Anyone else have a Redundant / Tortuous Colon?
Hello. Anyone else out there that has a redundant/ tortured colon? I was diagnosed with this a few years ago. I’m usually ok, but if I get constipated, I get sick for a week or two. Last year my gastroenterologist referred me to a surgeon for urgent surgery to remove some of my colon. The surgeon I ended up seeing (not on the recommended list by my gastro doc due to others not available for a long time) said he believed I could live with the redundant colon if I followed a low FODMAP diet. I tried the diet religiously, scientifically (I’m a scientist), and I found it’s not the food I eat that causes these bouts of constipation. The only item I’ve found that might cause the bouts is coffee every day. An occasional coffee seems fine. What has helped me stay regular in a big way is Benefiber (or any pure wheat dextrose generic) three times per day. Lots of fluid.
My gastro doc was upset with the surgeon and said I’d regret not having the surgery. He fears I will end up in an emergency situation. I have searched the Mayo site and don’t find anything about redundant/ tortured colon. Are any Mayo docs doing research or treat this condition? Anyone else suffer from this too?
Thank you! -Jayne
Interested in more discussions like this? Go to the Digestive Health Support Group.
I do belly message every morning, take slo-Mag twice a day, and Acacia Powder Fiber. Also use flaxseed meal and chia seeds in my food. If I get constipated I use magnesium gummies to help. I am 70 years old.
Painful hours
I have it too now that I’m older I can barely manage this condition
Lots of twisting and what seems like temporary blocksages some lasting a couple very painful hits
Has anyone else had this? I asked dr why the can’t just take some out?
Vicki
I realize we are not alone. There are a lot of us out there. I to have tortuous colon I believe since birth. This condition took so much out of my life. I suffered not only from this condition but painful periods. I finally found out after suffering so much pain, I had two huge dermoid tumors on both ovaries . I had surgery to remove one ovary and 7/8 of the other. I could go on but I have so much sympathy and caring for people going through this. I am now 72.
Not sure…I have to be aware of that…
I have the same problem and can go for a week without going. Fortunately I don’t have any stomach pain. Have you noticed if crackers or dense crusty bread makes it worse? Those will cause bloating and mucous discharge and really bad constipation to me.
My husband thinks he knows what is best for me…he thinks I need to be on some kind of a special diet. Really he doesn’t understand this tortuous colon. I think I will try to eliminate coffee…I can’t imagine that that is constipating me, but I will try that. I wonder if tea is better…
Hi, I have a torturous colon and have had bouts of constipation, some diarrhea, stomach pain and nausea. I am taking Konsyl Daily Psyllium fiber capsules, Florastor Probiotic, and MiraLax when constipated for a few days. I take ondansetron for nausea. (Prescription). About 5 years ago I was diagnosed with SIBO, but that was treated with a special antibiotic and was on a strict diet. That is gone now. I took Iberogast which helps with motility last spring…was great for awhile, but ended up with diarrhea. I recently was constipated for 6 days…that was scary, but finally was able to have a bowel movement. Now I am being careful and making sure I am able to go at least every 3 days…though, my bowel movements are round pebbles, but at least I am going. I do drink coffee every day, but had not heard that it is constipating. I will try to avoid it. I am 77 years old and do not want to have surgery. I am very tired of the symptoms and not feeling well and looking for a bathroom. Trying to enjoy life, but with this it is not easy….
I have a tortuous redundant colon with severe constipation. My gastro at John Hopkins, Baltimore indicated I have one of the worst tortuous colons she has seen in her career. Requiring body replacement and exterior stomach manipulation to get through my colon. I suffer from extreme bouts with debilitating vomiting lasting three to four days. I have yet to find a successful regiment. I can say that while sleeping on your left side does aid the process, the constipation requires a multi angel approach to becoming healthy. Including life style, diet and stress changes. As well as otc medications and for some prescription medications as well. For those who have the added joy of abdominal pain, have you found anything that works? I was recently prescribed 5 days of low dose Prednisone for something non related. The steroid caused several days of diarrhea. As an added bonus I was able to empty my bowels. A welcomed reprieve. Curious what works for others in addition the standard recommended changes...
I was diagnosed with tortuous colon 2 years ago. My symptoms included constipation all week then having stomach cramps, vomiting and soft stools until I was empty.
Before I knew I had tortuous colon, I was treated for SIBO, small bowel bacterial overgrowth, many times which helps the symptoms a little. I was also positive for slow stomach emptying. The doctor was also considering ibs.
After I was diagnosed with redundant colon, my doctor changed my treatment and I have had some success. (My redundancy is throughout the colon, not just the sigmoid)
I live in Israel, and I am taking a medicine that is not available in the US, called Resolor. It is a pro kinetic. Her theory is that since everything gets backed up then my body tries hard to get rid of it all with through a big cramping vomiting episode.
The resolor helps me make a few movements a week, I've had no more cramps and vomiting, stools still a little softish half the time. But at least I can feel comfortable going outside the house and not worried about a bathroom episode.
I'm also to use micro enemas if I feel it ready to go, but I am not able to go.
I had asked her about if a medicine like Resolor is available in the US, (she did some training in Boston). She said Resolor is not, but there is a medicine that is part pro kinetic and partly to absorb moisture, which is not good if you're constipated all the time.
Maybe there is something available like Resolor now in America.
Last note, the Dr asked the surgical team at the hospital she works at, Rambam, and they did not recommend surgery, saying its not guaranteed to solve all the problem and it's a big surgery and that they recommend continueing to learn to manage my condition with my doctor.
All the best!