Anyone else have a Redundant / Tortuous Colon?

Posted by onaquest @onaquest, Nov 7, 2018

Hello. Anyone else out there that has a redundant/ tortured colon? I was diagnosed with this a few years ago. I’m usually ok, but if I get constipated, I get sick for a week or two. Last year my gastroenterologist referred me to a surgeon for urgent surgery to remove some of my colon. The surgeon I ended up seeing (not on the recommended list by my gastro doc due to others not available for a long time) said he believed I could live with the redundant colon if I followed a low FODMAP diet. I tried the diet religiously, scientifically (I’m a scientist), and I found it’s not the food I eat that causes these bouts of constipation. The only item I’ve found that might cause the bouts is coffee every day. An occasional coffee seems fine. What has helped me stay regular in a big way is Benefiber (or any pure wheat dextrose generic) three times per day. Lots of fluid.

My gastro doc was upset with the surgeon and said I’d regret not having the surgery. He fears I will end up in an emergency situation. I have searched the Mayo site and don’t find anything about redundant/ tortured colon. Are any Mayo docs doing research or treat this condition? Anyone else suffer from this too?
Thank you! -Jayne

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Profile picture for kjn72 @kjn72

JN: I am a 72y/o woman with severe constipation & a redundant colon. 7 years ago I had 14" of colon removed and 3 additional surgeries for a rectocele, entrocele and another bowel prolapse. I have been severely constipated before and after surgeries. I have tried evert kind of otc med, laxatives, fibers and many prescribed meds, drink 1/2 gallon of water, swim 4-5 times weekly, do zumba nothing works. I have thrown up after 6 days of not going. I have pains in right upper and left lower abdominal areas. I am enema dependent to empty my bowels, it is a painful process and can last for 3 hours every time I do it. 2 surgeons recommended colectomy, 1 did not. 1 GI recommended surgery, 2 did not. I am a young 72 and want to continue living actively with less difficulty. Anyone have surgery that worked, and what kind to eliminate this problem? I have been told that colectomy can also produce bloating, gas, things I am already dealing with. Thank you for your help
JN

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I supposedly have a severely redundant colon (just a nicer way to say it) and have had constipation for a good long time. Lately (I am 68), I have found that meat slows transit time, which leads to constipation, so I just eat fish (not much), egg whites, pea protein powder, and Lactaid nonfat milk as protein sources as I am intolerant to a legion of other protein sources (as well as FODMAP intolerant and grain intolerant). I add Bragg apple cider vinegar to each meal (the regular vinegar) or one can take the Bragg pill form. I find that helps with my redundant colon constipation. If you don't have enough stomach acid, your system can't prepare the food material to "move along." It has been a game changer. In addition, I don't eat regular-sized meals, but may six smaller ones, depending on my appetite. I also use mineral oil as my laxative. I find that, as a "mere" lubricant, it works better (and gentler) than the OTC softeners and stimulants. I take it at bedtime, away from food (supposed to do that as the oil can interfere with vitamin/mineral absorption from food otherwise). I don't need it often as the apple cider vinegar prevents constipation (via better digestion). I also notice that I tend toward constipation if I don't get adequate sleep. Rest to digest, perhaps. I hope you get some mileage out of these ideas, which I note one seldom, if ever, hears from MDs.

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Profile picture for kjn72 @kjn72

I am 72 with the same problems for years. About 8 years ago my then doctor recommended that 14" of colon be removed and I had it removed. I was left with continued severe constipation and ultimately became enema dependent. I read on this site how a woman was experiencing with the same issues until she found OTC Prunelax. I purchased it from Amazon and have been using it daily. For me, 2 and 1/4tablets work combined with 1/2 ducolax. I had to cxperiment to find the right dosage for me. Good luck.

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Kjn72.
Do you know if the wavy part of the colon was removed ?
I don’t understand why it wouldn’t alleviate the passage and speed of food ?
Regards
Sheila

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Profile picture for kjn72 @kjn72

JN: I am a 72y/o woman with severe constipation & a redundant colon. 7 years ago I had 14" of colon removed and 3 additional surgeries for a rectocele, entrocele and another bowel prolapse. I have been severely constipated before and after surgeries. I have tried evert kind of otc med, laxatives, fibers and many prescribed meds, drink 1/2 gallon of water, swim 4-5 times weekly, do zumba nothing works. I have thrown up after 6 days of not going. I have pains in right upper and left lower abdominal areas. I am enema dependent to empty my bowels, it is a painful process and can last for 3 hours every time I do it. 2 surgeons recommended colectomy, 1 did not. 1 GI recommended surgery, 2 did not. I am a young 72 and want to continue living actively with less difficulty. Anyone have surgery that worked, and what kind to eliminate this problem? I have been told that colectomy can also produce bloating, gas, things I am already dealing with. Thank you for your help
JN

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Prunelax (OTC) is good for constipation and not as expensive as Trulance or Linzess!
Then ordering it from Amazon and not getting it at CVS or Walgreens is even cheaper !!!

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Profile picture for kjn72 @kjn72

JN: I am a 72y/o woman with severe constipation & a redundant colon. 7 years ago I had 14" of colon removed and 3 additional surgeries for a rectocele, entrocele and another bowel prolapse. I have been severely constipated before and after surgeries. I have tried evert kind of otc med, laxatives, fibers and many prescribed meds, drink 1/2 gallon of water, swim 4-5 times weekly, do zumba nothing works. I have thrown up after 6 days of not going. I have pains in right upper and left lower abdominal areas. I am enema dependent to empty my bowels, it is a painful process and can last for 3 hours every time I do it. 2 surgeons recommended colectomy, 1 did not. 1 GI recommended surgery, 2 did not. I am a young 72 and want to continue living actively with less difficulty. Anyone have surgery that worked, and what kind to eliminate this problem? I have been told that colectomy can also produce bloating, gas, things I am already dealing with. Thank you for your help
JN

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So, many more expensive products contain Magnesium Oxide. I just take the vitamin form of Magnesium Oxide, works for me and costs much less. I do also follow a vegan diet and gluten-free diet. The only gluten-free thing I eat is homemade gluten-free pumpkin muffins. I eat no bread or flour products except I use Wasa crackers to put my black bean burger on for lunch.

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Profile picture for marmoldav @marmoldav

Hello. I just had my first colonoscopy and the report on it says I have a tortuous colon. For some time now I have complained to my doctor that I get full after eating very little. I had loads of test done that tested my stomach and at what speed it emptied. They said everything was fine. I still have the problem and, to be honest, it's worse since the colonoscopy. I have had no contact from the doctor since the colonoscopy about the results (tortuous colon and a tubular adenoma) which I find strange and if I don't here soon I'm going to ask my primary care doctor what to do. I'm wondering if the tortuous colon is the cause for the full feeling and how it will effect future colonoscopies because with the tubular adenoma I think I'm gonna need colonoscopy more than every 10 years. If anyone has a similar experience I'd like to hear about it.

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So, Cleanse More by Renew Life and Magnesium O7 are both just Magnesium Oxide. I just take the vitamin form of Magnesium Oxide, works for me and costs much less. I do also follow a vegan diet and gluten-free diet. The only gluten-free thing I eat is homemade gluten-free pumpkin muffins. I eat no bread or flour products except I use Wasa crackers to put my black bean burger on for lunch.

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Profile picture for sheilagreen @sheilagreen

It’s becoming a full time job dealing with a long and torturous colon ( redundant ).
Lifelong constipation, now age 73 it’s getting me down.
I saw a specialist yesterday and he suggested a combination of laxatives with occasional suppositories.
The laxatives of which I have tried many work for a few weeks and then stop 🤷‍♀️
I think the only way would be to cut a length of it out , but he said that’s a bit dramatic, we should try something that may work for me ???
I too think that it aggravates my backache, and bloating is like being pregnant!!!!!🥹🥹
I wish I had the answer……
Good luck everyone…

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I am 72 with the same problems for years. About 8 years ago my then doctor recommended that 14" of colon be removed and I had it removed. I was left with continued severe constipation and ultimately became enema dependent. I read on this site how a woman was experiencing with the same issues until she found OTC Prunelax. I purchased it from Amazon and have been using it daily. For me, 2 and 1/4tablets work combined with 1/2 ducolax. I had to cxperiment to find the right dosage for me. Good luck.

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Profile picture for marjoriem @marjoriem

Thank you darcystaples. Has the Cleanse More caused you any emergency bathroom situations? I just might give this a try.

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Not really.

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Profile picture for marmoldav @marmoldav

What is extensive about your prep, if you don't mind me asking? Mine was discovered during my first colonoscopy and I'm wondering if my prep next time will be different.

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I have not been diagnosed with this condition, but for my recent colonoscopy I had to prep a week in advance of the final prep day. I had to use a full packet of miralax every morning and limit my diet to chicken baked or boiled (yuck) and eggs. The miralax did nothing for me at all, but thankfully I cleaned out on the prep day.

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Profile picture for kjn72 @kjn72

JN: I am a 72y/o woman with severe constipation & a redundant colon. 7 years ago I had 14" of colon removed and 3 additional surgeries for a rectocele, entrocele and another bowel prolapse. I have been severely constipated before and after surgeries. I have tried evert kind of otc med, laxatives, fibers and many prescribed meds, drink 1/2 gallon of water, swim 4-5 times weekly, do zumba nothing works. I have thrown up after 6 days of not going. I have pains in right upper and left lower abdominal areas. I am enema dependent to empty my bowels, it is a painful process and can last for 3 hours every time I do it. 2 surgeons recommended colectomy, 1 did not. 1 GI recommended surgery, 2 did not. I am a young 72 and want to continue living actively with less difficulty. Anyone have surgery that worked, and what kind to eliminate this problem? I have been told that colectomy can also produce bloating, gas, things I am already dealing with. Thank you for your help
JN

Jump to this post

It’s becoming a full time job dealing with a long and torturous colon ( redundant ).
Lifelong constipation, now age 73 it’s getting me down.
I saw a specialist yesterday and he suggested a combination of laxatives with occasional suppositories.
The laxatives of which I have tried many work for a few weeks and then stop 🤷‍♀️
I think the only way would be to cut a length of it out , but he said that’s a bit dramatic, we should try something that may work for me ???
I too think that it aggravates my backache, and bloating is like being pregnant!!!!!🥹🥹
I wish I had the answer……
Good luck everyone…

REPLY
Profile picture for marmoldav @marmoldav

What is extensive about your prep, if you don't mind me asking? Mine was discovered during my first colonoscopy and I'm wondering if my prep next time will be different.

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Hello marvoldav, I'm not sure I understand your question. Can you provide a little more information on what you are asking?

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