Anyone else have a Redundant / Tortuous Colon?
Hello. Anyone else out there that has a redundant/ tortured colon? I was diagnosed with this a few years ago. I’m usually ok, but if I get constipated, I get sick for a week or two. Last year my gastroenterologist referred me to a surgeon for urgent surgery to remove some of my colon. The surgeon I ended up seeing (not on the recommended list by my gastro doc due to others not available for a long time) said he believed I could live with the redundant colon if I followed a low FODMAP diet. I tried the diet religiously, scientifically (I’m a scientist), and I found it’s not the food I eat that causes these bouts of constipation. The only item I’ve found that might cause the bouts is coffee every day. An occasional coffee seems fine. What has helped me stay regular in a big way is Benefiber (or any pure wheat dextrose generic) three times per day. Lots of fluid.
My gastro doc was upset with the surgeon and said I’d regret not having the surgery. He fears I will end up in an emergency situation. I have searched the Mayo site and don’t find anything about redundant/ tortured colon. Are any Mayo docs doing research or treat this condition? Anyone else suffer from this too?
Thank you! -Jayne
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I have a redundant Torturous: COLON. I find that I can’t let my stomach get empty. That’s when the nausea starts so I do have to graze throughout the day which is very difficult for me because I’ve never done that before. This is a tricky disorder. I can’t eat too much or I get bloated. If I don’t eat enough I get bloated if I eat the wrong thing or at the wrong time I get pain. Every morning I wake up with pain scan my body have a few Sips of coffee and usually I can have a decent BM but not always. I have found Lactulose solution which was prescribed by my G.I. has helped tremendously in emptying out however, stress and anxiety are my biggest obstacles
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2 ReactionsI too have a redundant colon, and have managed it very well for years with a cap of Miralax every evening. The only problem is I just found out that I have stage 2 kidney disease. The Miralax bottle says don’t use it if you have kidney disease. I am so screwed!! Also, how do I know that the PEG didn’t actually CAUSE the damage to my kidneys? I haven’t stopped the Miralax yet. I need to whip up the courage to do so. It’s the only thing that ever worked!
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1 ReactionNot true
I don’t believe it’s more common as you get older ! How does a colon suddenly grow longer 😳
No , I think we are born with a longer colon….
It’s just any issue seems to be more difficult to deal with as we get older… my opinion. Get well soon 👌😘
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3 ReactionsReally sorry for the frustration you experienced on top of the $ to go through all that. I live about 90 minutes from Rochester where Mayo is of course so at least I have that in my favor. I have a prescription for Motegrity but have not started it yet, will wait until I get really bad again. I take Linzess as well, the 145 dosage instead of the 290 which is what I was originally given (couldn't be very far from a restroom on that dosage). The 145 amount seems to help along with lots of fluids, and some miralex. I have had some relief from a colonics session now and then which really purges me, but can only be done every few months I am told. I do have an appointment with a motility specialist at Mayo coming up in 6 weeks, hoping for some answers in regard of how to move forward and avoid as much distress as possible. Not expecting a magic bullet, but some help at least.
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1 ReactionI'm sorry you didnt't get the help you were hoping for.
Many people with LARS (Low Anterior Resection Syndrom) do transanal irrigations daily (TAI) to have a good dump in the morning and be at peace the rest of the day.
I just returned from the Mayo in MN and I have a redundant and torturous colon. My sigmoid is telescoping into my rectum . I have dysergenic defecation and a rectocele. My visit for 2 1/2 weeks was very stressful and disappointing. It is very expensive to go to the Mayo to have accommodations and to eat.
The GI had no comment really about the colon situation. He just recommended doing 3 enemas a week, which I don't think is the healthiest idea either. I left with Linzess and Trulance and I had already taken Linzess a year and it was making my bp high I figured out. I went through a lot of testing at the Mayo and they did more cardiac than GI tests. I have been suffering since HPylori and I spent two years going to GI specialists before I had adhesions removed that were creating a blockage and appendicitis. I am still not sleeping and having problems with defecation. I went to the Mayo hoping to get some help with Biofeedback and they didn't help me. I thought I would mention before you book your flight. The GI seemed hesitant about Motegrity due to side effects. Good luck!! I hope you get better. I am 52 so I agree about not wanting to suffer a long time.
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1 ReactionYes. Everything went well. No polyps or issues. Just trying to get back to normal. Yesterday I felt like I had to go to the bathroom all day. Hope today is better .
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1 ReactionHow did it go? Do you have a primary report?
I do have a redundant colon. I also have a rectocele which came back. I had surgery 2 years ago for that but it’s back.
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