Anyone else have a Redundant / Tortuous Colon?

I’ve been on Linzess for a couple of years. It’s not working… but two a day does and my gastroenterologist said it’s fine and prescribed me. However insurance won’t cover it.
It’s probably worth the $1200 per month.
But doesn’t seem safe for extended periods.

Ahhh!!!
I have been trying to get into see a surgeon. Or I’ll have to go on a liquid diet. Everything I eat gets stuck in that bend, and food traffic gets blocked for days and days.
Thanks for the heads up

I’ve got this problem too with IBS-C and miserable. I’m on Linzess at the moment but it’s not working very good. I’m at a loss now.

For those that seek surgery, surgeons don’t want to do a colon resection as it can make thing worse with additional adhesions. I have two meshes so surgeons really don’t want to attempt surgery. I can’t find a surgeon with the expertise to perform the needed surgery. The Mayo Clinic won’t take me as my insurance is not in my program.

I was diagnosed in May of 2021 after a routine colonoscopy and never had problems until October of 2022. For the next year - it changed my life. I was experiencing periodic severe diarrhea which went on for months. Six months later after the second colonoscopy I was told I had a "severely" tortuous and redundant colon. Laxatives and fiber never really helped bring any normalcy back to my life and I did not like taking them, especially long term. I did not want to be dependent on them. I tried drinking more and increasing fiber which I have since decided were not the right choices for me. My only problem is what I stated above. To my knowledge I do not have any other digestive/colon issues. Why would I want to put more fiber into a system that has problems eliminating daily and has more places for it to hide or stick around longer. I decided to try a product I saw on Facebook, Emma. If you want, check it out. Be sure to check all the ingredients. I am sure it is not for everyone. But for me it has made a real difference. I am able to go daily, easier, and less gas. I did also contact the company with my specific problem and asked when should I be taking it and can I take more that 2 pills a day. I received a prompt response which has been helpful in my situation. I can take up to 4, but by adding gradually. I should be taking it with 8 ounces of water "after" a meal. Good to know. I have never taken 4 but on occasion I have take one extra capsule. I was choosing to use Smooth Move Tea about once a month, if needed but I hope that won't be necessary now. I have been taking Emma since the middle of October. Healing takes time and healing won't make the tortuous redundant colon go away but hopefully the real problem won't control my daily activities and I will feel confident to go out and do things again. Occasionally I still get pain in the center of my abdomen right under my rib cage that feels like something is stuck or having difficulty moving so I use heat and massage to help. But it is not nearly as often as before. Eating smaller meals is also helpful for me, especially in the evening. Maybe this will help someone.

It may be one possibility. I’m not short waisted though and was not told this after a previous colonoscopy, nor did I feel the effects until shortly before this last one.
I believe this was caused by the incessant powders a functional dr had prescribed. Even when I reported the concerns, she did not wish to change the protocol and attributed the situation to other possibilities, sending me to other drs. Although I stopped her specific protocols when it didn’t appear she was listening, the damage was done.
So I believe there are different reasons for this to evolve.

Yes. I have tortuous colon. Unfortunately, I had lap band and later reversal. Bad decision. Now I am struggling with shortness of breath. Working hard to reduce. Gastroenterologist told me I may have partial blockage of blood getting to abdomen.
Scheduled to do Hydrogen breath test, CT abdomen, c rays and another test.
Yes. I am tall, short waisted and overweight, but I am trying to get better like others.
Tks for your thoughts.

I just learned I too have a "a tortuous colon" after having a routine colonoscopy. I've also been told (long ago) I ahve a "tilted pelvis" ; something exercise also does not change. I am very short-waisted and short (5'2) as well. I am wondering if those of us who are short waisted are at an increased risk for having "a tortuous colon". No matter how in shape I am and how little I weight, I can't reduced my waist. I buldge a bit where I have a lateral c-section scar. Yet, I run and do other exercises, eat well, maintain a low body weight, etc. Yet have what looks like a flabby abdomen. I am wondering if my being short waisted and short contributes. Seems like it world. How about others with " tortuous colon" any very tall people have a tortuous colon?

I kept telling doctors that it’s not IBS. It’s closer to 7cm dilated. Sweats and contraction like pain.

I have read on this blog that many people have benefited from magnesium supplements for constipation.

I have a "severely" redundant colon but no twisting and no pain. I have IBS-C that is caused by most types of food as well as general anxiety.

I have found that a magnesium supplement helps with both the constipation and the general anxiety -- magnesium is "proven" to actually be good for both.

As my system is sensitive. I use a gentle, low dose brand recommended by one of my doctors. Hilma Gentle Bowel Movement Support.

I take one capsule at the end of each of my three main meals, based on a study of its effect on constipation. Following the bottle's direction to take two at night didn't seem useful.

One needs to drink enough drink water when taking magnesium supplements.