Anyone else have a Redundant / Tortuous Colon?

Bummer! I just lost my post so will start again.
Do any of you have pix of you x-rays or other imaging of your tortuous colon that you'd like to share?
I posted mine on another thread today but will post them here also.
Screenshot of my tortuous colon via a Colonography I had in Sept 2015. The Report only stated a collapsed area in descending Colon.
And a screenshot of the plain x-ray taken on day 7 of the Bowel Transit Study, I had in June 2021. The wee circles you see are radiopaque markers which come in lots of 10 sealed in gel capsules and taken one capsule per day. The last capsule has 6 rectangle shaped markers – 66 radiopaque markers in total.
Normal diet & no laxatives during study. Only '1' tiny marker made it through the obstruction that is at my splenic flexure. For years I'd been repeatedly told by the head colorectal surgeon at my local hospital that I did not have an obstruction and did not fit the criteria to have a colonoscopy.
I've never stopped looking for answers and had some private consults with some womens health physio's and it was the head lecturer of the School of Physio whom after a number of examinations suggested in 2018 I did indeed have an obstruction in my descending colon.
It causes me much pain & problems as you can imagine.

Great news, kalbin😃 I'll have to google about the role of balloons in colonoscopy. I know having my first in a few weeks time is going to be very challenging and painful. I can't afford the costs of an anaesthetist & private hospital costs so will settle for sedation.
I had planned on starting the clean out earlier as I live out of town.

I have an update! I had my 3rd colonoscopy attempt yesterday (not counting the failed barium enema) and I FINALLY had a Dr. who could see the whole thing! This time they did a double balloon colonoscopy at a hospital. And the only reason I have blood in the stool is because it is very tortuous and winds a lot. But it's all ok and I don't have to get another for ten years like a normal person! I have had to do the prep four times this year and I'm so done with it. But I am also so very grateful that there's nothing wrong with me.
Just to help anyone else out with the prep I do add a couple extra hours to the liquid diet and I also use 2 fleet enemas after I finish drinking the swamp water. It worked the last two times and it's very difficult for me to get cleaned out. I usually take magnesium chloride and miralax daily for constipation. My prayers and best wishes to all of you having issues with this!

I am astonished by the similarities and also see so many people posting on this thread that could be me as far as how they are coping, what they've experienced with doctors and honestly the need to be tenacious to get this diagnosis. I'm 48, also, just diagnosed with tortuous colon a couple weeks ago after 11 months of debilitating and devolving issues with my stomach, digestion, eating, sleep, joints, fatigue. I've also been dealing with this since my late teens and have been hospitalized a few times, blown off and told it was probably food poisoning, stress or a mystery (as in, I'm imagining it). I've spent the last 30 years doing everything I could to eat healthy, exercise, reduce stress. I think my biggest frustration now is that I've always wanted to find a way to heal rather than treat symptoms, but I don't know that's an option anymore. It's good to meet you, not because I'd wish this on anyone, but because it's good to find people who understand and can relate. I hope you get some resolution.

I have had issues since I was in my early twenties (48 now). I went in many many times for help. I was told I had the flu, was too thin, maybe the edge of my liver was getting pinched? I was made to do an upper GI scope (never lower), HIDA scan, and obviously ultrasound. I was never diagnosed. I even had a two week period where I couldn't eat, was vomiting and could get no provider to listen to me. It wasn't until I went in for my first colonoscopy last month that my surgeon told me I had tortuous bowel. That explains EVERY intestinal issue I had. I wish more doctors considered this being a possible diagnosis and checked for it. Mine is bad enough, she could not complete my colonoscopy, so now I must go in for a CT colonoscopy. Still trying to figure out how to get my guts to work properly, but at least I have a direction to move now!

Thank you! Much appreciated! My husband jokes that after 30 years of migraines and all other health issues, we could have bought a vacation home! 🙏🏼❤️

Hopeful they will be benign and only D&C.
I feel your pain, literally! I had eye surgery today and am lying in a hotel bed 6 hrs from home with an ice pack on my face! I’ve had a colonoscopy, my ovaries and tubes removed and now this now just this year. That doesn’t count all the drs apts, tests, ER visits, PT apts, oh I’ll just stop there. It truly sucks getting old!
Anyway, I hope you feel better tomorrow!

It sure does, Sally AND expensive!
I'm new to this thread as recently found out tortuous colon has probably been the cause of decades of pain and obstipation and many misdiagnoses.
I hope you feel better soon. It's tough to be in pain when away from the comfort of your home.
All the best💞