Anyone else have a Redundant / Tortuous Colon?
Hello. Anyone else out there that has a redundant/ tortured colon? I was diagnosed with this a few years ago. I’m usually ok, but if I get constipated, I get sick for a week or two. Last year my gastroenterologist referred me to a surgeon for urgent surgery to remove some of my colon. The surgeon I ended up seeing (not on the recommended list by my gastro doc due to others not available for a long time) said he believed I could live with the redundant colon if I followed a low FODMAP diet. I tried the diet religiously, scientifically (I’m a scientist), and I found it’s not the food I eat that causes these bouts of constipation. The only item I’ve found that might cause the bouts is coffee every day. An occasional coffee seems fine. What has helped me stay regular in a big way is Benefiber (or any pure wheat dextrose generic) three times per day. Lots of fluid.
My gastro doc was upset with the surgeon and said I’d regret not having the surgery. He fears I will end up in an emergency situation. I have searched the Mayo site and don’t find anything about redundant/ tortured colon. Are any Mayo docs doing research or treat this condition? Anyone else suffer from this too?
Thank you! -Jayne
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Hello. I just had my first colonoscopy and the report on it says I have a tortuous colon. For some time now I have complained to my doctor that I get full after eating very little. I had loads of test done that tested my stomach and at what speed it emptied. They said everything was fine. I still have the problem and, to be honest, it's worse since the colonoscopy. I have had no contact from the doctor since the colonoscopy about the results (tortuous colon and a tubular adenoma) which I find strange and if I don't here soon I'm going to ask my primary care doctor what to do. I'm wondering if the tortuous colon is the cause for the full feeling and how it will effect future colonoscopies because with the tubular adenoma I think I'm gonna need colonoscopy more than every 10 years. If anyone has a similar experience I'd like to hear about it.
I have diverticulosis and a redundant colon. My primary guy Dr. gave me a script for an upper GI series.
I have benign nodules on my thyroid and hate to risk what I think is pretty heavy radiation (fluroscope)
as scatter radiation could affect those nodules. I am admittedly a type A personality and when I feel
stress at all, I tend to get a nervous stomach. Should I have the GI test?
So sorry you’re going through this at such an early age. I’ve also struggled since my 30’s but things only got really bad 4 years ago, I’m 65. I’m doing the Sitz Marker study on the 22nd and a defography on June 2. Really looking forward to a fun 3 weeks of no meds, colonoscopy preps and a somewhat “awkward” procedure! I’m also looking at surgery. Best of luck to you!
I so relate to this! I’m super active, 39 years old, petite (except for a balloon belly). Just had anorectal manometry done and have Sitz Marker study next week in hopes of getting a surgery scheduled. I have tried holistic, pharmaceuticals, acupuncture, suppositories, etc. Motegrity (@thellman) did work the best but only for about 2 weeks. Those were the best 2 weeks I’ve ever had, motility-wise. I don’t know that I’d ever experienced a complete, clearing BM until then. I will have semi-regular movements but they are loose and small and pass right over the blockages. My lower left side feels like it’s on fire. I want to have the surgery and not waste time fighting with this anymore. There’s pressure on my bladder so I never know when I’m going to have to use the bathroom (urgently!) and my tailbone is even angled differently sometimes. Lots of lower back pressure and difficulty engaging lower abs. My heart goes out to everyone who understands!
I did. She told me they use water-soluble barium and should not present an issue. To be safe, I’m going to do an enema after.
I just wanted to share my experience as what may or may not be related to the MRI defography . In 2012 I had a defography using barium which showed a modest size rectocele. Two weeks later I ended up with a bowel obstruction or better known as a sigmoid voluvulus. They had to perform emergency surgery and remove 2 inches of my sigmoid colon. Please discuss your concerns with your doctor.
My dr has suggested an X-ray defography. I believe I read somewhere in one of these posts, I could be mistaken as I read much everywhere!, but I thought it was advised not to use barium with a severely redundant/tortuous colon as to the possibility of the residual barium “hardening-up in all those bends and kinks and causing much difficulty after testing is completed. Anyone recall this or had this test done and had good or bad experience. My previous dr would have done MRI defography which does not use barium. My new dr feels xray gives much better results.
Please try MCT oil. Just a teaspoon in your tea or coffee in the morning, will sort out constipation. It taste like nothing and you will go every day!
I’d love to hear more!
what is Amaranth?