desserts, sodas or anything high in sugar was also a huge help. Today I have a BM every morning. Even with a redundant colon I am able to evacuate daily. It really helps to have a routine. I drink a warm glass of water first thing before breakfast. I continue to drink water throughout the day. A clean diet- fruits & vegetables, very little alcohol, daily exercise, abdominal massage before getting out of bed. Specific supplements have also helped keep me on track. Vitamin D3/K2, Vitamin C, digestive enzymes, probiotic. It’s a lot and I know every person is different and has their own specific needs, but I just wanted to share in case it was helpful to someone. Even if you test negative to Celiac disease some people are still sensitive to gluten. That was my case. Good luck to everyone on this site.

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Thank you for this. I, too, have lifelong constipation which is now mostly managed successfully with 600-900 mg Magnesium Citrate daily and a probiotic (either Inner-Eco or Zenwise, which I learned about from a member on this site). I have a known "severely" tortuous colon and imagine my evacuation rate is very slow, though I've never done the smart pill. I have two questions for you. One, gluten. I confess I have never done the full gluten-free diet because so many people told me it was a fad and that unless you have celiac it's not a likely culprit. Your report makes me wonder if it's worth trying. Two, have you suffered back pain/joint instability? I feel my hypermobile joints - and in particular my Sacroiliac Joint dysfunction - is directly linked to my large/stressed out/tortuous colon. My GI doc doesn't seem to think they'd be related, but I wonder, anecdotally if others have this experience. My 21 year old daughter seems to have a similar set of symptoms (constipation/SI dysfunction). We do not have IBS. Thanks!

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Profile picture for md123 @md123

I am curious, as yy journey somewhat mirrors yours. I started taking ZenWIse several weeks ago and found that to be a game changer. I also take Cholacol occasionally since I do not have a gall bladder. I have always been in excellent health, exercising 16 hours a week, but since I started ZenWise, my energy levels are off the charts. My stomach pain went away, I do eat whatever I want, in moderation and mostly healthy but I have not given up one thing and all the stomach issues went away. The one thing I do differently than you, is I take Miralax every morning and have concluded I will for the rest of my life. 3 years ago I was in the hospital as I had gone 6 weeks with no movement. 2 weeks was the norm for me until I started taking Miralax.

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I’m really glad the Miralax works for you. I will have to check out the ZenWise. I think we just need to find what works for us and stick with it. I have really increased my exercise too. I think that helps. Good luck with your journey! I will keep on with mine too!

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Profile picture for trathfon62 @trathfon62

I feel your pain. I have dealt with constipation by whole life. It was nothing to go a week without having a BM. Growing up I thought that was normal. Six years ago it became a big problem. I was exposed to mold for a prolonged period of time and it really messed me up further. Doctors kept telling me to take Metamucil but that made it worse. I finally found a naturopathic doctor who helped me figure things out. Going totally gluten free helped enormously. Also, cutting out sugar, mainly desserts, sodas or anything high in sugar was also a huge help. Today I have a BM every morning. Even with a redundant colon I am able to evacuate daily. It really helps to have a routine. I drink a warm glass of water first thing before breakfast. I continue to drink water throughout the day. A clean diet- fruits & vegetables, very little alcohol, daily exercise, abdominal massage before getting out of bed. Specific supplements have also helped keep me on track. Vitamin D3/K2, Vitamin C, digestive enzymes, probiotic. It’s a lot and I know every person is different and has their own specific needs, but I just wanted to share in case it was helpful to someone. Even if you test negative to Celiac disease some people are still sensitive to gluten. That was my case. Good luck to everyone on this site.

Jump to this post

I am curious, as yy journey somewhat mirrors yours. I started taking ZenWIse several weeks ago and found that to be a game changer. I also take Cholacol occasionally since I do not have a gall bladder. I have always been in excellent health, exercising 16 hours a week, but since I started ZenWise, my energy levels are off the charts. My stomach pain went away, I do eat whatever I want, in moderation and mostly healthy but I have not given up one thing and all the stomach issues went away. The one thing I do differently than you, is I take Miralax every morning and have concluded I will for the rest of my life. 3 years ago I was in the hospital as I had gone 6 weeks with no movement. 2 weeks was the norm for me until I started taking Miralax.

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