Anyone else have a Redundant / Tortuous Colon?

Posted by onaquest @onaquest, Nov 7, 2018

Hello. Anyone else out there that has a redundant/ tortured colon? I was diagnosed with this a few years ago. I’m usually ok, but if I get constipated, I get sick for a week or two. Last year my gastroenterologist referred me to a surgeon for urgent surgery to remove some of my colon. The surgeon I ended up seeing (not on the recommended list by my gastro doc due to others not available for a long time) said he believed I could live with the redundant colon if I followed a low FODMAP diet. I tried the diet religiously, scientifically (I’m a scientist), and I found it’s not the food I eat that causes these bouts of constipation. The only item I’ve found that might cause the bouts is coffee every day. An occasional coffee seems fine. What has helped me stay regular in a big way is Benefiber (or any pure wheat dextrose generic) three times per day. Lots of fluid.

My gastro doc was upset with the surgeon and said I’d regret not having the surgery. He fears I will end up in an emergency situation. I have searched the Mayo site and don’t find anything about redundant/ tortured colon. Are any Mayo docs doing research or treat this condition? Anyone else suffer from this too?
Thank you! -Jayne

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@heathert

Hi, I have the same issues, hoping all is well with you. How are your bowels doing with the intermittent fasting, and how long and how often do you fast for

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Not doing IF anymore. Things are going pretty well, just have to get enough fiber and keep moving!!

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Hi I am new to this site, Sorry you are all also going through this. I have a redundant colon also, and get a pressing, swollen feeling in my left groin area often. Like others on here I feel I have slow digestion. I also have had small balls, not normal s shape, for many many years. I have been loading up on all fibre and drinking lots too but have had no change.I have been reading lately that insoluble fibre is not good for redundant bowel(as it bulks you up and therefore is more difficult to go), but soluble fibre is great, Is anyone on here doing this diet and is it working for you?

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@becky12

I'm in the same boat. Lifelong constipation (I'm 55) and bloating. I was diagnosed after getting yelled by the nurse for not being sufficiently empty for my colonoscopy. I drank every drop, but it had a long way to go to reach the exit LOL. My GI doc said next time we'll start a week ahead of time rather than 2 days.

Intermittent fasting has improved my bowels considerably, and I really hope, respectfully, to never be in your shoes! No fun! Hang in there:)

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Hi, I have the same issues, hoping all is well with you. How are your bowels doing with the intermittent fasting, and how long and how often do you fast for

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@dedhambeth

Thank you so much!!

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@dedhambeth, I also rely on stomach massage and stretching on the floor with my legs and torso. The various compressions of my gut help my food move along.

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I also have a redundant , twisty colon. My colonoscopy was very painful. I take Biogest also known as Thorne a digestive enzyme helps with digestion and take Meta Mucil capsules seems to help. I also get filled up very fast and have a sluggish digestion. I drink lots of water and coffee seems to help. I also feel nauseous alot due to this.

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@researchmaven

@dedhambeth - Slippery elm inner bark works best for me with every meal. It can be in homemade food (bread, hot cereal, cocoa, etc.), added to suitable commercial food (instant oatmeal) or dissolved in hot water. I started taking it with my morning meal, then thought about it, and tried using it with every meal (4- or smaller meals a day).

It definitely works better with every meal. I have an incredibly sensitive gut, so 1/8 teaspoon with a meal. When I was taking it once a day in the morning, I took 1/2 teaspoon. If I can't add it to my food, I put in in a hot liquid.

For me, it seems to work by softening and providing slip best for the meal I take it with. So it does make a world of difference for me when I take it with each meal.

(I think there are slipperly elm bark "chunks" (outer and inner bark) that could be steeped normally like any tea. If so, that may be best for a meal in the work environment.)

Since school teachers are on holiday now or soon, it is a good time to experiment to find a dose that works.

Whether it creates an urgent need to toilet, that may depend on the dose. I find that with my optional dose of 1/8 with a meal.

I am currently checking to see if 1/8 a teaspoon with a meal, when it is a six-meal day, is still the right dose. Maybe taking it four or five times a day is my limit, with a sixth 1/8 teaspoon dose too much.

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Thank you so much!!

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@dedhambeth

For those of you that take slippery elm…do you take it at night? In the morning? Did it affect you quickly? I want to start taking it but am nervous about how quickly it will work and so when to take it. I’m a teacher so do not always have the opportunity to run to the bathroom. Thank you.

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@dedhambeth - Slippery elm inner bark works best for me with every meal. It can be in homemade food (bread, hot cereal, cocoa, etc.), added to suitable commercial food (instant oatmeal) or dissolved in hot water. I started taking it with my morning meal, then thought about it, and tried using it with every meal (4- or smaller meals a day).

It definitely works better with every meal. I have an incredibly sensitive gut, so 1/8 teaspoon with a meal. When I was taking it once a day in the morning, I took 1/2 teaspoon. If I can't add it to my food, I put in in a hot liquid.

For me, it seems to work by softening and providing slip best for the meal I take it with. So it does make a world of difference for me when I take it with each meal.

(I think there are slipperly elm bark "chunks" (outer and inner bark) that could be steeped normally like any tea. If so, that may be best for a meal in the work environment.)

Since school teachers are on holiday now or soon, it is a good time to experiment to find a dose that works.

Whether it creates an urgent need to toilet, that may depend on the dose. I find that with my optional dose of 1/8 with a meal.

I am currently checking to see if 1/8 a teaspoon with a meal, when it is a six-meal day, is still the right dose. Maybe taking it four or five times a day is my limit, with a sixth 1/8 teaspoon dose too much.

REPLY

For those of you that take slippery elm…do you take it at night? In the morning? Did it affect you quickly? I want to start taking it but am nervous about how quickly it will work and so when to take it. I’m a teacher so do not always have the opportunity to run to the bathroom. Thank you.

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@longcolin and sylhet1978,

@longcolin
Good luck with more natural things , hopefully you can get just the right combo and back ups for when regularity is not perfect. It is so worth it.

sylhet1978
So sorry to hear that the colonoscopy was so painful. For me, I measured my pain against a near fatal auto accident in 1972 and natural birth of our daughter in 1986. Plus I like to go natural as much as possible. Hope you can find relief with natural things shared on these posting?
Sometimes lifestyles and eating certain foods play a big part for us with redundant colons in our regularity. These need to be altered but there seems to be no magic key. Best of luck, it is so worth having daily Regularity!

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Great post Farmer Smith.
I apply a lot of what you do as well,
But im not brave enough to grind all the seeds up and eat them with prune juice.
Dry prunes bloats me but I will try the concoction w prune juice!
Thanks again

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