Anyone else have a Redundant / Tortuous Colon?

The Monash Food App is a life-saver for the FODMAP diet.

I started with diverticulosis and now have divirticulitis. I’ve had to go to the emergency room it colitis. I’m so compassionate for people who are sick I’ve been through so much in my life 11 surgeries later for different things

Thank you for insight into your self help tips. I will try and incorporate them. Unfortunately though it’s been recommended to me I haven’t been following the fodmap diet but things are so problematic now that I most definitely will need to revise my food choices. Thank you. And I hope things continue working well for you.

I have a redundant colon for the past six years. Constipation is rarely an issue. Standing is though. One twist is at my right hip bone and very painful when even normal bowel material passes through and I’m on my feet for more than 10 minutes, standing or moving slowly. Another spot must be near the vagina, as it happens there as well. I Have to sit way back in a chair or go lay down to take the pressure off. Sometimes I know it’s coming, but want to finish what I’m doing or at a store- if I take too long to move to a recuperative position, it’s so painful to walk or even in the act of lying down. Recently my left aide has begun to bother me. Wondering if this is yet more….
CT results this week to see.
Sigh

Hello,
I had a redundant large intestine, which caused constipation, no matter what I ate or how many caps of Miralax I used, typically four or more a day, I would get constipated and be in severe pain. I had my large intestine removed, except for the final 6 inches so I could have a rectum with control, that has been such a game changer for me and I wish I would’ve known about it and done it sooner. I think it is an individual issue and each person is different. Meaning what works for someone may not work for someone else. I had issues my whole life with this and after failing the SitzMark rings test twice And trying large amounts of Miralax and different diets, I decided to just go ahead and have the procedure. For me personally, it was one of the best decisions I’ve ever made.

I have a redundant colon and have had so much pain over the years (I'm 62 now and I remember pain as far back as 3rd grade). I've tried every diet I could read about, had every test and tried lots of treatments. Until 3 months ago, I was usually in bed by 4pm because the pain got worse over the day. Finally a GI doc prescribed Dicyclomine, 10mg. If I take a pill 30 minutes before eating I have no pain. I cry thinking about it because it has been such a long journey and finally something works! My understanding is that Dicyclomine relaxes the muscles in the colon from the effort of getting food through such a circuitous path. This in turn reduces cramping. Simple as that. I also take Mirilax to keep from being constipated, which can be a whole other problem for many people. I know this won't work for everyone but it's worth knowing about and maybe asking your GI doctor about.

I tried gluten free and it bloated me the same because some contain cheekpea which is a grain with fiber

Cuddlebug, Have you considered whether you have a rectocle prolapse? It sure sounds like one to me. Your sex tip sounds like the "splinting" that is often recommended for rectocle prolapse. Prolapse is completely separate from a redundant colon. Gastro doctors don't seem to think to check it. It is an easy check by doctors who focus on prolapse.

Try gluten free food or do not eat wheat and that could help bloating and wheat belly.

Yes, I just realized this week while making my own soup that for some strange reason Onion is helping me. I color them on the bottom of the pan for 10 minutes like if would start an Onion soup and it gives a beautiful color to the soup. So Onion is working... so far, I would have to see in my case how much it last.