Anyone else have a Redundant / Tortuous Colon?

Yes, I have that same diagnosis too now 14 years back from my only colonoscopy which was incomplete. It comes up now again only because I am supposed to have another to qualify to be a kidney donor. I am looking for a genius doctor who has conquered techniques of completing at least 90% of incomplete colonoscopies.

The only other symptom I have is a very occasional passing of mild pain across my abdominal, maybe a couple time a year. That is it. Have travelled/ lived in India, Pakistan, Peru, Mexico, and such too many times to count the number of countries, and have never given it a thought.

After the only colonoscopy I researched deeply and discovered that this is an identifiable problem in Sweden. Not long ago my daughter figured that between her and her dad’s statistics, I must be 12% Swedish. No wonder that I love Scandinavia!! Apparently it is more common there. People who died from other causes with undiagnosed and untreated redundant colon were discovered with it. I rested my own case when the doctor who could not continue to the cecum prescribe a barium enema and who told me that if I was carrying a polyp he would operate. He could not offer me a single statistic in spite of his absolutely overflowing and cramped waiting room.

I am now a 73-year-old female with no new symptoms. I have no advice and believe in free choice and informed consent and have much too much contact with the medical world because of familial loss of kidney function. There are bad doctors.

Bravo Mayo! Another family member has survived 12 years and 2 transplants with Amyloidosis!

My son found a manual massage guide from England's National Health Service. Compared to US medicine which is drug and procedure-focused, NHS seems to focus on what one can do at home.

I do them every day, usually at bedtime. I feel better afterwards and I think they really help!
https://www.wchc.nhs.uk/resources/self-abdominal-massage/
Here is the link:

I have not used a massager, but I do manual massage on my belly every morning! And is does help.

I have had problems with my digestion since I was 20. I still do. Has anyone here tried a massager for stomach to relieve constipation? Has anyone heard of MoWoot? Especially with redundant colon, the massage may help?
https://www.mowoot.com/en/
I am not sure if I can get it, if it works it's worth it for me to get it.

I should add I have previously been diagnosed with IBS with constipation, GERD, a diverticula, and recently bile sludge and non-alcoholic fatty liver.

I was just diagnosed with a tortuous colon with a redundant transverse colon. I have had issues since I was a teen with severe abdominal pain, bloating, and constipation. Early on the severe episodes were infrequent and I seldom sought medical attention. Around 20 years ago it started getting much worse and with more frequent severe episodes. These ones were so painful that they would cause me to have symptoms of shock. I would usually vomit from the pain.
Over the last 10 years I had a 5 day NPO hospital stay that ended eventually with a polypectomy to remove one that was infected. That was my first colonoscopy. In the years since I have had 2 more by a different gastroenterologist. My 4th and most recent was yet another doctor who couldn’t visualize the entire colon because she couldn’t insert an adult scope the full length. I am 51 years old and female by the way. This time she ordered a sonogram and a barium X-ray that identified the problem that has made me pretty miserable for so long. Thank goodness. What I wonder is why this took so long? Why didn’t previous colonoscopies lead to this diagnosis?

I have diverticulosis and a redundant colon. My primary guy Dr. gave me a script for an upper GI series.
I have benign nodules on my thyroid and hate to risk what I think is pretty heavy radiation (fluroscope)
as scatter radiation could affect those nodules. I am admittedly a type A personality and when I feel
stress at all, I tend to get a nervous stomach. Should I have the GI test?

So sorry you’re going through this at such an early age. I’ve also struggled since my 30’s but things only got really bad 4 years ago, I’m 65. I’m doing the Sitz Marker study on the 22nd and a defography on June 2. Really looking forward to a fun 3 weeks of no meds, colonoscopy preps and a somewhat “awkward” procedure! I’m also looking at surgery. Best of luck to you!

I so relate to this! I’m super active, 39 years old, petite (except for a balloon belly). Just had anorectal manometry done and have Sitz Marker study next week in hopes of getting a surgery scheduled. I have tried holistic, pharmaceuticals, acupuncture, suppositories, etc. Motegrity (@thellman) did work the best but only for about 2 weeks. Those were the best 2 weeks I’ve ever had, motility-wise. I don’t know that I’d ever experienced a complete, clearing BM until then. I will have semi-regular movements but they are loose and small and pass right over the blockages. My lower left side feels like it’s on fire. I want to have the surgery and not waste time fighting with this anymore. There’s pressure on my bladder so I never know when I’m going to have to use the bathroom (urgently!) and my tailbone is even angled differently sometimes. Lots of lower back pressure and difficulty engaging lower abs. My heart goes out to everyone who understands!

I did. She told me they use water-soluble barium and should not present an issue. To be safe, I’m going to do an enema after.