Anyone else have a Redundant / Tortuous Colon?
Hello. Anyone else out there that has a redundant/ tortured colon? I was diagnosed with this a few years ago. I’m usually ok, but if I get constipated, I get sick for a week or two. Last year my gastroenterologist referred me to a surgeon for urgent surgery to remove some of my colon. The surgeon I ended up seeing (not on the recommended list by my gastro doc due to others not available for a long time) said he believed I could live with the redundant colon if I followed a low FODMAP diet. I tried the diet religiously, scientifically (I’m a scientist), and I found it’s not the food I eat that causes these bouts of constipation. The only item I’ve found that might cause the bouts is coffee every day. An occasional coffee seems fine. What has helped me stay regular in a big way is Benefiber (or any pure wheat dextrose generic) three times per day. Lots of fluid.
My gastro doc was upset with the surgeon and said I’d regret not having the surgery. He fears I will end up in an emergency situation. I have searched the Mayo site and don’t find anything about redundant/ tortured colon. Are any Mayo docs doing research or treat this condition? Anyone else suffer from this too?
Thank you! -Jayne
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Sorry..typing stinks.
Yes, please. Not fsmiluar with this; woild like recipes.
LindaThomas
Have you thought about going to Mayo? I asked because you will need a focused group of specialists I think. I hope you find help.
Hi there,
I just found out I have this too. For the past few years I have had a terrible time digesting anything. I’m hardly ever regular. It’s either constipation or diarrhea. I had my gallbladder taken out in 2021 and it has just gotten worse. I also have other medical issues but this one hurts every day just like my failed back surgery. I felt it was important to let you know you weren’t alone. Kind regards.
Yes. About a cup.
Inulin, from Holland and Barret is miraculous.
It’s almost pure fibre , a dessert spoonful daily on cereal or any meal actually works wonders…
Along with a daily sachet of CosmoCol ….👌
Hope it helps , it’s taken me 60 years to find this solution…
Best,
Sheila x
Thank you!!!!!
Does that work well? How much and how often?
Motility Activator 3 in a.m.+2 bedtime, Mirilax twice daily, magnesium, and Atrantil, digestive enzymes, Biocidin for GI issues.
How have you been treating your CIC? Thanks!