Anyone else have a Redundant/Tortuous Colon?

Posted by onaquest @onaquest, Nov 7, 2018

Hello. Anyone else out there that has a redundant/ tortured colon? I was diagnosed with this a few years ago. I’m usually ok, but if I get constipated, I get sick for a week or two. Last year my gastroenterologist referred me to a surgeon for urgent surgery to remove some of my colon. The surgeon I ended up seeing (not on the recommended list by my gastro doc due to others not available for a long time) said he believed I could live with the redundant colon if I followed a low FODMAP diet. I tried the diet religiously, scientifically (I’m a scientist), and I found it’s not the food I eat that causes these bouts of constipation. The only item I’ve found that might cause the bouts is coffee every day. An occasional coffee seems fine. What has helped me stay regular in a big way is Benefiber (or any pure wheat dextrose generic) three times per day. Lots of fluid.

My gastro doc was upset with the surgeon and said I’d regret not having the surgery. He fears I will end up in an emergency situation. I have searched the Mayo site and don’t find anything about redundant/ tortured colon. Are any Mayo docs doing research or treat this condition? Anyone else suffer from this too?
Thank you! -Jayne

Interested in more discussions like this? Go to the Digestive Health Support Group.

Sounds like your urinary incontinence is probably from a pelvic floor issue. I have a redundant, tortuous bowel and had urinary incontinence. My Dr. prescribed Pelvic Floor PT and that has helped immensely!

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Profile picture for giadiamond @giadiamond

I am in my 40s and recently had my first colonoscopy and was surprised to learn I have a redundant colon! I used to live in NYC and walked so much, I barely noticed. But I moved to a driving city and was noticing bowel movements that were extremely large that were causing tearing and bleeding. Doctors were telling me to eat more fiber. But then after the diagnosis I was told to eat a low fiber diet, which lacked almost any nutrients.

I am still trying to get a hold of how to eat a balanced diet. I've been reading up on gut health and adding kimchi and probiotics to my diet. Trying to slow down when I eat and drink a lot of water. (I like the idea of setting a water reminder)

I've decided to eat a bit more intuitively and pay more attention to how different foods impact me. It seems it takes about 6 days for food to make it through my colon. I stay away from cruciferous veggies and peppers.

Taking miralax has been a big help. I have to experiment with how often, because too much and stool gets runny. I actually found that eating grape nuts in the AM keeps me regular.

I have also been trying belly dancing, massage, sit-ups and walking after meals. But sometimes I don't hear or anything moving around in there!

So this is definitely a new journey. But I'm taking it slow. I've been confused by advice to eat low fiber vs. high fiber. Somewhere inbetween works.

Hopefully I will be able to meet with a nutritionist who specializes in this one day. If anyone knows of anyone to follow on social media let me know.

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I, being a born sceptic suggest the advice on fiber shows, sadly, why they call it PRACTICING medicine. I just posted tonight and told my whole story. In general I follow my urges with a bit of caution on food. All my life I have been a meat eater and had my first salad at 18. Not really a good diet maybe but at 77, it has served. My other dietary likes also are guided by what SEEMS like a good food in the moment with a sound bit of caution when I feel I am straying.

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I have a “redundant colon” which was noticed in a colonoscopy 20 years ago. It has never caused me any pain or problems that I noticed, except maybe now. For several years I have had sudden and extreme need to pee at inopportune times. It happens without warning, sort of. Often I feel a slight, non alarming urge like I COULD pee like while driving or shopping. Once I was in a tour group being lead around. I started looking for a WC opportunity but didn’t see one. The urge increased in intensity. Finally I found a rest room but on arrival it was closed. The urge skyrocketed ! If I were to actually find a rest room but the stalls were all full, my urge becomes extreme and could be too much to hold it and tragedy ensues.

I wonder if my redundant colon might be pressing on my bladder at times since I think changes in my posture like standing after sitting in a car seems to start the cycle. Anxiety seems to drive up the panic. Extreme anxiety like the WC is closed !!! Drives me mad.😡

One final note is that I did have some surgery on my lower spinal disks (via my front) a couple years back so I wonder about the talk of stuff shifting or sagging I read here.

I don’t seem to have other than occasional mild constipation. I eat 5 prunes a day which can’t hurt, I guess. I also enjoy a very very large bowl of pop corn once a week which seems to flush things out after a day or so. I drink lots of water especially with the pop corn and I should mention I eat lots of salt with my food. Friends think I am crazy with the salt but my BP is perfect, cholesterol is perfect. Otherwise, I am 77 years old and work fairly hard 6-7 days a weak, etc

Lastly, I don’t particularly like long walks on the Beach, lol 😂 but I do walk our dog daily.

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I was diagnosed with a redundant colon a year ago though I've had stomach pain all my life. I see my symptoms, scans, pain, diets and attempted treatments in many stories in this group. I feel like there will be no relief, only staying in bed from about 3pm on. Something about being horizontal makes it feel more tolerable. And yes, I wear almost nothing but yoga pants and loose shirts. I had to laugh about how many people are wearing the same thing!

For now, I have a specific question. Do you all feel pain in the exact spot all the time? I do, and I wonder if this is where my colon is most kinked. I'm not sure why this matters to me, but I'm endlessly trying to find out more about this. Thanks all!

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I don’t have a redundant colon, but I do have a lazy colon. It takes forever to move things along. Long story short, I can’t eat much fiber, as it really really clogs me up. So, high protein, no refined carbs and lots of water. Oh, and exercise, I walk everyday. Good luck 🙂

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I am in my 40s and recently had my first colonoscopy and was surprised to learn I have a redundant colon! I used to live in NYC and walked so much, I barely noticed. But I moved to a driving city and was noticing bowel movements that were extremely large that were causing tearing and bleeding. Doctors were telling me to eat more fiber. But then after the diagnosis I was told to eat a low fiber diet, which lacked almost any nutrients.

I am still trying to get a hold of how to eat a balanced diet. I've been reading up on gut health and adding kimchi and probiotics to my diet. Trying to slow down when I eat and drink a lot of water. (I like the idea of setting a water reminder)

I've decided to eat a bit more intuitively and pay more attention to how different foods impact me. It seems it takes about 6 days for food to make it through my colon. I stay away from cruciferous veggies and peppers.

Taking miralax has been a big help. I have to experiment with how often, because too much and stool gets runny. I actually found that eating grape nuts in the AM keeps me regular.

I have also been trying belly dancing, massage, sit-ups and walking after meals. But sometimes I don't hear or anything moving around in there!

So this is definitely a new journey. But I'm taking it slow. I've been confused by advice to eat low fiber vs. high fiber. Somewhere inbetween works.

Hopefully I will be able to meet with a nutritionist who specializes in this one day. If anyone knows of anyone to follow on social media let me know.

REPLY
Profile picture for dustycat52 @dustycat52

Kiwis can help with regular bowel movements.

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Thanks will give it a try.

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Profile picture for md123 @md123

I suffer from a redundant colon. I am a 60 y/o female and have started taking Mira Lax daily since September 22. Since I started doing this I am having BM's every morning but I know how severe heartburn. I had intermittent heartburn for years but nothing that required attention. I have to tie this to the ML. Does anyone else suffer from this? I am also in excellent health, not one prescription. I normally get 16 hours of exercise a week and have never been overweight. I have gained 10 lbs since I started the ML and I can not lose it. Is it the water retention that is causing this? If so, is there any other way to have a BM without the ML. I eat correctly and drink plenty of fluids.

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Kiwis can help with regular bowel movements.

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Profile picture for md123 @md123

I suffer from a redundant colon. I am a 60 y/o female and have started taking Mira Lax daily since September 22. Since I started doing this I am having BM's every morning but I know how severe heartburn. I had intermittent heartburn for years but nothing that required attention. I have to tie this to the ML. Does anyone else suffer from this? I am also in excellent health, not one prescription. I normally get 16 hours of exercise a week and have never been overweight. I have gained 10 lbs since I started the ML and I can not lose it. Is it the water retention that is causing this? If so, is there any other way to have a BM without the ML. I eat correctly and drink plenty of fluids.

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No one has said that I have a long or redundant colon. Yes, I am switching to soup, ten cups of water, and cautiously adding a little fiber. I am going to do my best to stay away from a bulky diet. It is hard to do that during the holidays. My wife is a really good cook as well. There is surprisingly little to no information about miralax and M of Mag causing acid stomach. Every once in a while, I run across someone who mentions they have had the same problem. I hope your diet works for you.

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Profile picture for superel @superel

I appreciate the input. The acid stomach started after taking miralax everyday. I was taking it for several weeks and so I stopped miralax and switched to milk of magnesia 15 ml every night. Eventually acid stomach got worse. Never had an a consistent acid stomach problem before this. Just once every once and awhile after eating spicy food. I am now going off daily milk of mag and miralax to see if the acid stomach problem goes away. I am now using ducolax SSoftener and soup and salad diet with soluble fiber supplements. Praying this works. It looks like I will just be able to use M of m and miralax every so often.

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I hope that works for you. I will never take Miralax or MofM again. Granted, I have the hernia, but it was never as bad until I started the Miralax. If I eat a lot of fiber, I so easily get backed up but I have the redundant colon, not sure if you do or not. I eat a lot of soup, and stay hydrated but stay away from anything bulky.

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