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Anyone else have a Redundant / Tortuous Colon?
Hello. Anyone else out there that has a redundant/ tortured colon? I was diagnosed with this a few years ago. I’m usually ok, but if I get constipated, I get sick for a week or two. Last year my gastroenterologist referred me to a surgeon for urgent surgery to remove some of my colon. The surgeon I ended up seeing (not on the recommended list by my gastro doc due to others not available for a long time) said he believed I could live with the redundant colon if I followed a low FODMAP diet. I tried the diet religiously, scientifically (I’m a scientist), and I found it’s not the food I eat that causes these bouts of constipation. The only item I’ve found that might cause the bouts is coffee every day. An occasional coffee seems fine. What has helped me stay regular in a big way is Benefiber (or any pure wheat dextrose generic) three times per day. Lots of fluid.
My gastro doc was upset with the surgeon and said I’d regret not having the surgery. He fears I will end up in an emergency situation. I have searched the Mayo site and don’t find anything about redundant/ tortured colon. Are any Mayo docs doing research or treat this condition? Anyone else suffer from this too?
Thank you! -Jayne
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Had first colonoscopy ten years ago. The procedure was long and it took me 24 hours to fully recover from sedation. I was told I had a tortourous colon.
Only ten years later in for second colonoscopy I was told I had been given extra sedation during the first procedure, so I needed to inform all the medical staff of that historyl
I will be scheduling my next colonoscopy, unfortunately with a new physician. I am anxious that this doctor understand my situation and will proceed cautiously.
I have IBSD, flare-ups, worry about risk of incontinence, and hope to find better advice and possibly medications to help.
I have been suffering with bowel and upper GI issues for over 20 years. I have visible on scans an elongated colon, liver cyst, diverticula, and two hernias. I am on multiple medications, and have tried every diet I have been asked to. I have severe bouts of chronic constipation that eventually land me in hospital. I have been told I have IBS-C which I believe to be incorrect as my understanding is that I have enough physical anomalies to explain my symptoms. Waiting on referrals.
Hi @amalynne69 and welcome to Mayo Clinic Connect. Can you share a little more about your medical journey and what you have been through?
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1 ReactionI totally understand. I sat down and read through years of reports today ... signs of inflammation, malnutrition, chronic damage ... endless scans and blood work leading to more scans and blood work but never a resolution. Only more diets and pills.
I have been struggling for years. In and out of emerg. I have come to believe surgery might be my only hope for a normal life.
I just cannot imagine how you must feel. I know how frustrated I am and my issues in no way come close to yours. I wish I had something to offer other than just my prayers and support. We are here for you.
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2 ReactionsI was also diagnosed with pelvic floor disfunction and as well as causing chronic constipation, mine causes bladder pain, low back pain, especially if I lift something heavy. Interesting how it is all connected down there! Best wishes!
Yes, it is awful to deal with such stubborn C. That heavy metal toxicity is some controversial stuff. I do have two copies of MTHFR so I'm squarely in the category that practitioners who over chelation are targeting, BUT I'm heretofore unconvinced to undergo IV treatments for that. It just seems like a money play. I do have hypothyroid and I do take synthroid for good levels. My next move is to get thyroid antibody tests.
Have you done chelation or other heavy metal treatment?
If I would eat stewed prunes and drink Bellway fiber with lots of water every day I wouldn't suffer near as much.
Ashley
I actually do not know yet. Will keep you posted.
That's great! What is the price range for that doc? I cannot afford most of them because I am unemployed due to my health and Im only 20 so I got sick before I really had a chance to work.