Anyone else have a Redundant / Tortuous Colon?
Hello. Anyone else out there that has a redundant/ tortured colon? I was diagnosed with this a few years ago. I’m usually ok, but if I get constipated, I get sick for a week or two. Last year my gastroenterologist referred me to a surgeon for urgent surgery to remove some of my colon. The surgeon I ended up seeing (not on the recommended list by my gastro doc due to others not available for a long time) said he believed I could live with the redundant colon if I followed a low FODMAP diet. I tried the diet religiously, scientifically (I’m a scientist), and I found it’s not the food I eat that causes these bouts of constipation. The only item I’ve found that might cause the bouts is coffee every day. An occasional coffee seems fine. What has helped me stay regular in a big way is Benefiber (or any pure wheat dextrose generic) three times per day. Lots of fluid.
My gastro doc was upset with the surgeon and said I’d regret not having the surgery. He fears I will end up in an emergency situation. I have searched the Mayo site and don’t find anything about redundant/ tortured colon. Are any Mayo docs doing research or treat this condition? Anyone else suffer from this too?
Thank you! -Jayne
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It sure does, Sally AND expensive!
I'm new to this thread as recently found out tortuous colon has probably been the cause of decades of pain and obstipation and many misdiagnoses.
I hope you feel better soon. It's tough to be in pain when away from the comfort of your home.
All the best💞
Hi @jen83jen, nothing to be embarassed about here. I too have a twisting colon with extra length and deal with constipation, as do many other members. See this related discussion in the Digestive Health group and you'll soon see, you're not alone:
- Anyone else have a Redundant / Tortuous Colon? https://connect.mayoclinic.org/discussion/redundant-tortured-colon/
Jen, I noticed that you posted your question in the Neuroendocrine Tumors (NETs) group. Do you also have NETs or carcinoid syndrome?
Hopeful they will be benign and only D&C.
I feel your pain, literally! I had eye surgery today and am lying in a hotel bed 6 hrs from home with an ice pack on my face! I’ve had a colonoscopy, my ovaries and tubes removed and now this now just this year. That doesn’t count all the drs apts, tests, ER visits, PT apts, oh I’ll just stop there. It truly sucks getting old!
Anyway, I hope you feel better tomorrow!
@sallyw133 I had two biopsies and it HURT but now the aftereffects of pain and cramps. Should have results Friday or Monday. She said at least D&C if not cancer. The older I get , the more is falling apart!
Thank you for caring ❤️
Trish, I hope the biopsy went well today. Thinking of you.
Am feeling a little embarrassed to discuss this. About 20 years ago I had an operation to remove piles. My dr told me that my large intestine is longer than it should be. I had covid twice and still suffer from the after effects. I have a funny feeling in my chest, swallowing all the time to get the knob down my throat. I have a light pain in my abdomen and am constipated all the time. It takes up to 10 days for my tummy to release itself. I'm insanely scared to go to the bathroom. I drink plenty of water, eat lots of fibre food, exercise and otherwise very healthy. I'm also scared for another operation to remove piles because its starting again. My dr is treating me for enxiety (37gr Venlor). Apparently it also help the muscles of the esophageal for the peristatal movement. I tried chewing bubble gum, flybogel capsules, drinking senna tea, lynseed, fruits, etc. I love my veggies. Nothing seems to work. I also have heartburn lately. Am tired to explain to my dr over and over. I feel that he doesn't belief me. I don't want an operation. Please advice me.
@sallyw133 thank you. 😊. I guess my greatest fear is the tortuous colon getting kinked. The GI who did my last colonoscopy said no surgery and left the room. I know it will get taken care of but he scared me. Feeling very nauseous this morning. Always something 🙄
Thank you for your encouragement, very much appreciated. Have a great day!
Anesthesia and especially pain meds always tend to make me constipated. I try to use as little for pain as I can, esp the opiates. But don’t suffer. They can always give you something to get things moving. Good luck! I hope it all works out well for you.
For what it is worth, the gi who did my colonoscopy in 2018 laughingly told me I had a very tortuous colon, but nothing about the probable effect or cause. I wasn't laughing. There was no further contact and I struggled with obstipation before taking time to research my condition online.
A recent consult with a young Asian woman gi told me that the two dimensional illustrations of ascending, transverse, descending colons and the final rectum exit didn't reflect reality "for anyone because we all have twisty colons." Maybe this reflects on her youth and inexperience, or the result in the US of our standard American diet (SAD) that lacks much fiber, and causes straining to have a bm that stretches the colon out.
That said, my obstipation was reduced when I increased my magnesium, added a stool softener and had 1 T of soluble acacia fiber in the morning. with plenty of water. The rest of my diet is high in insoluble fiber.
I think colonoscopy prep frequently fails due to the tortuous turns that make a bm difficult resulting in incomplete evacuation. I've read that using a smaller scope makes a colonoscopy easier for the gi and less painful for the patient. Other's opinions?
@sallyw133 thank you, it does help. I guess I am scared of what anesthesia and if needed abdominal surgery will do to my bowel habits. I think I will ask if they can tell if surgery, my colon is bloated or if it's cancer or just fat.
Hope and pray they can get this done soon after biopsy this Tuesday. Having lot of tummy pain.
Thank you.... 😊