Anyone else have a Redundant / Tortuous Colon?

Hello @cdeebar and welcome to the Digestive Health Support Group on Mayo Connect. I am glad that you found Mayo Connect, it is a good thing to be able to share and learn from others who have a similar diagnosis. I see that others, @christine5, @catherine1290 and @sheilagreen, have responded to you already. On Connect, there are a number of discussions on Tortuous Colon. Here is a link to those posts,
https://connect.mayoclinic.org/group/digestive-gastrointestinal-problems/?search=Tortuous+colon#discussion-listview
As you read these posts, feel free to ask questions or make comments. Simply click on "Reply" under the post you want to respond to and then a comment box will open up where you can post your question or your comment.

You mention that you will be seeing a GI specialist. Has this appointment been scheduled? Have you been given any medications or dietary suggestions until you have that appointment?

I had a torturous: for many years.It cost many trips to the e.R and it just was taking over my life. I had surgery 14 years ago to take out the tortuous part and reconnect the 2 ends. It went rather well for me so I can't say as to how it would go for you. But I was generally pleased with the way things came out. No pun intended. I'll be happy to answer any questions.

Apologies that photo of the bearded gent isn’t mine 🤷‍♀️

Hi all ,
In my experience, it’s not something that you develop ? ( tortuous colon ); it’s something that you’re born with .
I say this because it’s several metres longer than a normal colon, and it lives in a small space , consequently has to fold and squeeze into that space .
Making a slow passage of food and constipation!plus bloating and always full bowel , very uncomfortable 😣
I am 74 and suffered the above as long as I can remember . At last I have found the answer 👍
A spoonful of inulin and a sachet of cosmocol everyday.
It’s absolutely bliss to have normal bowel movements daily after a lifetime of worrying.
I wonder if this long and tortuous colon is hereditary? Because I remember my grandfather always having to use senna etc , and he ate so much fruit from his orchard and yet clearly needed assistance.
We need much more fibre and fluid into the bowel than normal colons..
Back in the day this condition wasn’t ever known about 🤔
I hope this helps.
Best of luck
Sheila

I am a Crohn's pt who developed tortuous colon about 2 years ago. They were unable to complete colonoscopy even using a pediatric scope. MRI revealed tortuous colon with colonic stricture and significant thickening of bowel wall. I had to go to a hospital who had Advanced Endoscopy to perform balloon dilation on the stricture. I realize I will never have "normal" stool but as long as I keep things soft I can maintain. I hope this info helps.

I just posted that I recently learned I have a Tortuous Colon, hoping to visit with others experiencing the same. I hope we can talk….cdeebar

After over 2 years of off & on constipation, 2 incomplete colonoscopies, & a 3rd more invasive effort to complete a colonoscopy, the doctor diagnosed problem as Tortuous Colon. I will meet was a GI physician. I hope to visit with others experiencing same. Thanks!

I asked to get part of colon removed. Said next time I get a blockage to go to er

Oh yes major constipation!!!!

No weight loss due to the fact that I also have Graves’ disease and take medicine to get rid of extra thyroid. Which gets rid of metabolism 😾
Diabetic too. Such a struggle. I get severe bloating with a lot of air. Pain mostly in left upper quadrant. My bowel gets all twisted up there! Reminds me of feeling a baby move in that area!