Anyone else have a Redundant / Tortuous Colon?

researchmaven,
👍 yes, I must eat small portions. I also have celiac, so I have gotten creative with hot rice cereal made with protein drink, instead of milk. We could probably compare diets, see who has the most bland and boring 🙄ShelleyW

slkanowitz,
Really ‼️You're really good at explaining this 💩👍. I have had to ask for x-rays every few months, all showed mild to heavy fecal loads...my GI acted as if this was perfectly normal.(idiot, he's obviously never been 💩💩for years). Your explanation is exactly what happened when I was told, no obstruction issues, because I was so concerned I quit eating...then 3 months later, with only light solids I ended up in the ER. Maybe I will just quit all solid food and only drink. 🍷🥂, too bad I don't drink any alcohol, I can't stand the taste. ShelleyW

I hope the MD finds a fix. If they do not, try changing how you eat if you haven't already. A liquidy diet for most meals helps me (I eat a lot of thin but nutritous, high protein hot cereals, smoothies and soups). Plus an extremely limited diet, which I believe is unique to me. While trying to find out what to do, I lost 25 lb and became underweight. I am now normal weight. Good luck and there is hope!

A torturous redundant colon can cause diarrhea if your bowel get so full of stool that liquid stool is forced around the hard stool that cannot be passed. This causes weight loss because you cannot eat when your G.I. tract is so full. that’s what makes you feel so bloated and uncomfortable. A CT scan will show a large stool burden, if that is the case. A colonoscopy does not show this since you’re cleaned out prior to the procedure.

viscats,
A couple of options:
1. At 70, we aren't worth the time and effort of the medical community, so we just wait for THE permanent solution.🤪😱jk
2. Decide what hurts the most for you, research and document everything.
3. Join groups like this, and keep asking questions, in vivid detail, using different wording, until you get what you need.
4. Decide to just live with a problem. I have had to do this, for example, with my OMG migraines. I no longer care what the cause(s) are, just treat the symptoms. My chronic 💩💩pain, 17 years of tests and "miracle drugs" that have no effect on me. So, I buy miralax in bulk and pray for the diarrhea to kick in. I should have bought stock in miralax years ago... at least I'd be a rich person, full of 💩💩😳
5. Get a boxing bag and put a drawing of your pain on it, then punch 🥊 it out, til you are too tired to care. I did this.
Ain't getting old the pits‼️‼️
ShelleyW

Me too starting to affect my whole life at 70
Don’t know what to do!
Vic

Hello @shortiseltzer and welcome to Mayo Connect. As you can see, Mayo Connect is a great way to learn from the experiences of others. You are probably glad to find the reason for the diarrhea and weight loss.

While you wait for the biopsy results, you might try keeping a food diary, as suggested by @shelleyw. This might give you some clues as to any foods that are triggers for diarrhea.

I look forward to hearing from you again. I hope you will continue to share your journey with this diagnosis. When do you expect to get the biopsy results?

shortiseltzer,
My reply has some jest.🤪
Be happy you have diarrhea and weight loss vs chronic constipation and weight gain. The doctors have no problem blaming the patient, for everything, when there is weight gain involved. Diarrhea trips can count toward your 10,000 steps a day.🥴
The best foods for diarrhea, nausea, and constipation are- 3 saltines, followed by sips of 7-up.
Bland- is perfect for food and whatever your gut is telling you.
A journal was suggested by another member (I'm sorry I forgot your name). Track everything, going in, coming out, 💩💩description. See if you can connect a food, to a time of day, to resulting symptoms. Also track meds .I have been doing this for 17 years , it has provided me with some connections. A secondary benefit of the journal is, you can prove to YOURSELF and doctors that you are indeed in pain.
I know you are in pain and distress and it 👿👎🏼🤬. You are definitely in a great forum to learn and share. I hope you get answers and relief soon.
Good Vibes coming your way, ShelleyW

Yes, my doctors are checking everything as it’s been months and I’m still loosing weight and having diarrhea. I understand constipation is more so related but diarrhea is also a symptom. I’m still waiting on biopsy results

Im waiting on biopsies and follow up with my GI doctor at the end of the month but I will definately ask to see if this will help me. Thank you