Anyone else have a Redundant / Tortuous Colon?

Posted by onaquest @onaquest, Nov 7, 2018

Hello. Anyone else out there that has a redundant/ tortured colon? I was diagnosed with this a few years ago. I’m usually ok, but if I get constipated, I get sick for a week or two. Last year my gastroenterologist referred me to a surgeon for urgent surgery to remove some of my colon. The surgeon I ended up seeing (not on the recommended list by my gastro doc due to others not available for a long time) said he believed I could live with the redundant colon if I followed a low FODMAP diet. I tried the diet religiously, scientifically (I’m a scientist), and I found it’s not the food I eat that causes these bouts of constipation. The only item I’ve found that might cause the bouts is coffee every day. An occasional coffee seems fine. What has helped me stay regular in a big way is Benefiber (or any pure wheat dextrose generic) three times per day. Lots of fluid.

My gastro doc was upset with the surgeon and said I’d regret not having the surgery. He fears I will end up in an emergency situation. I have searched the Mayo site and don’t find anything about redundant/ tortured colon. Are any Mayo docs doing research or treat this condition? Anyone else suffer from this too?
Thank you! -Jayne

Interested in more discussions like this? Go to the Digestive Health Support Group.

Profile picture for cdeebar @cdeebar

I just posted that I recently learned I have a Tortuous Colon, hoping to visit with others experiencing the same. I hope we can talk….cdeebar

Jump to this post

Hi. I was just diagnosed as well. I experience severe constipation & stool leakage. It has effected my quality of life for the last 1 1/2 years.

REPLY
Profile picture for emo @emo

I take 300 mg magnesium citrate capsules and it was working great for me but recently hasn’t been working as well. My doctor told me I could go up to 400 mg, so I’m trying that for now. Sources I’ve seen online by GI dieticians reference 400-800 mg for constipation.

I’ve tried Natural Calm too, in lemon raspberry. It tastes like raspberry iced tea to me, but for some reason it doesn’t seem as effective.

My other go-to has been chia seed pudding. I take two teaspoons of chia seeds and gel them in yogurt or a smoothie and/or kiwi. My GI doc actually recommended that. There’s a study that eating two green kiwi a day was effective in reducing constipation. Two actually gave me diarrhea lol.

It may be worth considering other contributing factors or consulting with a GI dietician. I got the most help from working with a pelvic PT (I have pelvic floor dysfunction and she also taught me abdominal massage, which you can look up online to improve motility. I imagine that may help with tortuous colon) and a GI dietician. I learned it’s actually possible to have too much fiber, especially in a situation like this where it’s hard for your body to move things along.

I found this article helpful (it’s where I found the info about the magnesium citrate dosage): https://www.fodmapeveryday.com/the-scoop-on-increasing-your-ability-to-poop-strategies-for-alleviating-constipation/.

Good luck to you!

Jump to this post

Thank you. I love the chia seeds and kiwi!!!
Next month I have an appointment at the Pelvic Floor Center so hopefully I’ll learn some useful information.
I will check out the article

REPLY
Profile picture for celia16 @celia16

I take a brand I buy on Amazon daily after checking with my doctor. It’s one capsule of triple malate, glycinate and citrate 300 mg. I took it when chronic constipation started. I can’t say it helped. I no longer have the CC though, due to addressing my B12 issue.

I did find that a tablespoon of Milk of Magnesia always did the job though, none of my doctors approved that for longterm use. I’m not sure why. They recommended Miralax instead. Sigh.

Jump to this post

Thank you for the suggestions. Yes it seems like all doctors recommend Miralax.

REPLY
Profile picture for misssuezq @misssuezq

I have a redundant colon with chronic constipation. As many of you experience just when you figure out a way to help your constipation, it stops working. I’m looking for a new way and want to try magnesium but wasn’t sure if others on here recommend magnesium or magnesium citrate. I welcome your comments.

Jump to this post

I take 300 mg magnesium citrate capsules and it was working great for me but recently hasn’t been working as well. My doctor told me I could go up to 400 mg, so I’m trying that for now. Sources I’ve seen online by GI dieticians reference 400-800 mg for constipation.

I’ve tried Natural Calm too, in lemon raspberry. It tastes like raspberry iced tea to me, but for some reason it doesn’t seem as effective.

My other go-to has been chia seed pudding. I take two teaspoons of chia seeds and gel them in yogurt or a smoothie and/or kiwi. My GI doc actually recommended that. There’s a study that eating two green kiwi a day was effective in reducing constipation. Two actually gave me diarrhea lol.

It may be worth considering other contributing factors or consulting with a GI dietician. I got the most help from working with a pelvic PT (I have pelvic floor dysfunction and she also taught me abdominal massage, which you can look up online to improve motility. I imagine that may help with tortuous colon) and a GI dietician. I learned it’s actually possible to have too much fiber, especially in a situation like this where it’s hard for your body to move things along.

I found this article helpful (it’s where I found the info about the magnesium citrate dosage): https://www.fodmapeveryday.com/the-scoop-on-increasing-your-ability-to-poop-strategies-for-alleviating-constipation/.

Good luck to you!

REPLY
Profile picture for misssuezq @misssuezq

I have a redundant colon with chronic constipation. As many of you experience just when you figure out a way to help your constipation, it stops working. I’m looking for a new way and want to try magnesium but wasn’t sure if others on here recommend magnesium or magnesium citrate. I welcome your comments.

Jump to this post

I take a brand I buy on Amazon daily after checking with my doctor. It’s one capsule of triple malate, glycinate and citrate 300 mg. I took it when chronic constipation started. I can’t say it helped. I no longer have the CC though, due to addressing my B12 issue.

I did find that a tablespoon of Milk of Magnesia always did the job though, none of my doctors approved that for longterm use. I’m not sure why. They recommended Miralax instead. Sigh.

REPLY
Profile picture for debschmitt @debschmitt

I was just dx with redundant tortuous colon after a colonoscopy. For the last two years and seeing 4 gastroenterologists I was told I had IBS-C and was trying to manage symptoms but not really successful. Miralax was prescribed which only caused nausea. Research has shown that Miralax is no more effective with IBS than a placebo. I also have diverticulitis.
I suffer with pain every morning and sometimes after I eat. Constipation is just a common part of my life with bloating pain, loss of appetite and weight loss. I’m down to 100 pounds. I live alone with no family around. I’m scared. I don’t know what to eat. My doc said just soft food. I’m trying to get this test Sitz beads test completed. Any advice or support is welcomed. I feel like I’m paddling away from the shore.

Jump to this post

Your post resonated with my heart!! I am the 70 year old childless widow of a 100% disabled veteran who passed 13 years ago. I love very rural.. and ..was "alone" for a long time..it is very scary and intimidating. I drove myself to ER many times and had horrific experiences..it is very hard to find good health care here.. My journey began about 5 years ago when an antibiotic "ruptured " a hemorrhage in my stomach..I've seen soo many GIs and have had so many misdiagnoses..almost to the point of abuse.. basically.. so first of all (I don't know your religious preference.. but I am a Charismatic Christian.. and I know that with the Holy Spirit we are never alone.. I finally realized this recently.. secondly God will supply all our needs.. ask and you shall receive)..I got down to 98 pounds.. had scurvy (problems with teeth.. I drink 2 Plant based Ensures a day.. vanilla.. has helped my liver AST and ALT to return to normal also vitamin D..I went to a nutritionalist .. have so many food intolerances.. I don't know what to eat..this week finally my new GI diagnosed me with the tortuous colon.. and wanted me to try yet more pills.. Linzess.. etc.. I said NO.. I want the surgery.. so we shall see.. until then.. I have put on 44 pounds.. I eat Thomas English muffins Multigrain for fiber.. (if you don't have gluten intolerance.. limit my milk and on occasion.. about every 3-4 days I take 3 biscadyls and they work.. really clean you out.. sometime uncomfortable..) I may be rambling here.. but I hope some of this helps you.. I battle panic attacks and anxiety having lost 2 husbands who passed and have developed a real fear of food.. now I am working on NO fear here.. faith meets fear at the door..it's hard.. my heart goes out to you and I hope this gives you some comfort.. By the way God brought a Godly man into my life 2 years ago.. good thing 14 trips to ER that year..I will be praying for you!!,,oh I had the sitz marker tests.. the other one with the oatmeal.. gastric emptying is much easier...God bless you !!

REPLY
Profile picture for parrot53 @parrot53

I use a teaspoon of Natural Vitality Calm in a cup of tea before bed. Be careful, it fizzes. I get it from Amazon.

Jump to this post

Thank you for your suggestion! 😊

REPLY
Profile picture for misssuezq @misssuezq

I have a redundant colon with chronic constipation. As many of you experience just when you figure out a way to help your constipation, it stops working. I’m looking for a new way and want to try magnesium but wasn’t sure if others on here recommend magnesium or magnesium citrate. I welcome your comments.

Jump to this post

I use a teaspoon of Natural Vitality Calm in a cup of tea before bed. Be careful, it fizzes. I get it from Amazon.

REPLY

I have a redundant colon with chronic constipation. As many of you experience just when you figure out a way to help your constipation, it stops working. I’m looking for a new way and want to try magnesium but wasn’t sure if others on here recommend magnesium or magnesium citrate. I welcome your comments.

REPLY
Profile picture for cdeebar @cdeebar

After over 2 years of off & on constipation, 2 incomplete colonoscopies, & a 3rd more invasive effort to complete a colonoscopy, the doctor diagnosed problem as Tortuous Colon. I will meet was a GI physician. I hope to visit with others experiencing same. Thanks!

Jump to this post

My colon is seriously redundant, but not twisted best I can tell. There is a lot of infomation here for redundant, torturous colon and the constipation it causes. I have posted lots, just search on ResearchMaven to see how I deal with it with a 90% success rate.

REPLY
Please sign in or register to post a reply.