Anyone else have a Redundant / Tortuous Colon?

Posted by onaquest @onaquest, Nov 7, 2018

Hello. Anyone else out there that has a redundant/ tortured colon? I was diagnosed with this a few years ago. I’m usually ok, but if I get constipated, I get sick for a week or two. Last year my gastroenterologist referred me to a surgeon for urgent surgery to remove some of my colon. The surgeon I ended up seeing (not on the recommended list by my gastro doc due to others not available for a long time) said he believed I could live with the redundant colon if I followed a low FODMAP diet. I tried the diet religiously, scientifically (I’m a scientist), and I found it’s not the food I eat that causes these bouts of constipation. The only item I’ve found that might cause the bouts is coffee every day. An occasional coffee seems fine. What has helped me stay regular in a big way is Benefiber (or any pure wheat dextrose generic) three times per day. Lots of fluid.

My gastro doc was upset with the surgeon and said I’d regret not having the surgery. He fears I will end up in an emergency situation. I have searched the Mayo site and don’t find anything about redundant/ tortured colon. Are any Mayo docs doing research or treat this condition? Anyone else suffer from this too?
Thank you! -Jayne

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Profile picture for annbk @annbk

I recently had my first colonoscopy. When I read the notes, I was surprised to read that I have a "loopy" colon. My lifelong chronic constipation suddenly made sense. For the past 20 years, I have successfully treated the problem (without knowing the cause) by eating at least 1/4 cup of amaranth per day. It works amazingly well. If anyone wants to try it and would like recipes, let me know.

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I buy a granola with amaranth and other grains in it. Purely Elizabeth Ancient Grain Granola

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Profile picture for annbk @annbk

I recently had my first colonoscopy. When I read the notes, I was surprised to read that I have a "loopy" colon. My lifelong chronic constipation suddenly made sense. For the past 20 years, I have successfully treated the problem (without knowing the cause) by eating at least 1/4 cup of amaranth per day. It works amazingly well. If anyone wants to try it and would like recipes, let me know.

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I went to a very good health food store and they did not know anything about
amaranth. Where do you purdhase it and do you have guidelines for it's use. Thank you for your information!

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Profile picture for annbk @annbk

I recently had my first colonoscopy. When I read the notes, I was surprised to read that I have a "loopy" colon. My lifelong chronic constipation suddenly made sense. For the past 20 years, I have successfully treated the problem (without knowing the cause) by eating at least 1/4 cup of amaranth per day. It works amazingly well. If anyone wants to try it and would like recipes, let me know.

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Yes to recipes! I’ve had chronic constipation for as long as I can remember.

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Profile picture for annbk @annbk

I recently had my first colonoscopy. When I read the notes, I was surprised to read that I have a "loopy" colon. My lifelong chronic constipation suddenly made sense. For the past 20 years, I have successfully treated the problem (without knowing the cause) by eating at least 1/4 cup of amaranth per day. It works amazingly well. If anyone wants to try it and would like recipes, let me know.

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I'd also like to see the recipes. I'm vegetarian so would like recipes without meat if you have them. I include a lot of the grains like farro and amaranth and really like them.

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Profile picture for dedhambeth @dedhambeth

I’d love some recipes!

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Would really like to see your recipes!

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Profile picture for annbk @annbk

I recently had my first colonoscopy. When I read the notes, I was surprised to read that I have a "loopy" colon. My lifelong chronic constipation suddenly made sense. For the past 20 years, I have successfully treated the problem (without knowing the cause) by eating at least 1/4 cup of amaranth per day. It works amazingly well. If anyone wants to try it and would like recipes, let me know.

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I’d love some recipes!

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Profile picture for annbk @annbk

I recently had my first colonoscopy. When I read the notes, I was surprised to read that I have a "loopy" colon. My lifelong chronic constipation suddenly made sense. For the past 20 years, I have successfully treated the problem (without knowing the cause) by eating at least 1/4 cup of amaranth per day. It works amazingly well. If anyone wants to try it and would like recipes, let me know.

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I kind of think of my colon like the kitchen sink. If you stuff a lot of stuff down the sink it may get stopped up. A little at a time works better. I eat tomatoes as I love them and I eat potato but very seldom. I only eat potato if I am at a restaurant and I eat a few bights.
Our issues will never end so just get with the program😻
That is difficult for me to admit and understand.

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Profile picture for judithclark @judithclark

I was also born in 1952. The stool softener I take is Docusate Sodium without a stimulant. Also snack on prunes, prune juice and my surgeon says white grape juice. All this does help. Also eat many times a day. No large meals. Soups are wonderful as you can use all of your veggies you grow. Play with the recipes and have fun. Remember it’s not the what you put in your mouth, it is the texture. I make a good chicken soup with lots of veggies. I add a dash of Cayenne pepper. This adds a lot of flavor. Some with microbiom issues think you shouldn’t have spicy things. You should….remember texture.
I don’t know if soups will make you go more, but you will feel better. I do. Large hearty meals are the worst.

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Thank you sister Judith,
Do you take the Docusate Na daily? What a great regularity summer I had. Our prune tree über produced so I ate them constantly and really didn't have much trouble with regularity. Yes great idea to include lots of veggies in soup. Darn about the greens for salad - my ND said a quick dip of salad greens in hot water or another hot food cooking could help.
You probably don't have arthritis, right? Fortunately I don't have much in my joints but I avoid the nightshade family to keep it that way. We don't eat potatoes, tomatoes, hot and regular peppers, eggplant, paprika or smoke because they make joints hurt. When I did reflexology I shared with my clients who had arthritis and they appreciated having less pain. We've been off nightshades for at least 15 years. It makes a big difference because we were both in bad accidents in our youth that hurt our bodies making them more susceptible to arthritis.
Drats about not eating big meals. I often have a low level of feeling hungry, I come from an obese overeating family, I am about the right weight not being overweight, partly because I am active. I do have an urge to eat and with the family history it is hard to stop. I also think I need to rethink intermittent fasting. I eat at 9 am and 3 pm and pretty much fast the rest of the day. It just might not fit me? We aren't out much and have lots to do at home so go to bed early and get up early.
I hope for lots of prunes again but you never know.
Thanks again

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Profile picture for farmersmith @farmersmith

Hi Judith
I appreciate your feedback thanks! Actually I go to MD's as little as possible and rely on Naturopaths, a better fit for me. I used to study natural healing and am a retired Reflexologist. Still I find few recommendations or health providers who understanding RC. I want to go natural because I can't stand drugs. I will try more soup which is my husband's favorite anyways. Gosh I didn't think of downing more food in liquid form. Hells bells I drink a quart of warm water and 2 cups of coffee, I don't care for, each morning why not do more soups through the day!? Darn it anyway, I raise lots of our food organically and want salad and the carrot sticks and winter squash... Cabbage family may not be so good for RC? Hey what I don't like about softeners you buy is they all say don't use more than a week because of things like lowering your electrolytes or they're sweetened by aspartame or like Senna or rhubarb that are natural they also take your electrolytes down. Could you share what you use? Also I don't plan surgery.

Thanks again, Lorna born 1952, bowel issues nearly my whole life. I am up to the challenge of my ND, Dr. Matt who said if I can find a solution for pain in my leg from a 1972 auto accident deformity (topical pounce pounce pounce with stinging nettle - check out substance P it is when our bodies get chronic pain and our brain gets a message about pain and mixed up. The AMA uses hot pepper cream I learned from my late mom's foot dr so I tried our nettles last July and it's great) Anyway he thinks I can figure out something that works for me. It was just December 2023 I learned about having the redundant colon. It is what it is, like you say.

Thanks again, best to you, @farmer

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I was also born in 1952. The stool softener I take is Docusate Sodium without a stimulant. Also snack on prunes, prune juice and my surgeon says white grape juice. All this does help. Also eat many times a day. No large meals. Soups are wonderful as you can use all of your veggies you grow. Play with the recipes and have fun. Remember it’s not the what you put in your mouth, it is the texture. I make a good chicken soup with lots of veggies. I add a dash of Cayenne pepper. This adds a lot of flavor. Some with microbiom issues think you shouldn’t have spicy things. You should….remember texture.
I don’t know if soups will make you go more, but you will feel better. I do. Large hearty meals are the worst.

REPLY
Profile picture for judithclark @judithclark

I also have a redundant colon along with adhesions and mobile cecum. I have intermittent intestinal obstructions as well. You can drive yourself crazy doing the right thing but it won’t help. Sometime I think doctors give you stuff to eat and do to keep you busy and off their back.

I have been at this too long however and done it all. A tortuous colon is a mechanical thing and no amount of microbiom blah…blah….blah crap will work. It is more the texture that goes through loops. Think of your intestines more like the kitchen sink and what can go down the garbage disposal. If you get stopped up eat only liquids. I take a stool softener daily. Since i am prone to obstructions, i don’t take stimulants. My surgeon told me that you can’t open a locked door and stimulants will make things worse.

Trying different things the doctor tells you to take or do makes him feel that he is proactive to make everyone feel better. Don’t bother as none of it helps. Don’t eat raw veggies. The fiber just stops up the works.

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Hi Judith
I appreciate your feedback thanks! Actually I go to MD's as little as possible and rely on Naturopaths, a better fit for me. I used to study natural healing and am a retired Reflexologist. Still I find few recommendations or health providers who understanding RC. I want to go natural because I can't stand drugs. I will try more soup which is my husband's favorite anyways. Gosh I didn't think of downing more food in liquid form. Hells bells I drink a quart of warm water and 2 cups of coffee, I don't care for, each morning why not do more soups through the day!? Darn it anyway, I raise lots of our food organically and want salad and the carrot sticks and winter squash... Cabbage family may not be so good for RC? Hey what I don't like about softeners you buy is they all say don't use more than a week because of things like lowering your electrolytes or they're sweetened by aspartame or like Senna or rhubarb that are natural they also take your electrolytes down. Could you share what you use? Also I don't plan surgery.

Thanks again, Lorna born 1952, bowel issues nearly my whole life. I am up to the challenge of my ND, Dr. Matt who said if I can find a solution for pain in my leg from a 1972 auto accident deformity (topical pounce pounce pounce with stinging nettle - check out substance P it is when our bodies get chronic pain and our brain gets a message about pain and mixed up. The AMA uses hot pepper cream I learned from my late mom's foot dr so I tried our nettles last July and it's great) Anyway he thinks I can figure out something that works for me. It was just December 2023 I learned about having the redundant colon. It is what it is, like you say.

Thanks again, best to you, @farmer

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