Anyone else have a Redundant / Tortuous Colon?
Hello. Anyone else out there that has a redundant/ tortured colon? I was diagnosed with this a few years ago. I’m usually ok, but if I get constipated, I get sick for a week or two. Last year my gastroenterologist referred me to a surgeon for urgent surgery to remove some of my colon. The surgeon I ended up seeing (not on the recommended list by my gastro doc due to others not available for a long time) said he believed I could live with the redundant colon if I followed a low FODMAP diet. I tried the diet religiously, scientifically (I’m a scientist), and I found it’s not the food I eat that causes these bouts of constipation. The only item I’ve found that might cause the bouts is coffee every day. An occasional coffee seems fine. What has helped me stay regular in a big way is Benefiber (or any pure wheat dextrose generic) three times per day. Lots of fluid.
My gastro doc was upset with the surgeon and said I’d regret not having the surgery. He fears I will end up in an emergency situation. I have searched the Mayo site and don’t find anything about redundant/ tortured colon. Are any Mayo docs doing research or treat this condition? Anyone else suffer from this too?
Thank you! -Jayne
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The ingredients of Prunelax are: Active Ingredients: Prunes extract, Cassia angustifolia vahl (which is Senna), Cassia senna L - so I just eat prunes on my morning oatmeal and I use Senna before bed. I've struggled since I was 16 and had emergency surgery for adhesions from a previous surgery. The surgery when I was 16 resulted in the Redundant Colon. I've had Ovarian Cancer surgery 3xs which has only made chronic constipation worse. I am now 73 and live on a restricted diet -vegetarian and NO flour products - NONE. Most of the OTC products can be obtained cheaper by using the natural products such as Prunes and Senna. Senns is very cheap to buy.
Consider trying humble mineral oil. I have what you have.
Buy the Magnesium Oxide as a vitamin supplement. Much cheaper than Renew Life. I take 750mg of Magnesium Oxide a day. Many name brands that use it have higher doeses. Around 70% of the magnesium you consume is expelled from your body within 24 hours which is why so many people experience a deficiency.
I also checked out PruneLax and found the same thing. It can be one cause of melanosis coli . Glad you shared. It can change the color of your colon. My research said it is not life threatening. It causes a dark brown mucosa pigmentation in the colon. It clears up if you stop the cause of it, but can take awhile. Don't even know you have it, usually detected by a colonoscopy. But something to research and think about.
I have a redundant colon too( noted on colonoscopy)... Not sure if that had given me constipation over the years or not... Interestingly enough I had a rectocele which I just had repaired last summer... I attribute that more to having 3 children.. I'm about 5 '0 and weigh 100 lbs .... but I also strained and had a lot of constipation for a lot of my life.. I was never told anything was abnormal about the redundant colon but assume it takes longer for waste to travel... One thing I use that is natural and really helps is a mixture of 1 cup applesauce, 1 cup prune juice, 1 cup wheat bran. I take a couple of TBS per day and it keeps things moving...
I had surgery 3 years ago. I learned the redundant colon had caused the rectocele I had repaired several years earlier. When I hear urinary issue it sounds like possible rectocele. Sadly in my area 2 different surgeons do the two surgeries.
Make no mistake although Robotic surgery lessons scar tissues and healing time incision wise its still a major! surgery. Good luck!
Can anyone tell me what surgery is like for a redundant tortuous colon please?
How long are you in the hospital? What’s the recovery like. I live alone so wondering if I need someone with me awhile. Thanks
Ive had these same col9n peoblems for almost 30 years now. Im looking for help too. Ive been to 2 different may clinics and all they do is ignore all my tests and paperwork and refuse to do anything all while playing dumb. I finally after over a year of tests and appointments had a surgeon aggree to operate and look for the problem. As soon as that happened my insurance was no long good in az and i couldnt get help. So i moved to florida hoping to get surgery in mayo jacksonville but the surgeon there rufused and help. Got bounced around and surgeon and gi refused to send any supporting info to insurance at all. Lots of bills. Im looking to try and travel overseas for surgery since 30 years in the USA all i got were surgeons lying and playing dumb.
Anyone done any research on overseas colon surgery. Im hoping they just find a hernia and adhesions and solve my problems. I havent seen a dr in about 6 years bc all they do is drain my wallet and refuse service. Help help help!
I have IBS-C and a severely redundant colon. Before I got on top of it, I had lost 25 lb and was technically underweight. This is what I learned works for me, through trial and error:
NOS: No grains (including no gluten) and no lactose. No legumes. Trace animal/milk fat. No beef or poultry. No fruit. No to most low and all high FODMAP foods as rated by the Monash University app. No coffee, caffeine, carbonation, most herbal teas. No to most vegetables. No sugar or most liquid natural sweeteners. No artificial sweetener. No hot pepper spice. No to large meals. No to bulking fiber supplements. No emotional stress (good emotions and bad emotions - however I am starting to see a GI psych to engage in a seven-week hypnosis program to cut the connection between my emotions and gut - they call it creating muscle memory. Recommended by my gastro doc.)
YESES: Green plantain flour, fresh green and hard plantains, pea protein isolate, potato starch, egg whites, low fat fish (tilapia, cod, shrimp, Lactaid nonfat milk, 1-2 heaping teaspoons of Lactaid cottage cheese/day. Brewers Yeast, Yeast, Chia (in moderation and well soaked), Swiss chard (no stems), tender kale (no stems), collard greens, common radish, the green part only of green onions, patty pan squash, mung bean sprouts, kobocha squash (Asian grocery), parsnip, fresh and dried herbs, olive oil (not a lot), Peppermint tea, lattes with my ingredients (I make a turmeric one), Rhubarb. Pure stevia. 1-3 raw brazil nuts. Walnuts for baking. A bit of maple syrup. Korean 100% sweet potato noodles. Maille dijon mustard, trace Mayo, A couple of olives, a few capers. Fody brand condiments, in small quanities. 0.5 teaspoon Bragg's apple cider vinegar with every meal (to give me more acid to digest my food -- a key change for me). 4-6 small meals a day. Always a warm drink or tap water to sip. My system doesn't work well without that. Mineral oil as a laxative, at bedtime, 3/8 - 1/2 teaspoon. Note: my gut is hypersensitive, so both the oil and vinegar are only needed in small quantities. Adequate sleep - lack of such disregulates my colonic processes.
End notes: I don't get constipated (incomplete evacuation) much due to the vinegar. Emotional distress (from politics for me) really sent my IBS-C into overdrive and triggered my need for a very limited diet. For brief times I was on a small dose of an anti-anxiety med that had a side effect of helping IBS-C. Then I stopped, and for some reason, some months later, I was depressive and then again on a small dose of an anti-depressant and then stopped. I have used relaxation apps and the IBS-C, doctor recommended Mahana app (the free, initial series of information) and still do its square breathing. I do stomach massage as laid out by the National Health Service of England.
IBS-C is functional. I think a redundant colon contributes to its manifestation. I can elaborate on the above if you want, in any way.
Keep trying until you find what works for you. A GI/IBS dietitian may help or the GI psych route I am now taking.
Have you tried abdominal massage? I do it every morning before I get out of bed. Then there are acupuncture points that you can do with belly breathing that also helps.