Anyone else have a Redundant / Tortuous Colon?
Hello. Anyone else out there that has a redundant/ tortured colon? I was diagnosed with this a few years ago. I’m usually ok, but if I get constipated, I get sick for a week or two. Last year my gastroenterologist referred me to a surgeon for urgent surgery to remove some of my colon. The surgeon I ended up seeing (not on the recommended list by my gastro doc due to others not available for a long time) said he believed I could live with the redundant colon if I followed a low FODMAP diet. I tried the diet religiously, scientifically (I’m a scientist), and I found it’s not the food I eat that causes these bouts of constipation. The only item I’ve found that might cause the bouts is coffee every day. An occasional coffee seems fine. What has helped me stay regular in a big way is Benefiber (or any pure wheat dextrose generic) three times per day. Lots of fluid.
My gastro doc was upset with the surgeon and said I’d regret not having the surgery. He fears I will end up in an emergency situation. I have searched the Mayo site and don’t find anything about redundant/ tortured colon. Are any Mayo docs doing research or treat this condition? Anyone else suffer from this too?
Thank you! -Jayne
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Hi, just came across your post. I have a tortuous colon too. I didn't know that when I flew from NY to Alaska got very constipated. I don't know what a map diet is. I am on a high fiber diet, at least 30 grams of insoluble fiber daily and bring figs and chia whenever I travel. But I find the best things are broccoli, arugula, kale which really make the difference for me. Good luck!
Does anyone know if Dulcolax Stimulant (Bisacodyl) can be taken long term? I take it a few times a week, and also take Miralax at night. This seems to work for me. I have seen a lot of suspicion/concern around L/T use of stimulants but nothing scientific to say it's not ok. Thx all!
I also suffer from an elongated colon . I have had constipation daily for almost 24 yrs now . This problem has gotten so bad that any kind of bowel movement is extremely difficult to impossible. Eating has become an absolute no no . Laxatives do nothing. Fiber does not help. Drinking lots of water just makes me urinate more. A colonoscopy is impossible. The colonoscopy prep kit that is supposed to clean you out does absolutely nothing. Doctors have taken a CT scan of my colon so they know what I'm dealing with, but won't do anything about it. So I'm pretty much on a liquid diet. So I know what you are going through.
I have a tortuous colon and trying to follow a low map diet. It seemed to help at first but now things have slowed down and having more discomfort. I started drinking apple juice (2-3 cups a day) and miralax when things are not moving as they should. It’s helping move things but still uncomfortable. I plan on flying soon and getting nervous about flying- gas, more discomfort due to flying. Any advice or recommendations?
I have the SI problem which showed up after a diagnoses of redundant colon.
Never had either before age 69. I know that it is all related. I suspect it is autoimmune. I do not have any solutions. If you find one, please let me know.
Yes, I am 70 and JUST found out I have a redundant/tortuous colon from a colonoscopy! So crazy- it explains the lifelong constipation, TERRIBLE colonoscopy preps ( longer colon= up all night on the toilet instead of a few hours- and even then it’s not a clean colonoscopy).
I have always just managed this on my own with fiber capsules, a handful of almonds every day. No one has ever diagnosed it before now or helped me with it. It’s a very delicate balance eating-wise for me. Can’t eat too much fiber, must get enough.
Because of this, surgeries can really mess you up because anesthesia stops your colon. So in my life I’ve had rectal surgery (in my 30s) , and after a spinal fusion I developed a rectocele. A very kind Physician’s Assistant (Michele at Dr. Penenberg’s at Cedar’s Sinai- thank you!) gave me a prescription for Movantik to take the day of my first total knee replacement surgery a couple years ago and then a few days after. Miracle! Was able to go the next day. Usually it has taken as long as 12 days after a surgery!
Moral of the story is to be very careful not to let yourself get constipated, even if you need a glycerin suppository. I make sure I go every day and don’t really leave my house until I do. So inconvenient! But it keeps me out of trouble. Easier to schedule stuff later now that I’m older, harder when I had little kids. Hang in there! You can manage it without surgery- just be very diligent.
I too found out through a colonoscopy. Very torturous and redundant. I have found Metamucil plus vitamins with a hefty glass of water and sitting with coffee each morning keeps me on a regular schedule. Along with exercise.
Karen- I'm also Karen. I feel for you because I'm having increased issues as well. I would not eat white rice - that can actually cause constipation?
I'm new to this group and even though I've struggled with this for years. I'm just now realizing what it is. Now I don't feel crazy.
Thank you for the input. I have this condition. For some reason I tried Metamucil years ago and I didn't like it- I didn't think it helped, so I stopped trying. After reading your comments, I think I'll try it again, as this is really messing with my health. Thanks.
Thank you so much for your comments. I replied to another comment that I'm just now realizing this is what I e even struggling with for years.