Anyone else have a Redundant / Tortuous Colon?

I was just diagnosed with this in Scottsdale. I am also curious about research and surgery possibilities. Mine seems to be interrupting urine flow.

My appendix ruptured in 2015 also had sepsis. Since then I have had three incisional hernia surgeries two with mesh. Now surgeons won’t perform surgery for my tortuous colon, mobile cecum and adhesions. I have been told surgery is difficult when meshes are in place. I get obstructions which puts me in the hospital for a few days with a NG tube.
I take MiraLax and stool softener daily. That makes me spit out a small amount of diarrhea daily. My multiple CT scans show that my cecum is constantly on the move and I always have a partial obstruction. I am mostly on a liquid diet.
I am waiting for a referral to the Mayo Clinic as Reno, NV doctors say they don’t have the expertise and Stanford surgeon has gaslighted me then does not return my emails.

I do! I believe I know how it happened as well. Now I have pain in 2 places when standing for very long at times. I feel it has to do with the consistency of the material passing through making the colon a bit fatter and it presses on nerves causing the pain. I have no idea as to what to do. My gastro has been No Help other than the diagnosis.
If anyone has ideas I’d love to hear them!

I have just been diagnosed with a redundant colon . But I don't suffer from constipation . What I do get are bouts of gastic pain , vomiting and a little diarrhoea. These happen about 5-8 times /year and last between 6-10 hours . Then they suddenly stop. Ive had some tests ( CT scan and blood tests) but they have only found this 'redundant colon ' condition - all else normal so far . Does anyone else have similar symptoms?

Hi, I have a torrutous colon/Diverticulosis/ibs-c. TC caused IBS-c, which caused Diverticulitis attacks. I am scheduled for resection this month. Decided to do before it became an emergency But, in past had issues with scans due to colon being in the way.

Elizabeth, I hear you and I feel your pain. I am in the same position and was forced to have a hysterectomy. Turns out my uterus had a fibroid growing on it, but it wasn't able to be imaged bc my colon covered so much space. Fast forward a year, i have still been in the ER for abdominal pain from ovarian cysts and painful-near proliferation like symptoms. For the last 6 months no one has been able to image my right ovary with transvaginal or abdominal ultrasounds. Gyn's send you to Gastro's and vice versa. Both send you to Psych or Neuro. I am grateful for the hysterectomy though. Gave my tummy more room, but now over a year later my organs seem to shift even more. Looking into resection surgery bc I feel like I'm losing my mind

researchmaven, thanks for your feedback and best wishes!

margoriem, I am not convinced that diet and massage/body manipulation aren't the answers for my IBS-C and severely redundant colon. I hope you can figure it all out. Attached is what works for me, but I am always trying new things.

One thing is for sure, a redundant colons needs a lot of H2O. Chia seeds, soaked in boiling water and added to my hot cereal prevents constipation. I am guessing moderate fiber is what I do--and it is with real food, not processed food. Adding abdominal massage in the a.m. upon rising, going from sitting (kinks the colon which doesn't help) to standing and moving around helps too.

Yes, it is confusing to try and figure out, but I really believe I can come up with good solutions for myself.

See attached.

I was just diagnosed with a redundant or torturous colon. I also have a hiatal hernia, esophagus motility issues, and acid reflux. What I have discovered is that there is no medications, supplements, or diet that will totally correct these issues. I quit taking PPI inhibitors because of the recently released study that they can cause a 30% chance of early onset dementia and I have a family history of that. So, I have been left with trying to figure all this out on my own. My Gastroenterologist prescribed heavy doses of Miralax to clean me out and said to take 1 capful, three times a day for maintenance. Well, that was awful! I was having accidents (if you know what I mean) so I had to stop it. Then I read on this blog that someone said a supplement called Cleanse More helped them (magnesium supplement) so I asked my doctor about it and he said it was safe to take and told me to take 2 capsules every other day. That was touch and go. Two capsules seemed to be too much and one wasn't enough so right now I just started back on 1 capful of Miralax once a day and two Cleanse More capsules every other day. We'll see what happens. Regarding the high-fiber diet, I have read conflicting reports and my doctor told me that a low-fiber diet is better for this condition. High-fiber foods will cause too much bulk and will be harder to pass through. I have also seen a surgeon regarding the colon issue and he said surgery is a last resort but to come back to see him if I cannot get a handle on this. It is so confusing trying to figure all this out!

I do have a redundant colon. Absolutely has very little to do with diet, although I do find that the worst thing I did was gluten free ... led me to severe fecal blockages ... and I do struggle with red meat so I stay away from it. I live in Canada and surgical treatment isn't even seen as an option. I have had so many complications, it is awful, and everything that people believe works does not. I recently had hiatal hernia surgery as my reflux was unbearable due to the constipation. Osmotic laxatives are the worst for me and give me np relief. A high fibre diet, lots of water, and senna work the best. I know this was a long time ago so I hope you got surgery