Anyone else have a Redundant / Tortuous Colon?
Hello. Anyone else out there that has a redundant/ tortured colon? I was diagnosed with this a few years ago. I’m usually ok, but if I get constipated, I get sick for a week or two. Last year my gastroenterologist referred me to a surgeon for urgent surgery to remove some of my colon. The surgeon I ended up seeing (not on the recommended list by my gastro doc due to others not available for a long time) said he believed I could live with the redundant colon if I followed a low FODMAP diet. I tried the diet religiously, scientifically (I’m a scientist), and I found it’s not the food I eat that causes these bouts of constipation. The only item I’ve found that might cause the bouts is coffee every day. An occasional coffee seems fine. What has helped me stay regular in a big way is Benefiber (or any pure wheat dextrose generic) three times per day. Lots of fluid.
My gastro doc was upset with the surgeon and said I’d regret not having the surgery. He fears I will end up in an emergency situation. I have searched the Mayo site and don’t find anything about redundant/ tortured colon. Are any Mayo docs doing research or treat this condition? Anyone else suffer from this too?
Thank you! -Jayne
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Are they mag citrate gummies and thanks for reply .
I only found reply by accident not sure how this site tells you someone has replied .
What is IF out of interest of colon .
I got some 50mg gummies from Amazon, meant for kids. I can’t take too much or I get diarrhea.
Hello which gummies do you use please and where from .
Thanks
Hello i was just reading your tips and very helpful as i have a very looped tortuous colon .
Is Optimag you take Optimag neuro ? and which K2 + potassium do you take please.
I noticed you take smooth move tea which is senna , do you take this often as i was told to stay away from this but wondered how it helps you.
How do you balance mag, potassium and sodium?
Sorry to ask so many questions but trying to stop surgery.
Does the Optimag actually help you have bowel movements on its own with diet .
The only thing that helps me is keeping fibre low , no psyllium, taking fruit juices , activia yogurt with some chai seeds , Triple magnesium but do not like taking it as has oxide which again dont think is good but what can you do as you need to eliminate.
Kind Regards to you
I have tortuous colon and low rise mucosal prolapse plus other things.
Can i ask you what your sitting style is please to see if it helps me .
Hope you are doing well
My heating pad is my best friend these days, unfortunately. I vascillate between constipation and bas diarrhea most of the time. Last December, while in France, I had emergency surgery for a blockage caused by adhesions from past surgeries. After that, was told ai had a redundant/torturous colon. I rarely have a "normal"..as I'm always dealing with one or the other, constipation or diarrhea. Most laxatives flip me over to diarrhea, so am very perplexed as to what I need to do. The GI doctors in this town are difficult to see and get good treatment from; will travel into Houston in late February to see a new one, trying to get answers and help. I cramp constantly and spend a good deal of time on heating pad. Not quality of life, to be sure. Curious as how to go about finding a Dr. and location for Mayo Clinic, probably in Florida, as I am in Louisiana. Any and all advice are welcome.
KKlas4 - I have a "severely" redundant colon. Have you tried Slippery Elm Powder (inner bark)? I have some with every meal. It adds a lot of slip. I tried taking it once a day and that was not the solution.
I also eat a liquidity diet - my three meals are - hot cereal, smoothie, well-cooked soup. I feather in solids. I drink something all day; more water/liquid to push things along.
I also have myriad food intolerances that trigger IBS. And a rectal pocket (prolapse).
Doing the above for my meals and beverages, plus only eating what works for me keeps my bowels in the normal range. The prolapse comes to fore if I eat wrong, but I have a sitting style that helps take up the prolapse slack and that works.
Everyone is so different, but for me, if I didn't do all of the above, I would be maddenly uncomfortable or in pain.
Hi.
I have redundant colon. It’s miserable to live with. My doctor about 8 years ago plus in my low 40s told me he never saw such a large colon.
I take Linezz, laxative 4 pills & magnesium- many days still don’t go #2. The pain is horrendous. Planning my life around it.
Thanks Becky, great to know you are doing well! Maby I need to exercise more in the morning, I usually do it in the afternoon and night, good to know all fibre is working for you too.