Anyone else have a Redundant / Tortuous Colon?

Posted by onaquest @onaquest, Nov 7, 2018

Hello. Anyone else out there that has a redundant/ tortured colon? I was diagnosed with this a few years ago. I’m usually ok, but if I get constipated, I get sick for a week or two. Last year my gastroenterologist referred me to a surgeon for urgent surgery to remove some of my colon. The surgeon I ended up seeing (not on the recommended list by my gastro doc due to others not available for a long time) said he believed I could live with the redundant colon if I followed a low FODMAP diet. I tried the diet religiously, scientifically (I’m a scientist), and I found it’s not the food I eat that causes these bouts of constipation. The only item I’ve found that might cause the bouts is coffee every day. An occasional coffee seems fine. What has helped me stay regular in a big way is Benefiber (or any pure wheat dextrose generic) three times per day. Lots of fluid.

My gastro doc was upset with the surgeon and said I’d regret not having the surgery. He fears I will end up in an emergency situation. I have searched the Mayo site and don’t find anything about redundant/ tortured colon. Are any Mayo docs doing research or treat this condition? Anyone else suffer from this too?
Thank you! -Jayne

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@hello1234

Hi @sickofbeinsick1 😊
Wow, it sounds like your gastro doc added everything but the kitchen sick on your colonoscopy results! Do you feel okay or do you have symptoms? Do you have problems with constipation or so far, so good?

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I have symptoms from hell! I can’t eat solid food, I’ve been on a soft diet for going on 3 years. The thing is, after 5-6 colonoscopies, they diagnose all, but don’t give any treatment…other than “stop dairy”, FODMAP, hi fiber low fiber. It’s getting so bad, I had 4 bites of a fried chicken breast…spread out over about 2 hours, I was driving. By the time I got home, I was in excruciating pain & ended up vomiting 🤮. THATS a 1st…for me. Needless to say, I won’t do that again. I did have a whole breast just over a year ago, & I was ok 🤷‍♀️
I’m so lost & don’t know what to do. Soft diet is getting old

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@notmoff

@Sally123 - I appreciate the warning to keep in mind that your shared ideas are only what you are trying NOW.
I feel the same way about my shared info.
Traditional Medicinals Smooth Move Senna tea does work well for me also. I note that each cup of tea provides 20 mg of sennosides vs Wal Mart's Senna-S capsule at 8.6 sennosides per capsule. I'm curious to know what your gastroenterologist will have to say about it.
I appreciate all the shared ideas in this group.

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Well that explains why I barely left the bathroom yesterday! Thanks for the info! Never even compared the amounts. Won’t do that again!

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@hello1234

Hi @notmoff 😊
I agree with you about minimizing red meat in your diet to optimize your heart health and to prevent cancer. However, I also believe an occasional piece of lean meat has the benefits of iron, an excellent protein source, protein is good for bones, etc. I am stumbling around to find answers too. My philosophy has been to try to aim for a "little bit of everything" in moderation. I try to "eat the rainbow" (greens, sweet potatoes, carrots, beets, etc), I try to eat a little fish but try to avoid too much mercury, I try to eat a little bit of meat but try to avoid fatty cuts and antibiotics, etc. It's difficult to navigate food choices because everything has a ying and a yang. It's like my saline IV situation. I thought I was hydrating my kidneys, but I was actually doing great damage to my body and brain by over drinking the water. So, I try to do a little for each part of my body. My bones like dairy, my kidneys like moderate levels of water, my skin likes greens, potassium levels like a banana, etc. I think you and I ...and everyone on Connect are discussing options because there are no clear answers, that's why I like to hedge my bet! Let's keep sharing whatever we discover along the way! ❤

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@hello1234 - Moderation in all things sounds very sensible.
Thanks for sharing more information.
I'm planning to have fish for dinner, although I understand its better to have it early in the day - loosening my grip on my vegan direction.

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@sallyw133

Had a virtual visit with my dietician yesterday. Though the low fiber diet has definitely made me feel better from the tortuous colon standpoint, I am still struggling with my slow motility. The diet does not help with that. She has suggested prune juice and smooth move tea to help with that. It does have senna so I am going to check with my gi on regular use of it.
I feel I must mention that though I am more than happy to share all my information, it does make me a little nervous. I know you all know this already but I don’t want anyone to try these ideas without consulting their doctors or to at least realize these are things that may be working for ME NOW. I went into the low FODMAP diet last year out of desperation, under the guidance of a trained dietician and ended up in the ER with an impacted colon. So, I am now cautious of what I read and what I try. But this diet is actually the same they use for gasteoparesis and I did run it by my gi. The tea actually did work really well!!!

Jump to this post

@Sally123 - I appreciate the warning to keep in mind that your shared ideas are only what you are trying NOW.
I feel the same way about my shared info.
Traditional Medicinals Smooth Move Senna tea does work well for me also. I note that each cup of tea provides 20 mg of sennosides vs Wal Mart's Senna-S capsule at 8.6 sennosides per capsule. I'm curious to know what your gastroenterologist will have to say about it.
I appreciate all the shared ideas in this group.

REPLY

Hi @sallyw133 😊
Thanks so much for the update on your virtual visit. Don't be nervous about people taking advice. I think we all know that trying to find an answer to these colon issues is one huge personal experiment! "Too much fiber, not enough fiber, too much water, not enough water, what worked last week doesn't work this week, etc". But it's very helpful (and comforting) to know what people are trying and what seems to be working!
I smiled when you brought up prune juice and smooth tea because that was my sweet grandmother's answer to any health issue. She was from the old country, so her treatments never involved the pharmacy. All treatments came from her kitchen and prune juice was MAJOR! She lived to 98, so maybe she was on to something! ❤ Anyway, thank you so much for posting about your visit and reminding me to try my Nana's solution. I am going to buy some prune juice and smooth tea today and enjoy some loving memories.... Heck, maybe it will work! Thank you again @sallyw133 and please continue to post about your journey and I will too. 😊

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Had a virtual visit with my dietician yesterday. Though the low fiber diet has definitely made me feel better from the tortuous colon standpoint, I am still struggling with my slow motility. The diet does not help with that. She has suggested prune juice and smooth move tea to help with that. It does have senna so I am going to check with my gi on regular use of it.
I feel I must mention that though I am more than happy to share all my information, it does make me a little nervous. I know you all know this already but I don’t want anyone to try these ideas without consulting their doctors or to at least realize these are things that may be working for ME NOW. I went into the low FODMAP diet last year out of desperation, under the guidance of a trained dietician and ended up in the ER with an impacted colon. So, I am now cautious of what I read and what I try. But this diet is actually the same they use for gasteoparesis and I did run it by my gi. The tea actually did work really well!!!

REPLY

Hi @notmoff 😊
I agree with you about minimizing red meat in your diet to optimize your heart health and to prevent cancer. However, I also believe an occasional piece of lean meat has the benefits of iron, an excellent protein source, protein is good for bones, etc. I am stumbling around to find answers too. My philosophy has been to try to aim for a "little bit of everything" in moderation. I try to "eat the rainbow" (greens, sweet potatoes, carrots, beets, etc), I try to eat a little fish but try to avoid too much mercury, I try to eat a little bit of meat but try to avoid fatty cuts and antibiotics, etc. It's difficult to navigate food choices because everything has a ying and a yang. It's like my saline IV situation. I thought I was hydrating my kidneys, but I was actually doing great damage to my body and brain by over drinking the water. So, I try to do a little for each part of my body. My bones like dairy, my kidneys like moderate levels of water, my skin likes greens, potassium levels like a banana, etc. I think you and I ...and everyone on Connect are discussing options because there are no clear answers, that's why I like to hedge my bet! Let's keep sharing whatever we discover along the way! ❤

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@hello1234

Hi @notmoff 😊
Did your internist say NO dairy? I eat dairy every day with all my meals in hope of reaching my daily intake of calcium for my osteoporosis. I heard it's better for us to reach our calcium goal with food rather than taking supplements Why no meat and no dairy? Your diet with lentils, sweet potatoes, greens sounds very healthy, but I curious about all the restrictions.

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Although my internist is a vegan, she did not advise I omit dairy, nor meat. I chose her because she was communicative, pleasant, recommended and she was familiar with dietary and lifestyle issues.
My limited family history indicates a strong risk of heart disease and cancer, * research shows both are considerably reduced on a vegan diet, so I decided on my own to adopt it.
With the variety of plant foods available, it doesn't feel restrictive although I do still salivate when I smell my downstairs neighbors frying meat!
I am still learning through trial and error. * My admittedly limited research: Books & Youtube videos by Dean Sherzai, Will Bulsiewicz, Caldwell Esselstyn , John McDougall, & Robynn Chutkan.
As a retired person with limited means in a limited health care system, I'm stumbling around for answers as are most of the people in this group.
Can you recommend reliable sources of information?

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@notmoff

Sorry to hear you have osteoporosis also.
I decided on diet and exercise instead of bisphosphonates because I understood they decrease bone resorption (?) but not fractures. My choice may be why I had a recent worsening of a spinal compression fracture that generated my internist's suggestion to start using senna and docusate regularly.
Diet change involved my reducing salt intake, increasing calcium through supplements and more greens, then less meat and now NO meat or dairy. So my non-salty sauces based on citrus and vinegar are used with sweet potatoes, lentils and other beans.
I understand your hesitancy about Prolia. These are difficult choices.

Jump to this post

Hi @notmoff 😊
Did your internist say NO dairy? I eat dairy every day with all my meals in hope of reaching my daily intake of calcium for my osteoporosis. I heard it's better for us to reach our calcium goal with food rather than taking supplements Why no meat and no dairy? Your diet with lentils, sweet potatoes, greens sounds very healthy, but I curious about all the restrictions.

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@hello1234

Excellent information @notmoff regarding the daily salt intake recommendations! 😊 Your homemade sauces sound delicious on chicken and fish. Regarding your osteoporosis, have you started taking a medication or are you attempting to turn things around with diet and exercise only? After years of kidney disease, I also have osteoporosis. I am thinking about starting Prolia, but I am not excited as about the possible side effects.

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Sorry to hear you have osteoporosis also.
I decided on diet and exercise instead of bisphosphonates because I understood they decrease bone resorption (?) but not fractures. My choice may be why I had a recent worsening of a spinal compression fracture that generated my internist's suggestion to start using senna and docusate regularly.
Diet change involved my reducing salt intake, increasing calcium through supplements and more greens, then less meat and now NO meat or dairy. So my non-salty sauces based on citrus and vinegar are used with sweet potatoes, lentils and other beans.
I understand your hesitancy about Prolia. These are difficult choices.

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